Life As Jamie Knows It

The story of Jamie Bérubé’s journey to adulthood and a meditation on disability in American life Published in 1996, Life as We Know It introduced Jamie Bérubé to the world as a sweet, bright, gregarious little boy who loves the Beatles, pizza, and making lists. When he is asked in his preschool class what he would like to be when he grows up, he responds with one word: big. At four, he is like many kids his age, but his Down syndrome prevents most people from seeing him as anything but disabled. Twenty years later, Jamie is no longer little, though he still jams to the Beatles, eats pizza, and makes endless lists of everything—from the sixty-seven counties of Pennsylvania (in alphabetical order, from memory) to the various opponents of the wrestler known as the Undertaker. In Life as Jamie Knows It, Michael Bérubé chronicles his son’s journey to adulthood and his growing curiosity and engagement with the world. Writing as both a disability studies scholar and a father, he follows Jamie through his social and academic experiences in school, his evolving relationships with his parents and brother, Nick, his encounters with illness, and the complexities of entering the workforce with a disability. As Jamie matures, his parents acknowledge his entitlement to a personal sense of independence, whether that means riding the bus home from work on his own, taking himself to a Yankees game, or deciding which parts of his story are solely his to share. With a combination of stirring memoir and sharp intellectual inquiry, Bérubé tangles with bioethicists, politicians, philosophers, and anyone else who sees disability as an impediment to a life worth living. Far more than the story of an exceptional child growing up to be “big,” Life as Jamie Knows It challenges us to rethink how we approach disability and is a passionate call for moving toward a more just, more inclusive society.

When Jamie Bérubé was born with Down syndrome in 1991, he was immediately subject to the medical procedures, insurance guidelines, policies, and representations that surround every child our society designates as disabled. In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar Michael Bérubé, describes not only the challenges of raising his son but the challenge of seeing him as a person rather than as a medical, genetic, or social problem.

What if you knew all the moments of my past that I am not proud of? What if you really knew me, the messy parts that I’ve hoped to forget and worked hard to conceal? For so long, my greatest fear was what you might think of me if you only knew the whole story. It’s exhausting, this guarding of our stories and struggles. Fear of being found out had caused me to hide—but I wasn’t just covering my flaws, I was unintentionally blocking the beauty of God’s grace. My journey to real freedom began when I quit running from my mess and started trusting Jesus to make something beautiful of it. This book is that story. It’s stepping out of shame and insecurity into gospel freedom. It’s letting God turn our failures and frailties into testimonies of His faithfulness. I’ve discovered that when we quit hiding, God gets the glory and we are able to fully embrace not only our relationship with Him, but also with one another. Transparency brings freedom, and in every moment, we'll find that God can absolutely be trusted.

The New York Times Bestseller In 2006 Jamie Tworkowski wrote a story called “To Write Love on Her Arms,” about helping a friend through her struggle with drug addiction, depression, and self-injury. The piece was so hauntingly beautiful that it quickly went viral, giving birth to a non-profit organization of the same name. Now, To Write Love on Her Arms (TWLOHA) is an internationally recognized leader in suicide prevention and a source of hope, encouragement, and support for people worldwide. If You Feel Too Much is a celebration of hope, wonder, and what it means to be human. From personal stories of struggling on days most people celebrate to words of strength and encouragement in moments of loss, the essays in this book invite readers to believe that it’s okay to admit to pain and okay to ask for help. If You Feel Too Much is an important book from one of this generation’s most important voices.

If he had been with me everything would have been different... I wasn't with Finn on that August night. But I should've been. It was raining, of course. And he and Sylvie were arguing as he drove down the slick road. No one ever says what they were arguing about. Other people think it's not important. They do not know there is another story. The story that lurks between the facts. What they do not know—the cause of the argument—is crucial. So let me tell you...

From the author of the acclaimed Roll with It comes a moving novel about a girl with a sensory processing disorder who has to find her own voice after her whole world turns upside down. Lou Montgomery has the voice of an angel, or so her mother tells her and anyone else who will listen. But Lou can only hear the fear in her own voice. She’s never liked crowds or loud noises or even high fives; in fact, she’s terrified of them, which makes her pretty sure there’s something wrong with her. When Lou crashes their pickup on a dark and snowy road, child services separate the mother-daughter duo. Now she has to start all over again at a fancy private school far away from anything she’s ever known. With help from an outgoing new friend, her aunt and uncle, and the school counselor, she begins to see things differently. A sensory processing disorder isn’t something to be ashamed of, and music might just be the thing that saves Lou—and maybe her mom, too.

A brilliantly original thriller and “a startling, smart, vivid book” (Tana French, New York Times bestselling author) from the acclaimed author of Three Graves Full—inspired by the real-life unsolved theft of a seventeenth-century painting. Twenty-eight seconds. In less than half a minute, a home-security camera captures the hidden resolve in fourteen-year-old Carly Liddell as she fends off a vicious attack just inside her own front door. The video of her heroic escape appears online and goes viral. As the view count climbs, the lives of four desperate people will be forever changed by what’s just barely visible in the corner of the shot. Carly’s stepfather is spurred to protect his darkest secret: how a stolen painting—four hundred years old, by a master of the Dutch Golden Age—has come to hang in his suburban foyer. The art dealer, left for dead when the painting vanished, sees a chance to buy back her life. And the double-crossed enforcer renews the hunt to deliver the treasure to his billionaire patrons—even if he has to kill to succeed. But it’s Carly herself, hailed as a social-media hero, whose new perspective gives her the courage to uncover the truth as the secrets and lies tear her family apart.

Young children live with awe and wonder as their daily companions. But as they grow, worries often crowd out wonder. Knowing this, how can parents strengthen their kids' love for the world so it sticks around for the long haul? Thankfully, parents have at their fingertips a miracle vaccine--one that can boost their kids' immunity to the world's distractions. Well-chosen stories connect us with others, even those on the other side of the globe. Build your kids' lives on a story-solid foundation and you'll give them armor to shield themselves from the world’s cynicism. You'll give them confidence to persevere in the face of life's conflicts. You'll give them a reservoir of compassion that spills over into a lifetime of love in action. Give Your Child the World features inspiring stories, practical suggestions, and carefully curated reading lists of the best children's literature for each area of the globe. Reading lists are organized by region, country, and age range (ages 4-12). Each listing includes a brief description of the book, its themes, and any content of which parents should be aware. Parents can introduce their children to the world from the comfort of home by simply opening a book together. Give Your Child the World is poised to become a bestselling family reading treasury that promotes literacy, develops a global perspective, and strengthens family bonds while increasing faith and compassion.