Living Life to the Fullest with Ehlers Danlos Syndrome

Living Life to the Fullest with Ehlers Danlos Syndrome
Author: Pt Kevin Muldowney
Publsiher: Unknown
Total Pages: 400
Release: 2015-07-17
Genre: Ehlers-Danlos syndrome
ISBN: 1478758880

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"This book was written to teach people with Ehlers-Danlos Syndrome (EDS) how to systematically progress through an exercise program to allow their muscles to support many joint subluxations commonly associated with this genetic disorder. This will allow people living wih EDS to have less pain throughout their body."--Back cover.

A Multidisciplinary Approach to Managing Ehlers Danlos Type III Hypermobility Syndrome

A Multidisciplinary Approach to Managing Ehlers Danlos  Type III    Hypermobility Syndrome
Author: Isobel Knight
Publsiher: Singing Dragon
Total Pages: 224
Release: 2013-03-28
Genre: Health & Fitness
ISBN: 9780857010551

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The complex effects of Ehlers-Danlos Syndrome (Type 3, Hypermobility), or EDSIII, on a patient's physical and mental wellbeing are extremely challenging for everyone involved, requiring a multidisciplinary care team and enormous dedication from the patient. This book presents an overview of what it means to be a chronic complex patient, examining the wide range of physiological and psychological implications associated with EDSIII and other conditions such as endometriosis and fibromyalgia. It explores the exercise and rehabilitation work involved in managing the condition effectively, considering a diverse range of medical treatments and complementary approaches including physiotherapy, Bowen Technique and Feldenkrais Method(R). There are contributions and insights throughout from experts in the fields of physiotherapy, rheumatology and health psychology, all of whom have extensive experience of working with complex chronic patients. The author links her own symptoms and experiences to those of other EDSIII patients and discusses how she has been able to reach a point where she can successfully manage the condition. This book will be essential reading for professionals working with EDSIII and other complex conditions including medical professionals, physiotherapists, occupational therapists, psychologists, counsellors and complementary therapists, and will be of interest to patients with EDSIII wanting to learn more about effective management of the condition.

Our Stories of Strength

Our Stories of Strength
Author: Kendra Neilsen Myles
Publsiher: Unknown
Total Pages: 214
Release: 2016-10-20
Genre: Connective tissues
ISBN: 0997319623

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This listing is for the 7x10 full-color version of the paperback book. An inspirational collection of stories, filled with devastation, heartbreak, triumph, and strength as written by those affected by different types of Ehlers-Danlos syndrome. EDS is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result. EDS has been commonly viewed as just Benign Joint Hypermobility Syndrome (BJHS/JHS) or Hypermobility Syndrome (HMS). Based upon recent research, the prevalence of EDS exceeds current estimates. Kendra Neilsen Myles founded Sisters Media, LLC with core values of giving back and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength anthology series. Sisters Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community. We are #Stronger2Gether."

Spectrum Women

Spectrum Women
Author: Barb Cook,Michelle Garnett
Publsiher: Jessica Kingsley Publishers
Total Pages: 336
Release: 2018-08-21
Genre: Family & Relationships
ISBN: 9781784508067

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Barb Cook and 14 other autistic women describe life from a female autistic perspective, and present empowering, helpful and supportive insights from their personal experience for fellow autistic women. Michelle Garnett's comments validate and expand the experiences described from a clinician's perspective, and provide extensive recommendations. Autistic advocates including Liane Holliday Willey, Anita Lesko, Jeanette Purkis, Artemisia and Samantha Craft offer their personal guidance on significant issues that particularly affect women, as well as those that are more general to autism. Contributors cover issues including growing up, identity, diversity, parenting, independence and self-care amongst many others. With great contributions from exceptional women, this is a truly well-rounded collection of knowledge and sage advice for any woman with autism.

Too Flexible to Feel Good

Too Flexible to Feel Good
Author: Celest Pereira,Adell Bridges
Publsiher: Simon and Schuster
Total Pages: 240
Release: 2021-10-12
Genre: Health & Fitness
ISBN: 9781628604177

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Hypermobility affects a whopping 10 to 25 percent of the population (meaning it's more common than being left-handed, standing over six feet tall, or having a third nipple), and it can cause symptoms ranging from minor discomfort to debilitating pain. In this epic new book, fitness experts Adell Bridges and Celest Pereira redefine how to manage hypermobility, providing a practical roadmap that will enable you to harness your bendiness and feel fantastic.

