A First Step Understanding Guillain Barre Syndrome

Part one of A First Step - Understanding Guillain-Barr Syndrome is a true, blow-by-blow account of the Author's encounter, as a healthy Canadian businessman, with a rare and devastating disease, Guillain-Barr Syndrome (G.B.S. for short). It describes his seven-month long struggle for life in 'Intensive Care' after receiving a grim prognosis, and his subsequent dogged determination to overcome the effects of that disease. The second part is devoted to short stories based on dreams and hallucinations experienced whilst he was in 'Intensive Care', which in themselves reveal something of what a patient was going through. They also serve to illustrate the narrow boundary between reality and the dream world, and which whilst making for entertaining reading, could possibly be the subject of further study. Although the Author is a layperson, in medical terms, it is believed this book will be an important aid to medical professionals and care-givers, providing as it does, new insights and a unique perspective on the effects, not only of the disease, Guillain-Barr Syndrome, but also of the handling and care of any long-term intensive care patient, and their subsequent rehabilitation. For the curious, it will answer many questions. For G.B.S. patients and their families it should provide inspirational reading. The foreword to the book has been written by Dr Frank Warshawski, MD, FRCPC, Director of Intensive Care, Rockyview General Hospital, Calgary. In addition to that prestigious involvement, the Author has been fortunate in receiving permission to use other material authored by exceptionally well qualified medical professionals, for which due credit is given in the 'Acknowledgements' section of the book, enabling him to produce not only an interesting publication, but an informative and educational one. In short, a 'must read' and deserving of a place on any medical bookshelf.

This book is about three people from different walks of life, each of whom experienced a life-changing episode of Guillain-Barr Syndrome. Three dramatic stories in one. Firstly, a story of the Author's remarkable almost complete recovery following his encounter with the syndrome. It is a frank and personal account of his struggle to regain much of what he had lost in bodily function during one year of hospitalisation. It should provide inspiration and possibly answer so many questions typically asked by others afflicted with this syndrome. Secondly, case studies written by two co-author contributors, one a Calgary Veterinarian and mother of two, the other a retired Vancouver resident who was struck with Guillain-Barr Syndrome whilst shopping for a boat in England. "There is no single answer to the question as to how life may change after recovery from this disorder. Each case appears to be unique. That is why I have chosen to include, not just a record of my partial recovery, but also the recovery record of two additional people, each different from one another's and each certainly different from mine (Author's Preface)". "We eventually identified a boatonly three feet short of what we had wanted that was within our budget. At this point Heather's brother, who lived nearby, said he would like a share in the boat, to which we agreed. During this discussion in his house I had to ask him to refrain from smoking, as my throat was quite sore. I was feeling rather run down and often felt cold. About the same time on a Saturday, I felt a tingling in the finger tips of my left hand and found they were a bit swollen. I mentioned it to Heather, but it did not seem serious. It was, however, the first sign that I had contracted GBS. If only I had known, the treatment might have been started earlier! (Patrick Hill)" "Probably the worst face of Guillain-Barr Syndrome is the effect it has on loved ones. Severe, or not, chronic or not, it matters little to the supporting family at the bedside of a patient. Fear, puzzlement, and apprehension are all experienced by the loved ones. Reading the case histories of Sarah and Patrick, one learns how their spouses also suffered many frightening experiences, but in spite of all that, they remained obviously without second thought, hesitation or doubt. True to their marriage vows, they provided so much love, care and support. That was the shared experience among the three of us (Author: Epilogue)."

The Guillain-Barre syndrome (GBS) or Landry-Guillain-Barre-Strohl syndrome, also known as post-infectious polyneuropathy or acute idiopathic polyneuritis, is an acute acquired, frequently severe, monophasic autoimmune illness of the peripheral nervous system (PNS). GBS manifests itself with the clinical picture characterised by gait disturbance, pain, weakness, rapidly ascending symmetric flaccid muscle paralysis, areflexia with distal predominance (involving lower motor neuron), sensory disturbance, variable autonomic involvement, and increased cerebrospinal fluid protein without pleocytosis . Although GBS had previously been viewed as a unitary disorder with variations, it is today considered as a group of syndromes with several distinctive variants or subtypes. The aim of this book is to describe and discuss this disease that is not exactly rare but is almost the only inflammatory polyneuropathy and the most frequent cause of acute flaccid paralysis in general medical practice.

Companion to: Neurologic complications of critical illness / Eelco F.M. Wijdicks. 3rd ed. 2009.

