Elder Care Journey

Combining expert knowledge and first-hand experience, a noted elder care researcher confronts the long-distance care of her own mother. For millions of Americans caregiving is the “new normal.” For Laura Katz Olson, a respected researcher of long-term care for the aging, Elder Care Journey chronicles the disruption of her world and how it is upended by the ever-increasing long-distance needs of her own mother. A healthy, Senior Olympics medal winner, Olson’s mother is slowly and steadily incapacitated by Parkinson’s disease and a gradual loss of vision. Thrust into a long-distance caregiving role, Olson finds her previous academic notions about assisting a frail parent increasingly at odds with the reality of the lived experience. In a narrative full of “ah-ha!” moments, tears, sighs, and outrage that will be familiar to many, Olson opens a window into the nursing home and home care industries that consume much in the way of taxpayer dollars, but often fail to deliver quality care. Olson’s personal story vividly demonstrates not only the overwhelming bureaucratic barriers faced by care-dependent seniors but also their beleaguered adult children’s attempts to ensure their parents’ health, safety, and well-being. “After losing two siblings, Laura Katz Olson is left singularly responsible for her physically active and lively mother, Dorothy, a thousand miles away, both young at heart and eagerly bicycling everywhere, but increasingly limited by the normal process of aging. Being an expert on aging and health care, Olson is at first confident as she tries to let her mother ‘age in place.’ More than anyone, she believes, she should know what to do. Shuttling between Florida and Pennsylvania, Olson settles into a crushing routine, and with each visit she finds incremental downward change in her mother’s health. Pulled by daughterly guilt at times, but also a wellspring of love, Olson is frank about the resentment she sometimes experiences. “With a unique perspective that links the systemic flaws in our policy approach to elder care to real-world experience, Olson exposes the challenges we all face or are likely to face. More than a personal story, but nevertheless an extremely compelling one, the book should be read by those confounded and frustrated, and by those without direct knowledge of what quietly repeats itself millions of times a day.” — Miriam Laugesen, Department of Health Policy and Management, Columbia University “In Elder Care Journey, Laura Olson tells the riveting story of helping her aging, disabled mother navigate the system of long-term services and supports. A renowned scholar of aging and long-term care policy, Dr. Olson was nevertheless unprepared for the daily frustrations involved in confronting a bewildering array of obstacles, deceptions, burdensome and repetitive procedures and paperwork, and catch-22s, ranging from the annoying to the downright dangerous. She shows how well-intentioned policies can fall far short of meeting people’s needs, especially for those in greatest need, in a system based on fragmented interests and private-sector profit maximization. Combining scholarly expertise with personal experience, she ends the book with a detailed but highly accessible analysis of the long-term care system and how it could be improved to the benefit of both taxpayers and beneficiaries. This book is a compelling read for policymakers and for students and scholars of health care and social welfare policy, highly recommended for undergraduate and graduate courses. The author’s experiences also provide helpful advice to caregivers on what to expect and how to deal with it, as well as reassurance that they are not alone.” — Christine L. Day, University of New Orleans “If a society is judged by how well it treats its most vulnerable members, Laura Katz Olson, a prominent health policy scholar, demonstrates that we have a long way to go in how we serve frail and disabled elders in need of long-term services and supports at the end of their lives. Olson develops a compelling narrative that describes the subtle and not-so-subtle indignities imposed on elders and their caregivers navigating the complex maze of health and social service systems at their hour of greatest need. Even an expert such as Olson struggled in light of the challenges posed by these impediments. “By connecting her own personal journey to the larger societal challenges within which her struggles are embedded, Olson makes a significant contribution to the literature that should be required reading for scholars, practitioners, and policymakers looking to advance the welfare of the nation’s most vulnerable citizens.” — Edward Alan Miller, author of Block Granting Medicaid: A Model for 21st Century Medicaid Reform? “This page-turner is at once a tender tale of a daughter’s devotion and a stinging indictment of the hugely complex and wholly inadequate American long-term care system. That an elder-care expert can barely navigate the Byzantine web of public and private insurance and services for her disabled mother is alarming enough. Truly horrific are the system’s shortcomings and the increasing role that for-profit providers play, fleecing and even abusing their customers. A startling wake-up call.” — Andrea Louise Campbell, author of Trapped in America’s Safety Net: One Family’s Struggle

After a forty-year career in eldercare, Grace Sweatman has stories to tell! From receptionist to CEO and nearly every role in between, Grace has a truly rare perspective on this growing service industry. In this book, Grace shares some of those stories from her "Joyful Journey" and the lessons learned along the way. In the closing chapters, she draws a roadmap to achieving a much-needed culture change in long-term care. From the beginning of her career, Grace recognized deep flaws in the services extended to our elders at their time of greatest need, and this heartfelt concern drove her to seek meaningful solutions. With great passion, she has been unrelenting in her efforts to see them implemented. Grace believes there is indeed a better way. She is trusting that this collection of memories will encourage others in their personal journey, whatever its destination.