Ehlers Danlos Syndrome A Multidisciplinary Approach

Ehlers Danlos Syndrome  A Multidisciplinary Approach
Author: J.W.G. Jacobs,L.J.M. Cornelissens,M.C. Veenhuizen
Publsiher: IOS Press
Total Pages: 370
Release: 2018-08-14
Genre: Medical
ISBN: 9781614998785

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Generalized hypermobility has been known since ancient times, and a clinical description of Ehlers-Danlos syndrome (EDS) is said to have first been recorded by Hippocrates in 400 BC. Hypermobility syndromes occur frequently, but the wide spectrum of possible symptoms, coupled with a relative lack of awareness and recognition, are the reason that they are frequently not recognized, or remain undiagnosed. This book is an international, multidisciplinary guide to hypermobility syndromes, and EDS in particular. It aims to create better awareness of hypermobility syndromes among health professionals, including medical specialists, and to be a guide to the management of such syndromes for patients and practitioners. It is intended for use in daily clinical practice rather than as a reference book for research or the latest developments, and has been written to be understandable for any healthcare worker or educated patient without compromise to the scientific content. The book is organized as follows: chapters on classifications and genetics are followed by chapters on individual types, organ (system) manifestations and complications, and finally ethics and therapeutic strategies, with an appendix on surgery and the precautions which should attend it. A special effort has been made to take account of the perspective of the patient; two of the editors have EDS. The book will be of interest to patients with hypermobility syndromes and their families, as well as to all those healthcare practitioners who may encounter such syndromes in the course of their work.

Hypermobility Without Tears

Hypermobility Without Tears
Author: Jeannie Di Bon
Publsiher: Independently Published
Total Pages: 144
Release: 2019-05-09
Genre: Electronic Book
ISBN: 1096534983

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Hypermobility Without Tears is a step-by-step guide to help people with hypermobility and Ehler-Danlos Syndrome (EDS) learn how to move pain-free and effortlessly. A movement therapist and hypermobility specialist with over a decade of education, research, client practice and Pilates teaching, Jeannie is an expert in the field of movement. Her own experience of hypermobile EDS, leaves her uniquely qualified to guide people with hypermobility and EDS back to movement and a 'no pain, no strain' lifestyle. Having suffered through years of misdiagnosis and pain, Jeannie truly understands the 'hypermobile body' and her book offers empathetic guidance on how to listen to the body and learn to move without pain. Hypermobility Without Tears is arranged into six sections based on Jeannie's key principles of pain-free movement for the hypermobile body: breath, relaxation, proprioception, stability, balance and posture.

Confessions of a Fashionista

Confessions of a Fashionista
Author: Angela Clarke
Publsiher: Random House
Total Pages: 336
Release: 2014-11-27
Genre: Biography & Autobiography
ISBN: 9780753551646

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The incredibly popular Daily Mail column, 'Confessions of a Fashionista', feeds its hungry readers snippets of a life in the glittering yet deranged world of fashion. Now its anonymous author reveals both her identity and the true story of her giddyingly glamorous time in the style industry, with insider gossip on the people who populate it. Propelled by a painful end to a relationship and determined to prove her ex wrong for breaking up with her, our Fashionista lands a place on the Harrods Graduate Scheme. A complete outsider to the fashion world, she sets out on a wing and a pair of Guccis, and finds herself in a whirlwind of couture and craziness. Along the way she learns how to stay sane in a world where hairdressers have egos as big as their clients' bouffants, where dogs fly business class, and if you're eating carbs it can only be because you're pregnant. Confessions of a Fashionista is a book for anyone who's ever been an outsider, for anyone who's ever had a relationship end badly and thought they'd never find true love, and for anyone who thinks that cakes were made to be eaten, not sniffed. By turns hilarious, sad, thrilling, romantic and fun, it is the It book for fashionistas everywhere.