Guillain-Barre Syndrome (GBS) is a disorder in which the body's immune system attacks part of the peripheral nervous system. Feelings of tingling and weakness increase in intensity until the muscles cannot be used at all and the patient is almost totally paralyzed. No one knows why Guillain-Barre strikes some people and not others, or what sets the disease in motion. What we do know is that GBS is now the most common cause of acute paralysis in Western countries since the virtual elimination of poliomyelitis with vaccination programs. Guillain-Barre Syndrome, co-authored by a survivor of this illness, addresses all aspects of this condition, including initial symptoms, diagnostic evaluation and criteria, general and illness specific treatments, and typical outcomes. Fortunately, most GBS patients have a good recovery, but the pathway to this goal can be slow and scary. This book covers a wide range of issues including: Features unique to GBS such as pain without injury and other abnormal sensations. Workplace adjustment with incomplete recovery Intensive care unit management Practical caregivers guidelines The rehabilitation process Sexual dysfunction, and much more Guillain-Barre Syndrome is a comprehensive book, written in lay terms, covering everything from diagnosis to emotional issues. It is a book that stands alone. This latest volume in the American Academy of Neurology Press Quality of Life Guide series is an essential tool for all individuals, families, and caregivers coping with Guillain-Barre Syndrome.

Guillain-Barre Syndrome (GBS) is a disorder in which the body's immune system attacks part of the peripheral nervous system. Feelings of tingling and weakness increase in intensity until the muscles cannot be used at all and the patient is almost totally paralyzed. No one knows why Guillain-Barre strikes some people and not others, or what sets the disease in motion. What we do know is that GBS is now the most common cause of acute paralysis in Western countries since the virtual elimination of poliomyelitis with vaccination programs. Guillain-Barre Syndrome, co-authored by a survivor of this illness, addresses all aspects of this condition, including initial symptoms, diagnostic evaluation and criteria, general and illness specific treatments, and typical outcomes. Fortunately, most GBS patients have a good recovery, but the pathway to this goal can be slow and scary. This book covers a wide range of issues including: Features unique to GBS such as pain without injury and other abnormal sensations Workplace adjustment with incomplete recovery Intensive care unit management Practical caregivers guidelines The rehabilitation process Sexual dysfunction, and much more Guillain-Barre Syndrome is a comprehensive book, written in lay terms, covering everything from diagnosis to emotional issues. It is a book that stands alone. This latest volume in the American Academy of Neurology Press Quality of Life Guide series is an essential tool for all individuals, families, and caregivers coping with Guillain-Barre Syndrome.

After I had published my first book, A First Step - Understanding Guillain-Barr Syndrome, it occurred to me that the dream sequences described in that book would make for an interesting read on their own, as a collection of short - but impossible - stories. Thus were sewn the seeds for this publication. The 'postscripts' that have been added are included to assist readers who have not read the earlier book, and who therefore may not have a full understanding of the circumstances I found myself in. During my seven-month confinement in Intensive Care, on a ventilator for breathing assistance, diagnosed with severe acute chronic Guillain-Barr Syndrome - sometimes referred to in its abbreviated form as GBS, I experienced many dreams and hullucinations, some of which are described in the book. The medications I was taking, the inability to distinguish between night and day, being thrust into an unfamiliar environment, or something inherent in the disease itself may have been the cause. Although these dreams are not necessarily in the sequence in which I dreamed them, it is possible to connect them to certain events or phases of my illness. Initially, I was paralysed from my toes up to my eyebrows. This did not appear to inhibit my mobilty in some of the dreams though. One moment I was in a wheelchair, the next flying an F16 fighter jet, even though I had never flown before, other then as a fare paying passenger. I found these episodes much more intense than the garden-variety dream. In fact, most seemed so real that sometimes it was difficult, if not impossible, to separate them from reality. Every effort has been made to keep the original story lines. It must, of course be understood there were a few - although very few - grey areas, and only in those situations have I linked different parts of the story by the logical threads suggested by circumstances. For the most part, my recall of these dreams was total. Except for my relatives, the names used to identify characters are fictitious and used to enable the reader to follow the thread of the story. In these sequences, any similarity to any person, living or deceased, other than in the case of the exception noted, is entirely coincidental and unintended. I hope you enjoy your read. The Author.

The nervous system is a complex, sophisticated system that regulates and coordinates body activities. It is made up of two major divisions: the central nervous system consisting of the brain and spinal cord and the peripheral nervous system. This consists of all other neural elements, including the peripheral nerves and the autonomic nerves. Peripheral nerves are the essential connections between the brain and spinal cord and the body. Without nerves there is no movement or sensation. Our Wired Nerves: The Human Nerve Connectome, reviews the essential anatomy and physiology of the peripheral nerve. It introduces the reader to what neuropathies are, how pain arises from damaged nerves and how nerves might be regenerated, including new and exciting ideas over how to coax their regrowth. Written by Dr. Douglas Zochodne leading expert in the field, and first book to focus on the Peripheral nerves it will surely be an essential reference for researchers and clinicians alike. Discusses the barriers to nerve regrowth and new strategies to reverse them Reviews of disorders of the peripheral nerves Exams reasons for nerve injuries Reviews recent discoveries in nerve research