A Good Death

Having a good death is our final human right, argues Sandra Martin in this updated and expanded version of her bestselling and award-winning social history of the right to die movement in Canada and around the world. Winner of the BC National Award for Canadian Non-Fiction, finalist for both the Donner Prize in Public Policy and the Dafoe Prize for History, A Good Death has a new chapter on Canada’s Medical Assistance in Dying Law. The law allows mentally competent adults, who are suffering grievously from incurable conditions, to ask for a doctor’s help in ending their lives. Does the law go far enough? No, says Martin. She delivers compelling stories about the patients the law ignores: people with life-crushing diseases who are condemned to suffer because their natural deaths are not reasonably foreseeable. With a clear analytical eye, she exposes the law’s shortcomings and outlines constitutional challenges, including the presumed right of publicly-funded faith-based institutions to deny suffering patients a legal medical service. Martin argues that Canada can set an example for the world if it can strike a balance between compassion for the suffering and protection of the vulnerable, between individual choice and social responsibility. A Good Death asks the tough question none of us can avoid: How do you want to die? The answer will change your life—and your death. “[An] excellent new book. . . .The timeliness is hard to overstate.” —The Globe and Mail “What truly distinguishes this book is the reportage on individuals and families who have fought to arrange for a better death. . . . These first-hand experiences are the beating heart of a timely and powerful examination.” —2017 BC National Award for Canadian Non-Fiction Jury Citation

Following the death of her father, journalist and hospice volunteer Ann Neumann sets out to examine what it means to die well in the United States. When Ann Neumann’s father was diagnosed with non-Hodgkin’s lymphoma, she left her job and moved back to her hometown of Lancaster, Pennsylvania. She became his full-time caregiver—cooking, cleaning, and administering medications. When her father died, she was undone by the experience, by grief and the visceral quality of dying. Neumann struggled to put her life back in order and found herself haunted by a question: Was her father’s death a good death? The way we talk about dying and the way we actually die are two very different things, she discovered, and many of us are shielded from what death actually looks like. To gain a better understanding, Neumann became a hospice volunteer and set out to discover what a good death is today. She attended conferences, academic lectures, and grief sessions in church basements. She went to Montana to talk with the attorney who successfully argued for the legalization of aid in dying, and to Scranton, Pennsylvania, to listen to “pro-life” groups who believe the removal of feeding tubes from some patients is tantamount to murder. Above all, she listened to the stories of those who were close to death. What Neumann found is that death in contemporary America is much more complicated than we think. Medical technologies and increased life expectancies have changed the very definition of medical death. And although death is our common fate, it is also a divisive issue that we all experience differently. What constitutes a good death is unique to each of us, depending on our age, race, economic status, culture, and beliefs. What’s more, differing concepts of choice, autonomy, and consent make death a contested landscape, governed by social, medical, legal, and religious systems. In these pages, Neumann brings us intimate portraits of the nurses, patients, bishops, bioethicists, and activists who are shaping the way we die. The Good Death presents a fearless examination of how we approach death, and how those of us close to dying loved ones live in death’s wake.

The guide to facilitate much needed conversation and provide resources for grief management and palliative care. When her own mother died, Margaret Rice realised how completely unprepared she and her family had been for the experience of companioning a loved one who is dying. So she decided to go in search of the information she couldn't find when she most needed it and write the book herself - a novice's guide to death. We live in a period of intense death denial. But what if we were to smash that taboo and ask questions we want answered, like how do we know when someone is close to dying, and how do we best care for them? What actually happens to our body when we die? How do we work with medical experts? How do we deal with the non-medical issues that will come up, such as wills, finances and even social media passwords? Is morphine used to nudge death along or is this just a myth? Where do questions about euthanasia fit in with personal, lived experience? Margaret Rice lifts the lid on the taboos that surround death, sharing practical information and compassionate advice from multiple sources to break down boundaries and offer better choices of care to suit individual needs. This is a book to help the dying and their carers feel less isolated, and help us all face death better.

A Good Death is based on a survey in East London and provides a wide range of fascinating and helpful insights into all aspects of experiencing death and surviving grief. The voices in the book are those of people who have managed to cope despite being under the shadow of impending death. Their experience could be a comfort to anybody in a similar situation. A Good Death is intended for people who are dying, for their lay and professional carers and for student doctors, nurses and social workers.

A Good Death is a candid and provocative account of the experiences of many terminally ill people Dr Rodney Syme has assisted to end their lives. Over the past thirty years Syme has challenged the law on voluntary euthanasia—at first clandestinely and now publicly—risking prosecution in doing so. He again risks prosecution for writing this book. A Good Death is a moving journey with those who came to Syme for help, and a meditation on what it means in our culture to confront death. It is also a doctor's personal story about the moral dilemmas and ethical choices he faces working within the grey areas of the law. In this important book, Rodney Syme argues for the end of the unofficial 'conspiracy' of silence within the medical profession and the decriminalisation of voluntary euthanasia in Australia. Through Syme's determination to tell the stories of those who he has assisted to die with dignity, A Good Death also draws wider lessons of value for those who find themselves in a similar situation.

