Consumer Health Informatics

According to the Pew Foundation’s "Internet in American Life Study," over 60 million Americans per year use the Internet to search for health information. All those concerned with healthcare and how to obtain personally relevant medical information form a large additional target group Many Medical Informatics programs–both in the United States and abroad–include a course in Consumer Health Informatics as part of their curriculum. This book, designed for use in a classroom, will be the first textbook dedicated solely to the specific concerns of consumer health informatics Consumer Health Informatics is an interactive text; filled with case studies and discussion questions With international authorship and edited by five leaders in the field, Consumer Health Informatics has tapped some of the best resources in informatics today

"An engaging introduction to an exciting multidisciplinary field where positive impact depends less on technology than on understanding and responding to human motivations, specific information needs, and life constraints." -- Betsy L. Humphreys, former Deputy Director, National Library of Medicine This is a book for people who want to design or promote information technology that helps people be more active and informed participants in their healthcare. Topics include patient portals, wearable devices, apps, websites, smart homes, and online communities focused on health. Consumer Healthcare Informatics: Enabling Digital Health for Everyone educates readers in the core concepts of consumer health informatics: participatory healthcare; health and e-health literacy; user-centered design; information retrieval and trusted information resources; and the ethical dimensions of health information and communication technologies. It presents the current state of knowledge and recent developments in the field of consumer health informatics. The discussions address tailoring information to key user groups, including patients, consumers, caregivers, parents, children and young adults, and older adults. For example, apps are considered as not just a rich consumer technology with the promise of empowered personal data management and connectedness to community and healthcare providers, but also a domain rife with concerns for effectiveness, privacy, and security, requiring both designer and user to engage in critical thinking around their choices. This book’s unique contribution to the field is its focus on the consumer and patient in the context of their everyday life outside the clinical setting. Discussion of tools and technologies is grounded in this perspective and in a context of real-world use and its implications for design. There is an emphasis on empowerment through participatory and people-centered care.

This unique collection synthesizes insights and evidence from innovators in consumer informatics and highlights the technical, behavioral, social, and policy issues driving digital health today and in the foreseeable future. Consumer Informatics and Digital Health presents the fundamentals of mobile health, reviews the evidence for consumer technology as a driver of health behavior change, and examines user experience and real-world technology design challenges and successes. Additionally, it identifies key considerations for successfully engaging consumers in their own care, considers the ethics of using personal health information in research, and outlines implications for health system redesign. The editors’ integrative systems approach heralds a future of technological advances tempered by best practices drawn from today’s critical policy goals of patient engagement, community health promotion, and health equity. Here’s the inside view of consumer health informatics and key digital fields that students and professionals will find inspiring, informative, and thought-provoking. Included among the topics: • Healthcare social media for consumer informatics • Understanding usability, accessibility, and human-centered design principles • Understanding the fundamentals of design for motivation and behavior change • Digital tools for parents: innovations in pediatric urgent care • Behavioral medicine and informatics in the cancer community • Content strategy: writing for health consumers on the web • Open science and the future of data analytics • Digital approaches to engage consumers in value-based purchasing Consumer Informatics and Digital Health takes an expansive view of the fields influencing consumer informatics and offers practical case-based guidance for a broad range of audiences, including students, educators, researchers, journalists, and policymakers interested in biomedical informatics, mobile health, information science, and population health. It has as much to offer readers in clinical fields such as medicine, nursing, and psychology as it does to those engaged in digital pursuits.

This book offers demographic analysis, client appraisal, trial design, etc along with many examples to inform the conception and critical evaluation of consumer health informatics services. Patient safety, legal and ethical appraisal, and business models add to the systematic coverage. Regarding longevity and increase of chronic diseases traditional medical care faces tremendous financial and human resource problems. Is self-service medicine as follow up of traditional care or as an approach in its own right the answer? Are internet and app stores the place where self service medicine takes place? The book distinguishes stages of such an endeavour.

This innovative reference examines how consumer health informatics (CHI) can transform healthcare systems stressed by staffing shortages and budget constraints and challenged by patients taking a more active role in their care. It situates CHI as vital to upgrading healthcare service delivery, detailing the relationship between health information technologies and quality healthcare, and outlining what stakeholders need to learn for health IT systems to function effectively. Wide-ranging content identifies critical issues and answers key questions at the consumer, practitioner, administration, and staff levels, using examples from diverse conditions, countries, technologies, and specialties. In this framework, the benefits of CHI are seen across service domains, from individual patients and consumers to healthcare systems and global health entities. Included in the coverage: Use of video technology in an aged care environment A context-aware remote health monitoring service for improved patient care Accessibility issues in interoperable sharing of electronic health records: physician’s perspective Managing gestational diabetes with mobile web-based reporting of glucose readings An organizing vision perspective for developing and adopting e-health solutions An ontology of consumer health informatics Contemporary Consumer Health Informatics combines blueprint and idea book for public health and health informatics students, healthcare professionals, physicians, medical administrators, managers, and IT practitioners.

Health Informatics (HI) focuses on the application of Information Technology (IT) to the field of medicine to improve individual and population healthcare delivery, education and research. This extensively updated fifth edition reflects the current knowledge in Health Informatics and provides learning objectives, key points, case studies and references.

This book's focus is on the decisions taken in consultations between health care patients and professionals. Clinician- patient partnerships in health care decisions are increasingly advocated. Evidence- based patient choice describes a model of health care in which the evidence-based approachcan integrate with the promotion of consumer choice. The book examines the traditional approach and the changing experience and expectations of consumers. It describes with many clinical examples and patient narratives how to practice evidence-based patient choice, and explores the ethical,sociological and economic issues raised. It also addresses the future modifications to professional training and organisational change which are required if evidence-based patient choice is to become the norm and speculates about what is likely to be achieved in the next few years. The book providesa summary of current perspectives in this area, which will be of interest to consumers, their representative groups, and to professionals in practice and training alike. From the foreword by Richard Grol: 'An enormous challenge lies before us. In this new and challenging field Evidence-basedpatient choice is manna from heaven. It summarises the current state of knowledge about these new patient involvement approaches. It is by far the most comprehensive account of scientific and ethical thinking about patient choice at this moment. And, it manages to show us the way to a potentialfuture: health care provision where patients and professionals operate as real partners with shared goals...'

This series is directed to healthcare professionals who are leading the trans formation of health care by using information and knowledge. Launched in 1988 as Computers in Health Care, the series offers a broad range of titles: some addressed to specific professions such as nursing, medicine, and health administration; others to special areas of practice such as trauma and radiol ogy. Still other books in the series focus on interdisciplinary issues, such as the computer-based patient record, electronic health records, and networked healthcare systems. Renamed Health Informatics in 1998 to reflect the rapid evolution in the discipline now known as health informatics, the series will continue to add titles that contribute to the evolution of the field. In the series, eminent ex perts, serving as editors or authors, offer their accounts of innovations in health informatics. Increasingly, these accounts go beyond hardware and soft ware to address the role of information in influencing the transformation of healthcare deli very systems around the world. The series also increasingly focuses on "peopleware" and the organizational, behavioral, and societal changes that accompany the diffusion of information technology in health services environments.