Disability In The Time Of Pandemic

Disability in the Time of Pandemic is a timely exploration of emerging research into the implications of the COVID-19 pandemic for people with disabilities in their varied communities and across their complex identities.

The era of digital communication provides endless opportunities for the collection and analysis of social data in novel ways. It also presents new and unanticipated challenges, as researchers are often inventing elements of their methodologies on the fly or studying a phenomenon or media platform for the first time. Research Exposed offers in-depth, behind-the-scenes accounts of doing empirical social science in this new paradigm. Through firsthand descriptions of innovative research projects, it shares lessons learned from over a dozen scholars’ cutting-edge work. These candid accounts describe what can go wrong when pioneering new genres of research and how such difficulties can be overcome, giving both big-picture reflection and actionable advice. The chapters discuss a variety of methods, ranging from the completely novel to the use of more traditional approaches in the digital context, and cover research questions relevant to a range of disciplines, including sociology, political science, communication, information studies, and anthropology. By focusing attention on the concrete details seldom discussed in final project write-ups or traditional research guides, Research Exposed helps equip junior and senior scholars alike with essential information that is all too often left with no outlet for sharing. It offers important insights into how empirical social science research can be both innovative and rigorous when dealing with the opportunities and challenges presented by digital media.

Social media is popularly seen as an important media for people with disability in terms of communication, exchange and activism. These sites potentially increase both employment and leisure opportunities for one of the most traditionally isolated groups in society. However, the offline inaccessible environment has, to a certain degree, been replicated online and particularly in social networking sites. Social media is becoming an increasingly important part of our lives yet the impact on people with disabilities has gone largely unscrutinised. Similarly, while social media and disability are often both observed through a focus on the Western, developed and English-speaking world, different global perspectives are often overlooked. This collection explores the opportunities and challenges social media represents for the social inclusion of people with disabilities from a variety of different global perspectives that include Africa, Arabia and Asia along with European, American and Australasian perspectives and experiences.

“Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

“This book reminds us of what we have in common: the power to create a good life for ourselves and for others, no matter what the world has in store for us.” —Michael J. Fox This book reveals that people with disabilities are the invisible force that has shaped history. They have been instrumental in the growth of freedom and birth of democracy. They have produced heavenly music and exquisite works of art. They have unveiled the scientific secrets of the universe. They are among our most popular comedians, poets, and storytellers. And at 1.2 billion, they are also the largest minority group in the world. Al Etmanski offers ten lessons we can all learn from people with disabilities, illustrated with short, funny, inspiring, and thought-provoking stories of one hundred individuals from twenty countries. Some are familiar, like Michael J. Fox, Greta Thunberg, Stephen Hawking, Helen Keller, Stevie Wonder, and Temple Grandin. Others deserve to be, like Evelyn Glennie, a virtuoso percussionist who is deaf—her mission is to teach the world to listen to improve communication and social cohesion. Or Aaron Philip, who has revolutionized the runway as the first disabled, trans woman of color to become a professional model. The time has come to recognize people with disabilities for who they really are: authoritative sources on creativity, love, sexuality, resistance, dealing with adversity, and living a good life.

Based on the pioneering New York Times series, About Us collects the personal essays and reflections that have transformed the national conversation around disability. Boldly claiming a space in which people with disabilities can be seen and heard as they are—not as others perceive them—About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them. Since its 2016 debut, the popular New York Times’ “Disability” column has transformed the national dialogue around disability. Now, echoing the refrain of the disability rights movement, “Nothing about us without us,” this landmark collection gathers the most powerful essays from the series that speak to the fullness of human experience—stories about first romance, childhood shame and isolation, segregation, professional ambition, child-bearing and parenting, aging and beyond. Reflecting on the fraught conversations around disability—from the friend who says “I don’t think of you as disabled,” to the father who scolds his child with attention differences, “Stop it stop it stop it what is wrong with you?”—the stories here reveal the range of responses, and the variety of consequences, to being labeled as “disabled” by the broader public. Here, a writer recounts her path through medical school as a wheelchair user—forging a unique bridge between patients with disabilities and their physicians. An acclaimed artist with spina bifida discusses her art practice as one that invites us to “stretch ourselves toward a world where all bodies are exquisite.” With these notes of triumph, these stories also offer honest portrayals of frustration over access to medical care, the burden of social stigma and the nearly constant need to self-advocate in the public realm. In its final sections, About Us turns to the questions of love, family and joy to show how it is possible to revel in life as a person with disabilities. Subverting the pervasive belief that disability results in relentless suffering and isolation, a quadriplegic writer reveals how she rediscovered intimacy without touch, and a mother with a chronic illness shares what her condition has taught her young children. With a foreword by Andrew Solomon and introductory comments by co-editors Peter Catapano and Rosemarie Garland-Thomson, About Us is a landmark publication of the disability movement for readers of all backgrounds, forms and abilities. Topics Include: Becoming Disabled • Mental Illness is not a Horror Show • Disability and the Right to Choose • Brain Injury and the Civil Right We Don’t Think • The Deaf Body in Public Space • The Everyday Anxiety of the Stutterer • I Use a Wheelchair. And Yes, I’m Your Doctor • A Symbol for “Nobody” That’s Really for Everybody • Flying While Blind • My $1,000 Anxiety Attack • A Girlfriend of My Own • The Three-Legged Dog Who Carried Me • Passing My Disability On to My Children • I Have Diabetes. Am I to Blame? • Learning to Sing Again • A Disabled Life is a Life Worth Living

Disability Welfare Policy in Europe:Cognitive Disability and the Impact of the Covid-19 Pandemic analyses the impact of the Covid-19 pandemic on persons with cognitive disabilities and their families, including its effects on education, employment, social and health care services.

Drawing upon the empirical scholarship and research expertise of contributors from all settled continents and from diverse life settings and economies, Viral Loads illustrates how the COVID-19 pandemic, and responses to it, lay bare and load onto people’s lived realities in countries around the world. A crosscutting theme pertains to how social unevenness and gross economic disparities are shaping global and local responses to the pandemic, and illustrate the effects of both the virus and efforts to contain it in ways that amplify these inequalities. At the same time, the contributions highlight the nature of contemporary social life, including virtual communication, the nature of communities, neoliberalism and contemporary political economies, and the shifting nature of nation states and the role of government. Over half of the world’s population has been affected by restrictions of movement, with physical distancing requirements and self-isolation recommendations impacting profoundly on everyday life but also on the economy, resulting also, in turn, with dramatic shifts in the economy and in mass unemployment. By reflecting on how the pandemic has interrupted daily lives, state infrastructures and healthcare systems, the contributing authors in this volume mobilise anthropological theories and concepts to locate the pandemic in a highly connected and exceedingly unequal world. The book is ambitious in its scope – spanning the entire globe – and daring in its insistence that medical anthropology must be a part of the growing calls to build a new world.