Winner of the Restless Books Prize for New Immigrant Writing, Priyanka Champaneri’s transcendent debut novel brings us inside India’s holy city of Banaras, where the manager of a death hostel shepherds the dying who seek the release of a good death, while his own past refuses to let him go. Banaras, Varanasi, Kashi: India’s holy city on the banks of the Ganges has many names but holds one ultimate promise for Hindus. It is the place where pilgrims come for a good death, to be released from the cycle of reincarnation by purifying fire. As the dutiful manager of a death hostel in Kashi, Pramesh welcomes the dying and assists families bound for the funeral pyres that burn constantly on the ghats. The soul is gone, the body is burnt, the time is past, he tells them. Detach. After ten years in the timeless city, Pramesh can nearly persuade himself that here, there is no past or future. He lives contentedly at the death hostel with his wife, Shobha, their young daughter, Rani, the hostel priests, his hapless but winning assistant, and the constant flow of families with their dying. But one day the past arrives in the lifeless form of a man pulled from the river—a man with an uncanny resemblance to Pramesh. Called “twins” in their childhood village, he and his cousin Sagar are inseparable until Pramesh leaves to see the outside world and Sagar stays to tend the land. After Pramesh marries Shobha, defying his family’s wishes, a rift opens up between the cousins that he has long since tried to forget. Do not look back. Detach. But for Shobha, Sagar’s reemergence casts a shadow over the life she’s built for her family. Soon, an unwelcome guest takes up residence in the death hostel, the dying mysteriously continue to live, and Pramesh is forced to confront his own ideas about death, rebirth, and redemption. Told in lush, vivid detail and with an unforgettable cast of characters, The City of Good Death is a remarkable debut novel of family and love, memory and ritual, and the ways in which we honor the living and the dead. PRAISE FOR THE CITY OF GOOD DEATH “In Champaneri’s ambitious, vivid debut, the dying come to the holy city of Kashi to die a good death that frees them from the burden of reincarnation…. In sharp prose, Champaneri explores the power of stories—those the characters tell themselves, those told about them, and those they believe. . . . This epic, magical story of death teems with life.” —Publishers Weekly “Brimming with characters whose lives overlap and whose stories interweave, Champaneri’s exquisite debut delves into the consequences of the past, and how stories that are told can become reality even when they contain barely a shred of truth. As Pramesh discovers, the bitterness of past wounds can bring hope for redemption and life.” —Bridget Thoreson, Booklist “Lush prose evokes the thick, close atmosphere of Kashi and the intricate religious practices upon which life and death depend. Rumor and superstition hold sway over even the most level-headed people, twisting what’s explainable into something extraordinary—with tragic consequences. . . . The City of Good Death is a breathtaking, unforgettable novel about how remembering the past is just as important as moving on.” —Eileen Gonzalez, Foreword Reviews, Starred Review "Champaneri’s Kashi is teeming and vivid . . . the book frequently charms, and it's as full of humor, warmth, and mystery as Kashi’s own marketplace." —Kirkus Reviews “The City of Good Death is the debut novel of Priyanka Champaneri but it has the confidence of a master storyteller. Drawing on the rich literary traditions of Salman Rushdie and Arundhati Roy, Champaneri’s epic saga will satisfy armchair travelers thirsty for adventure, and sick of looking out their windows.” —Chicago Review of Books "In intricate detail and with remarkable skill, Champaneri writes a powerful tale about the pull of the past and our aching need to understand the mysteries and misunderstandings that thwart our relationships. An atmospheric and immersive debut with a rich cast of characters you won’t soon forget." —Marjan Kamali, author of The Stationery Shop

In November 1998, millions of television viewers watched as Thomas Youk died. Suffering from the late stages of Lou Gehrig's disease, Youk had called upon infamous Michigan pathologist Dr. Jack Kevorkian to help end his life on his own terms. After delivering the videotape to 60 Minutes, Kevorkian was arrested and convicted of manslaughter, despite the fact that Youk's family firmly believed that the ending of his life qualified as a good death. Death is political, as the controversies surrounding Jack Kevorkian and, more recently, Terri Schiavo have shown. While death is a natural event, modern end-of-life experiences are shaped by new medical, demographic, and cultural trends. People who are dying are kept alive, sometimes against their will or the will of their family, with powerful medications, machines, and "heroic measures." Current research on end-of-life issues is substantial, involving many fields. Beyond the Good Death takes an anthropological approach, examining the changes in our concept of death over the last several decades. As author James W. Green determines, the attitudes of today's baby boomers differ greatly from those of their parents and grandparents, who spoke politely and in hushed voices of those who had "passed away." Dr. Elisabeth Kübler-Ross, in the 1960s, gave the public a new language for speaking openly about death with her "five steps of dying." If we talked more about death, she emphasized, it would become less fearful for everyone. The term "good death" reentered the public consciousness as narratives of AIDS, cancer, and other chronic diseases were featured on talk shows and in popular books such as the best-selling Tuesdays with Morrie. Green looks at a number of contemporary secular American death practices that are still informed by an ancient religious ethos. Most important, Beyond the Good Death provides an interpretation of the ways in which Americans react when death is at hand for themselves or for those they care about.

Winner of the 2012 AJN (American Journal of Nursing) Book of the Year Award in the Hospice and Palliative Care category In the 1960s, English physician and committed Christian Cicely Saunders introduced a new way of treating the terminally ill that she called "hospice care." Emphasizing a holistic and compassionate approach, her model led to the rapid growth of a worldwide hospice movement. Aspects of the early hospice model that stressed attention to the religious dimensions of death and dying, while still recognized and practiced, have developed outside the purview of academic inquiry and consideration. Meanwhile, global migration and multicultural diversification in the West have dramatically altered the profile of contemporary hospice care. In response to these developments, this volume is the first to critically explore how religious understandings of death are manifested and experienced in palliative care settings. Contributors discuss how a "good death" is conceived within the major religious traditions of Christianity, Islam, Hinduism, Judaism, Buddhism, Chinese religion, and Aboriginal spirituality. A variety of real-world examples are presented in case studies of a Buddhist hospice center in Thailand, Ugandan approaches to dying with HIV/AIDS, Punjabi extended-family hospice care, and pediatric palliative care. The work sheds new light on the significance of religious belief and practice at the end of life, at the many forms religious understanding can take, and at the spiritual pain that so often accompanies the physical pain of the dying person.