The Real Aids Epidemic

Four decades after And the Band Played On created an image of the AIDS epidemic that has survived in the public consciousness to this very day, mathematician Rebecca Culshaw is sounding the alarm that everything that iconic book told us about AIDS is demonstrably wrong. And that mistaken understanding of AIDS and its cause has the potential to affect all of us, not just certain so-called risk groups. In The Real AIDS Epidemic, Rebecca Culshaw describes her slow uncovering of these reasons over her years researching HIV for her work constructing mathematical models of its interaction with the immune system. It is rare that a researcher, having studied HIV, ever expresses any doubt in the paradigm, and an even rarer event still when she abandons the field altogether. Culshaw's book, updated from its original edition, which was titled Science Sold Out, is one of the great insider-turned-whistleblower stories of our time. The Real AIDS Epidemic focuses on the politics of the changing definition of AIDS and the flaws in all HIV testing. In a much broader sense, it explains how the current, government-based structure of scientific research has corrupted science as the search for truth. It offers not only scientific reasons for HIV/AIDS being untenable, but also sociological explanations as to how the theory was accepted by the media and the world so quickly. In particular, this book offers a scathing criticism of the outrageous discriminatory measures that have been leveled at HIV-positives from the inception. She also warns that the toxic drugs being foisted on the Black and gay communities constitute one of the worst medical violations of human rights since the Tuskegee Syphilis Experiment. The compelling case she makes that the AIDS establishment has led us into a biomedical disaster through incompetence, fraud, and deceit will have many readers throwing their hands up and feeling helpless and hopeless. But she does something no other book that is critical about HIV and AIDS has done. She suggests a series of strategic actions the scientific community, Congress, the media, and the public can take to undo the damage that the powerful AIDS establishment has done since the epidemic began in 1981.

Europe's "Black Death" contributed to the rise of nation states, mercantile economies, and even the Reformation. Will the AIDS epidemic have similar dramatic effects on the social and political landscape of the twenty-first century? This readable volume looks at the impact of AIDS since its emergence and suggests its effects in the next decade, when a million or more Americans will likely die of the disease. The Social Impact of AIDS in the United States addresses some of the most sensitive and controversial issues in the public debate over AIDS. This landmark book explores how AIDS has affected fundamental policies and practices in our major institutions, examining: How America's major religious organizations have dealt with sometimes conflicting values: the imperative of care for the sick versus traditional views of homosexuality and drug use. Hotly debated public health measures, such as HIV antibody testing and screening, tracing of sexual contacts, and quarantine. The potential risk of HIV infection to and from health care workers. How AIDS activists have brought about major change in the way new drugs are brought to the marketplace. The impact of AIDS on community-based organizations, from volunteers caring for individuals to the highly political ACT-UP organization. Coping with HIV infection in prisons. Two case studies shed light on HIV and the family relationship. One reports on some efforts to gain legal recognition for nonmarital relationships, and the other examines foster care programs for newborns with the HIV virus. A case study of New York City details how selected institutions interact to give what may be a picture of AIDS in the future. This clear and comprehensive presentation will be of interest to anyone concerned about AIDS and its impact on the country: health professionals, sociologists, psychologists, advocates for at-risk populations, and interested individuals.

Now an award-winning documentary feature film The search for a “patient zero”—popularly understood to be the first person infected in an epidemic—has been key to media coverage of major infectious disease outbreaks for more than three decades. Yet the term itself did not exist before the emergence of the HIV/AIDS epidemic in the 1980s. How did this idea so swiftly come to exert such a strong grip on the scientific, media, and popular consciousness? In Patient Zero, Richard A. McKay interprets a wealth of archival sources and interviews to demonstrate how this seemingly new concept drew upon centuries-old ideas—and fears—about contagion and social disorder. McKay presents a carefully documented and sensitively written account of the life of Gaétan Dugas, a gay man whose skin cancer diagnosis in 1980 took on very different meanings as the HIV/AIDS epidemic developed—and who received widespread posthumous infamy when he was incorrectly identified as patient zero of the North American outbreak. McKay shows how investigators from the US Centers for Disease Control inadvertently created the term amid their early research into the emerging health crisis; how an ambitious journalist dramatically amplified the idea in his determination to reframe national debates about AIDS; and how many individuals grappled with the notion of patient zero—adopting, challenging and redirecting its powerful meanings—as they tried to make sense of and respond to the first fifteen years of an unfolding epidemic. With important insights for our interconnected age, Patient Zero untangles the complex process by which individuals and groups create meaning and allocate blame when faced with new disease threats. What McKay gives us here is myth-smashing revisionist history at its best.

