Chronic Childhood Illness

This book addresses the unique healthcare needs of adults with chronic childhood illnesses. It presents a model of primary and secondary prevention for emerging adulthood—primary prevention in which all young adults are screened for high-risk behaviors and health needs and secondary prevention in which young adults with chronic childhood conditions are optimized through coordinated care, connections to community resources and social/family support. This book is organized in five parts. Part I provides a detailed overview of the health care transition from pediatrics to adult medicine from both a policy and practice perspective. In Part II, the concept of emerging adulthood as a developmental period is explored and strategies for providing improved comprehensive care for this age group are discussed. Part III reviews specific chronic childhood conditions, such as attention-deficit/hyperactivity disorder, autism, cystic fibrosis, and diabetes mellitus, and offers clinical cases and summary reports that can be used as a quick guides to each condition. In Part IV, additional clinical considerations that are not necessarily condition-specific but are highly relevant to the care of young adults with chronic childhood conditions are examined. Part V describes the socio-legal issues involved in caring for this population. Care of Adults with Chronic Childhood Conditions provides primary care providers with a new framework for the care of young adults and identifies opportunities to influence patient health outcomes over a life trajectory.

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

The author draws extensively on the published research findings in child health psychology, and also on her own experience of working with pediatric medical and nursing staff. The emphasis throughout her book is on coping, and helping families to cope, with the stresses imposed by chronic childhood illness. Frequent hospital admissions, pain and its evaluation and control, adjustment and sources of support, communication, education and programs for intervention, all of these topics are discussed sensitively and with authority.

The pattern of childhood illness has changed significantly during this century. Many frightening conditions such as polio and tuberculosis have essentially been eradicated. Other conditions that were once fatal have now achieved the status of chronic disorders, for example, leukemia, cancer, and cystic fibrosis. Technological advances which have resulted in the medical treatment of these conditions have, however, created a gamut of psychological problems for the children and their families. Recognition of these problems has lagged behind other advances in pediatric medicine. The emergence of a specialist area of pediatric psychology (Wright, 1975) has largely been responsible for the mushrooming of research in the area. In much early work, the emphasis was on the impact of chronic illness on children and their families. Reactions at times of greatest trauma, especially diagnosis or death, were particularly well documented. Issues relating to day-to-day aspects of child care, involving questions of discipline or protectiveness, have received much less attention. As far as the sick child is concerned, there has been much investigation of academic and intellectual development, as well as of personality changes that might accompany illness.

Contains the proceedings of three separate conferences held in 1973 and 1974.

Management of chronic illness in children and adolescents often is a multifaceted challenge that requires the attention and expertise of individuals from a variety of disciplines that include psychology, psychiatry, social work, and medicine. The aim of this book is to provide readers with a practical overview of the definitions, characteristics, theories and models, diagnostic and treatment indications, and relevant aspects and methods of evidence-based psychosocial treatments for chronic illness in children and adolescents. Although treatments and research for chronic conditions are reviewed in general, particular attention is directed at asthma, cancer, cystic fibrosis, diabetes mellitus, and sickle cell disease due to the high incidence of these chronic diseases among children and adolescents. Case vignettes and suggestions for further reading are provided for the interested reader.

This book provides a research-based discussion of common childhood chronic illnesses and their etiology, diagnosis, treatment, and management. Along with information on specific diseases and conditions, such as asthma, diabetes, and arthritis, the book includes chapters on psychosocial management, focusing on family coping, stress on the child, and adherence. This is a rich resource for nurses and other health practitioners looking for an overview of children's chronic illness in an evidence-based context.

In the United States, the lives of more than 10 million children are affected by chronic illnesses. In this book, the authors introduce a multidimensional framework for examining the development and adaptation of children with chronic illness. This framework encompasses biomedical, psychological and socio- ecological factors to be considered in developing intervention efforts to enhance adaptation in this population. Specific chronic illnesses discusses are asthma, cancer, cystic fibrosis, diabetes, sickle-cell disease and spina bifida. It is divided into four sections that cover the impact of chronic childhood illness, developmental changes, enhancement of adaptation and goals for public policy and research. This book is intended as more than a reference tool for those studying the process of adaptation; it can serve to influence the formulation of research questions, intervention programmes and public policy.