Caring For The Dying At Home

"This will be the third edition of this title, heavily updated from the 1999 second edition"--

When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

Caring for the Dying describes a whole new way to approach death and dying. It explores how the dying and their families can bring deep meaning and great comfort to the care given at the end of a life. Created by Henry Fersko-Weiss, the end-of-life doula model is adapted from the work of birth doulas and helps the dying to find meaning in their life, express that meaning in powerful and beautiful legacies, and plan for the final days. The approach calls for around-the-clock vigil care, so the dying person and their family have the emotional and spiritual support they need along with guidance on signs and symptoms of dying. It also covers the work of reprocessing a death with the family afterward and the early work of grieving. Emphasis is placed on the space around the dying person and encourages the use of touch, guided imagery, and ritual during the dying process. Throughout the book Fersko-Weiss tells amazing and encouraging stories of the people he has cared for, as well as stories that come from doulas he has trained and worked with over the years. What is unique about this book is the well-conceived and thorough approach it describes to working skillfully with the dying. The guidance provided can help a dying person, their family, and caregivers to transform the dying experience from one of fear and despair into one that is uplifting and even life affirming. You will see death in a new light and gain a different perspective on how to help the dying. It may even change the way you live your life right now.

Although the need for improved care for dying patients is widely recognized and frequently discussed, few books address the needs of the physicians, nurses, social workers, therapists, hospice team members, and pastoral counselors involved in care. Care of the Dying Patient contains material not found in other sources, offering advice and solutions to anyone—professional caregiver or family member—confronted with incurable illness and death. Its authors have lectured and published extensively on care of the dying patient and here review a wide range of topics to show that relief of physical suffering is not the only concern in providing care. This collection encompasses diverse aspects of end-of-life care across multiple disciplines, offering a broad perspective on such central issues as control of pain and other symptoms, spirituality, the needs of caregivers, and special concerns regarding the elderly. In its pages, readers will find out how to: effectively utilize palliative-care services and activate timely referral to hospice, arrange for care that takes into account patients’ cultural beliefs, and respond to spiritual and psychological distress, including the loss of hope that often overshadows physical suffering. The authors especially emphasize palliative care and hospice, since some physicians fear that such referrals may be viewed by patients and families as abandonment. They also address ethical and legal risks in pain management and warn that fear of overprescribing pain medication may inadvertently lead to ineffective pain relief and even place the treating team at risk of liability for undertreatment of pain. While physicians have the ability to treat disease, they also help to determine the time and place of death, and they must recognize that end-of-life choices are made more complex than ever before by advances in medicine and at the same time increasingly important. Care of the Dying Patient addresses some of the challenges frequently confronted in terminal care and points the way toward a more compassionate way of death.

Most people would rather die at home, surrounded by familiar sights and cared for by our loved ones, than in a hospital. But most of us, too, would be overwhelmed, even frightened, at the prospect of having to provide such caregiving. Of the many books available about death and dying, this is the first to explain in detail how caring for a dying loved one can be a life-expanding experience when done mindfully and from the heart. "At Home with Dying" is a practical guide the physical, emotional, and spiritual skills needed to care for someone who is terminally ill, based on the principles that guide the Zen Hospice Project of the San Francisco Zen Center. Merrill Collett explains step-by-step how to feed, clean, and take care of a dying person--in a way that benefits both patient and caregiver. The instructions, which include ancient wisdom teachings as well as modern practical nursing methods, include: Mindfulness skills Effective pain treatments Appropriate cooking and feeding techniques Household organization and visitor management Preparation for the moment of death Working with grief

This comprehensive resource book, the key text for the Gold Standards Framework (GSF) Programme, supports and enables all primary health professionals, and all those involved in palliative care, to make improvements in care provided for their patients, as recommended in the NICE guidance on Supportive and Palliative Care. It aims to strengthen the role, confidence, systems and skills of primary healthcare teams for the delivery of palliative care and patient support. The GSF, recommended and promoted by the NHS End of Life Initiative, Modernisation Agency and Macmillan, is already used by over 1000 teams in the UK, and is now being offered to every primary care team to improve end-of-life care for all.

This book explains how to care for someone at home throughout a terminal illness. It explores the practical issues arising from the shock of the initial diagnosis, through to the day to day caring and management of the last days and hours. The author discusses how to balance the advantages of accepting help from external professional agencies - making the most of what is available - while maintaining the most important individual options. It is not a rule book, but instead tries to offer practical suggestions and alternatives to help families make their own decisions confidently. The emphasis of the book is upon open communication within the family, and the understanding that there is no right or wrong way of managing the situation. The author's intention is that the book will be useful to everyone, including the terminally ill family member, who will want to be a contributing member of the family for as long as possible. Common reactions by children as well as friends and neighbors are explored and discussed and practical advice of how best to manage them is described sensitively. The writer believes that the experience can end with everyone looking ahead without overwhelming feelings of guilt and regret.