Eldercare tends to sneak up on everybody involved. Adult children allow themselves to believe that their parents will never get sick or old. Parents fail to acknowledge that they will one day become dependent upon others. And ignoring the inevitable only makes it more difficult to cope when a crisis finally occurs. Fortunately, you can make your caregiving journey far easier by facing it head-on. The ElderCare Ready Book tells you what to expect and how to prepare for the challenges you'll encounter. You'll learn: · How to be prepared for your eldercare journey · How to implement the necessary steps to manage and control your loved one's care: o How to identify what information and documentation you will need o How to access certain necessary information o How to organize and keep this data at hand for use when needed · Common misconceptions about eldercare and legal documentation · How to keep your loved ones safe · What to expect from care providers · And much more . . .

Navigating the Journey of Aging Parents proposes an entirely unique approach to the field of gerontology, giving dependent care receivers a voice. Caregivers will be made aware of what care receivers truly want during life's final chapters. Exploring issues of housing, spirituality, personal care and death, Cheryl Kuba has created a testament to the dependent elderly. This book draws on numerous interviews with aging people and discusses common caregiver mistakes and interpretations, what a caregiver should expect when an aging parent moves in, and how to care for an aging parent from afar. Kuba also delves into such phenomena as guilt, role reversal, changing family dynamics, financial stress, and caring for oneself while caring for another. The 22.4 million elderly people being cared for in the United States comprises the fastest growing segment of the population, making this reference on the opinions and concerns of care receivers invaluable.

A NATIONAL BESTSELLER SHORTLISTED FOR THE BALSILLIE PRIZE FOR PUBLIC POLICY It took the coronavirus pandemic to open our eyes to the deplorable state of so many of the nation's long-term care homes: the inhumane conditions, overworked and underpaid staff, and lack of oversight. In this timely new book, esteemed health reporter André Picard reveals the full extent of the crisis in eldercare, and offers an urgently needed prescription to fix a broken system. When COVID-19 spread through seniors' residences across Canada, the impact was horrific. Along with widespread illness and a devastating death toll, the situation exposed a decades-old crisis: the shocking systemic neglect towards our elders. Called in to provide emergency care in some of the hardest-hit facilities in Ontario and Quebec, the military issued damning reports of what they encountered. And yet, the failings that were exposed--unappetizing meals, infrequent baths, overmedication, physical abuse and inadequate personal care--have persisted for years in these institutions. In Neglected No More, André Picard takes a hard look at how we came to embrace mass institutionalization, and lays out what can and must be done to improve the state of care for our elders, a highly vulnerable population with complex needs and little ability to advocate for themselves. Picard shows that the entire eldercare system--fragmented, underfunded and unsupported--is long overdue for a fundamental rethink. We need to find ways to ensure seniors can age gracefully in the community for longer, with supportive home care and respite for family caregivers, and ensure that long-term care homes are not warehouses of isolation and neglect. Our elders deserve nothing less.

Combining expert knowledge and first-hand experience, a noted elder care researcher confronts the long-distance care of her own mother. Winner of a Gold Medal, 2017 Living Now Book Award in the Caregiving category Shortlisted for the 2016 Sarton Women’s Book Awards in the Memoir category presented by the Story Circle Network For millions of Americans caregiving is the “new normal.” For Laura Katz Olson, a respected researcher of long-term care for the aging, Elder Care Journey chronicles the disruption of her world and how it is upended by the ever-increasing long-distance needs of her own mother. A healthy, Senior Olympics medal winner, Olson’s mother is slowly and steadily incapacitated by Parkinson’s disease and a gradual loss of vision. Thrust into a long-distance caregiving role, Olson finds her previous academic notions about assisting a frail parent increasingly at odds with the reality of the lived experience. In a narrative full of “ah-ha!” moments, tears, sighs, and outrage that will be familiar to many, Olson opens a window into the nursing home and home care industries that consume much in the way of taxpayer dollars, but often fail to deliver quality care. Olson’s personal story vividly demonstrates not only the overwhelming bureaucratic barriers faced by care-dependent seniors but also their beleaguered adult children’s attempts to ensure their parents’ health, safety, and well-being. Laura Katz Olson is Professor of Political Science at Lehigh University and the author and editor of many books, including The Politics of Medicaid and The Not-So-Golden Years: Caregiving, the Frail Elderly, and the Long-Term Care Establishment. She lives in Wind Gap, Pennsylvania.

Culled from the author's real-world experiences, this guide to the tasks of being an elder caregiver contains heartfelt stories as well as a framework that allows readers to face their challenges in an organized manner. By simply implementing a couple of Dr. Marion's 10 steps, caregivers can quickly ease caregiving panic by equipping themselves with the knowledge necessary to make informed decisions about everything from adapted equipment for the elderly and housing to financial and legal issues.--From publisher description.

The challenges of life for elders can be daunting. Whether you are an elder or a caregiver, you don't have to do this alone. I know the journey isn't easy, and through my experience as an elder care nurse, and your effort and greater understanding, we can help develop a life that elders want and deserve, even when they need assistance. In this book, I will help you understand the impacts of aging, challenges of daily life, assisted living, memory care, skilled nursing, home health and hospice. In addition, I will guide you on how to help your senior loved ones and determine how to integrate family and friends to assist with elder care. Navigating Elder Care provides you with concrete tools to manage the challenges and embrace multiple possibilities for supporting elders. The insights and guidance provided here are based on over a decade of experience, leadership, and education as a certified gerontology nurse working in senior living, elder care, and dementia support.