During the early years of the AIDS epidemic, thousands of Americans became infected with HIV through the nation's blood supply. Because little reliable information existed at the time AIDS first began showing up in hemophiliacs and in others who had received transfusions, experts disagreed about whether blood and blood products could transmit the disease. During this period of great uncertainty, decision-making regarding the blood supply became increasingly difficult and fraught with risk. This volume provides a balanced inquiry into the blood safety controversy, which involves private sexual practices, personal tragedy for the victims of HIV/AIDS, and public confidence in America's blood services system. The book focuses on critical decisions as information about the danger to the blood supply emerged. The committee draws conclusions about what was doneâ€"and recommends what should be done to produce better outcomes in the face of future threats to blood safety. The committee frames its analysis around four critical area: Product treatmentâ€"Could effective methods for inactivating HIV in blood have been introduced sooner? Donor screening and referralâ€"including a review of screening to exlude high-risk individuals. Regulations and recall of contaminated bloodâ€"analyzing decisions by federal agencies and the private sector. Risk communicationâ€"examining whether infections could have been averted by better communication of the risks.

By focusing on a small town in South Carolina, this study of the HIV/AIDS crisis in the South reveals the hard truths of an ongoing and complex issue. Skerritt contends that the United States has failed to adequately address the threat of HIV and AIDS in communities of color and that taboos about love, race, and sexuality--combined with Southern conservatism, white privilege, and black oppression--continue to create an unacceptable death toll. The heartbreak of America's failure comes alive through case studies of individuals such as Carolyn, a wild child whose rebellion coincided with the advent of AIDS, and Nita, a young woman searching for love and trapped in an abusive relationship. The results are most visible at the town's segregated burial ground where dozens of young black men and women who have died from AIDS are laid to rest. Not only a call to action and awareness, this is a true story of how persons of faith, enduring love, and limitless forgiveness can inspire others by serving as guides for poor communities facing a public health threat burdened with conflicting moral and social conventions.

"A former HIV researcher tells the story of her disillusionment with the HIV/AIDS hypothesis and exposes not only its numerous flaws but also problems with the scientific research establishment that enabled this hypothesis to take such a strong, hypnotic hold on the world at large"--Provided by publisher.

San Francisco General Hospital has been the epicenter of the AIDS crisis from the start, and is for author Carol Pogash the perfect microcosm for reporting one of the great stories of this generation. With a novelist's eye she follows a memorable cast of characters, illuminating every political, social, or human dilemma in this tragedy.

AIDS and the Distribution of Crises engages with the AIDS pandemic as a network of varied historical, overlapping, and ongoing crises born of global capitalism and colonial, racialized, gendered, and sexual violence. Drawing on their investments in activism, media, anticolonialism, feminism, and queer and trans of color critiques, the scholars, activists, and artists in this volume outline how the neoliberal logic of “crisis” structures how AIDS is aesthetically, institutionally, and politically reproduced and experienced. Among other topics, the authors examine the writing of the history of AIDS; settler colonial narratives and laws impacting risk in Indigenous communities; the early internet regulation of both content and online AIDS activism; the Black gendered and sexual politics of pleasure, desire, and (in)visibility; and how persistent attention to white men has shaped AIDS as intrinsic to multiple, unremarkable crises among people of color and in the Global South. Contributors. Cecilia Aldarondo, Pablo Alvarez, Marlon M. Bailey, Emily Bass, Darius Bost, Ian Bradley-Perrin, Jih-Fei Cheng, Bishnupriya Ghosh, Roger Hallas, Pato Hebert, Jim Hubbard, Andrew J. Jolivette, Julia S. Jordan-Zachery, Alexandra Juhasz, Dredge Byung'chu Kang-Nguyễn, Theodore (Ted) Kerr, Catherine Yuk-ping Lo, Cait McKinney, Viviane Namaste, Elton Naswood, Cindy Patton, Margaret Rhee, Juana María Rodríguez, Sarah Schulman, Nishant Shahani, C. Riley Snorton, Eric A. Stanley, Jessica Whitbread, Quito Ziegler