Choosing To Die

★ “Tate’s sprawling work is a fascinating guide that belongs in all middle school, high school, and public libraries. This resource will help tweens and teens looking to better understand death and dying for personal or academic purposes.”—School Library Journal, starred review With many jurisdictions considering whether or not to implement new assisted-death legislation, Choosing to Live, Choosing to Die is a timely look at the subject for teen readers who may not yet have had much experience with death and dying. Readers are introduced to the topic of assisted dying through the author's own story. The issue continues to be hotly debated in families, communities and countries around the world, and there are no easy answers. Choosing to Live, Choosing to Die looks at the issue from multiple perspectives and encourages readers to listen with an open mind and a kind heart and reach their own conclusions.

Phyllis Shacter courageously shares the first personal story ever written about VSED (voluntarily stopping eating and drinking). This memoir and guidebook follows the journey she took with her husband, Alan, once he decided to VSED so he didn't have to live into the late stages of Alzheimer's disease. This is their love story, their partnership, the brave territory they traversed, including how they prepared themselves with proper medical and legal guidance. They knew they were paving the way for others who would follow in their footsteps. Every detail is shared, including what happened to Alan during the nine-and-a-half days it took for him to die, and how the experience transformed Phyllis. This book is for anyone who wants a deeper understanding of end of life choices, and especially for anyone who has been diagnosed with a degenerative disease. www.PhyllisShacter.com

Why we all deserve a life worth living and a death worth dying for ‘Most men don’t fear death. They fear those things – the knife, the shipwreck, the illness, the bomb – which precede, by microseconds if you’re lucky, and many years if you’re not, the moment of death.’ When Terry Pratchett was diagnosed with Alzheimer’s in his fifties he was angry - not with death but with the disease that would take him there, and with the suffering disease can cause when we are not allowed to put an end to it. In this essay, broadcast to millions as the BBC Richard Dimblebly Lecture 2010 and previously only available as part of A Slip of the Keyboard, he argues for our right to choose - our right to a good life, and a good death too.

NEW YORK TIMES BESTSELLER • A powerful memoir of a love that leads two people to find a courageous way to part—and a woman’s struggle to go forward in the face of loss—that “enriches the reader’s life with urgency and gratitude” (The Washington Post) “A pleasure to read . . . Rarely has a memoir about death been so full of life. . . . Bloom has a talent for mixing the prosaic and profound, the slapstick and the serious.”—USA Today ONE OF THE BEST BOOKS OF THE YEAR: NPR Amy Bloom began to notice changes in her husband, Brian: He retired early from a new job he loved; he withdrew from close friendships; he talked mostly about the past. Suddenly, it seemed there was a glass wall between them, and their long walks and talks stopped. Their world was altered forever when an MRI confirmed what they could no longer ignore: Brian had Alzheimer’s disease. Forced to confront the truth of the diagnosis and its impact on the future he had envisioned, Brian was determined to die on his feet, not live on his knees. Supporting each other in their last journey together, Brian and Amy made the unimaginably difficult and painful decision to go to Dignitas, an organization based in Switzerland that empowers a person to end their own life with dignity and peace. In this heartbreaking and surprising memoir, Bloom sheds light on a part of life we so often shy away from discussing—its ending. Written in Bloom’s captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love.

At 45, Bill Johnson, faced with chronic illness and the loss of everything important to him, decided to die, seemingly in stark contradiction to how he’d lived his life. Since his devastating accident at 13, he’d fought for decades against disability and prejudice to achieve a fulfilling and successful life. As his wife, Carolyne Lee witnessed his final conundrum, and was persuaded to support him as he died by euthanasia. This is the story of Bill’s death and his life, much of which the author discovered afterwards, in seeking to understand his fearless final decision. ‘Somehow I must tell of that day … It is, after all, the initiating event of his story. It caused everything that followed: the bad, first, which endured for a long time. But also the good. This event set up the defining paradox of his life. To fight endlessly for a satisfying quality of life, but once that quality was gone, to face death with more than bravery; to embrace it.’ ‘A moving and intensely reflective journey into a life, a love and a death.’ —Margaret Simons, Walkley Award-winning journalist and author

“A remarkably nuanced, empathetic, and well-crafted work of journalism, [The Inevitable] explores what might be called the right-to-die underground, a world of people who wonder why a medical system that can do so much to try to extend their lives can do so little to help them end those lives in a peaceful and painless way.”—Brooke Jarvis, The New Yorker More states and countries are passing right-to-die laws that allow the sick and suffering to end their lives at pre-planned moments, with the help of physicians. But even where these laws exist, they leave many people behind. The Inevitable moves beyond margins of the law to the people who are meticulously planning their final hours—far from medical offices, legislative chambers, hospital ethics committees, and polite conversation. It also shines a light on the people who help them: loved ones and, sometimes, clandestine groups on the Internet that together form the “euthanasia underground.” Katie Engelhart, a veteran journalist, focuses on six people representing different aspects of the right to die debate. Two are doctors: a California physician who runs a boutique assisted death clinic and has written more lethal prescriptions than anyone else in the U.S.; an Australian named Philip Nitschke who lost his medical license for teaching people how to end their lives painlessly and peacefully at “DIY Death” workshops. The other four chapters belong to people who said they wanted to die because they were suffering unbearably—of old age, chronic illness, dementia, and mental anguish—and saw suicide as their only option. Spanning North America, Europe, and Australia, The Inevitable offers a deeply reported and fearless look at a morally tangled subject. It introduces readers to ordinary people who are fighting to find dignity and authenticity in the final hours of their lives.

Physician-Assisted Death is the eleventh volume of Biomedical Ethics Reviews. We, the editors, are pleased with the response to the series over the years and, as a result, are happy to continue into a second decade with the same general purpose and zeal. As in the past, contributors to projected volumes have been asked to summarize the nature of the literature, the prevailing attitudes and arguments, and then to advance the discussion in some way by staking out and arguing forcefully for some basic position on the topic targeted for discussion. For the present volume on Physician-Assisted Death, we felt it wise to enlist the services of a guest editor, Dr. Gregg A. Kasting, a practicing physician with extensive clinical knowledge of the various problems and issues encountered in discussing physician assisted death. Dr. Kasting is also our student and just completing a graduate degree in philosophy with a specialty in biomedical ethics here at Georgia State University. Apart from a keen interest in the topic, Dr. Kasting has published good work in the area and has, in our opinion, done an excellent job in taking on the lion's share of editing this well-balanced and probing set of essays. We hope you will agree that this volume significantly advances the level of discussion on physician-assisted euthanasia. Incidentally, we wish to note that the essays in this volume were all finished and committed to press by January 1993.

The renowned radio host and one of the most trusted voices in the nation candidly and compassionately addresses the hotly contested right-to-die movement, of which she is one of our most inspiring champions. The basis for the acclaimed PBS series. Through interviews with terminally ill patients and their relatives, as well as physicians, ethicists, religious leaders, and representatives of both those who support and vigorously oppose this urgent movement, Rehm gives voice to a broad range of people personally linked to the realities of medical aid in dying. With characteristic evenhandedness, she provides the full context for this highly divisive issue and presents the fervent arguments—both for and against—that are propelling the current debate: Should we adopt laws allowing those who are dying to put an end to their suffering? Featuring a deeply personal foreword by John Grisham, When My Time Comes is a response to many misconceptions and misrepresentations of end-of-life care. It is a call to action—and to conscience—and it is an attempt to heal and soothe, reminding us that death, too, is an integral part of life.