Living With Learning Disabilities Dying With Cancer

Cancer.

This book offers unique and flexible guidelines that can be used by practitioners to ease the process of breaking bad news to people with intellectual disabilities. The guidelines, which are adaptable to individual communication ability and level of understanding, address the many complex needs of people with intellectual disabilities who can find understanding and accepting news that has a negative impact on their life a very difficult task. In the book, Irene Tuffrey-Wijne covers a range of different types of bad news, from bereavement and illness to more minor issues such as a change of accommodation, and offers highly practical and effective tips that will help carers and practitioners ensure that bad news is relayed as sensitively and successfully as possible. An easy-to-use and comprehensive guide, this book will be an invaluable resource of information for carers, health professionals such as doctors and nurses as well as families of people with intellectual disabilities.

"The editors have brought together a range of eminent contributors who present a range of issues throughout the life cycle. The book asserts that it hopes to 'assist readers to anticipate change and discontinuity in people's lives and think about strategies to support them' through the many challenges that they may face in their lives. In my view this book certainly does that and the editors and contributors are to be congratulated on the production of a relevant and contemporary text that I have no hesitation in both endorsing and recommending to all involved in supporting and or caring for people with learning disabilities." Professor Bob Gates, Project Leader - Learning Disabilities Workforce Development, NHS Education South Central, UK "The editors have gathered an authoritative faculty to present and discuss a range of contemporary issues; both practical and ethical. The text is well grounded in the lived experience of people with disability and draws on the evidence-base of contemporary science. Each chapter includes thought provoking exercises. This is a seminal text for students and practitioners, researchers and policy makers." Associate Professor Keith R. McVilly, Deakin University, Australia "I currently own a copy of the first edition and it has proved an invaluable resource time and time again. There is not an essay I complete that does not make reference to the book and I can consistently use it to reflect back on my practice as a student nurse and social worker. Having read several extracts from the new edition it does appear to include very high quality content covering learning disabilities over the lifespan ... if I were to personally recommend any book for budding or current learning disability professionals then this would be it." James Grainger, Student Nurse/Social Worker, Sheffield Hallam University, UK "I like the way it has primary and secondary information from a range of sources. The exercises in the book also get you to think about the situation in question which helps us think about our values and anti-oppressive practice ... This book really does start with the basics and having a learning disability from birth and the effects, to in depth knowledge and literature ... This book would be very helpful to me as it brings in literature policies and models from both a health and social side, which is important for my course and collaborative working." Laura Jean Lowe, Student Nurse, Sheffield Hallam University, UK "It is written with a clearly conveyed in-depth knowledge and in a way that has professional lived experience within the context of the work. The authors have taken into account the emotional, client-centred approach to the modern practitioner's practice ... The book gives a true wealth of good practice scenarios that can only help practitioners be good at what they do and aspire to be." Lee Marshall, Student Nurse, Sheffield Hallam University, UK With its spread of chapters covering key issues across the life cycle this text has established itself as the foundational primer for those studying the lived experiences of people with learning disabilities and their families, and outcomes achieved through services and support systems. Recognising learning disability as a lifelong disability, this accessible book is structured around the life cycle. The second edition is refreshed and expanded to include seven new chapters, covering: Aetiology Breaking news (about disability) and early intervention Transition to adulthood The sexual lives of women Employment Personalisation People with hidden identities With contributions from respected figures from a range of disciplines, the book draws heavily upon multidisciplinary perspectives and is based on the latest research and evidence for practice. The text is informed by medical, social and legal models of learning disability, exploring how "learning disability" is produced, reproduced and understood. Extensive use is made of real-life case studies, designed to bring theory, values, policy and practice to life. Narrative chapters describe, in the words of people with learning disabilities themselves, their lives and aspirations. They helpfully show readers the kinds of roles played by families, advocates and services in supporting people with learning disabilities. New exercises and questions have been added to encourage discussion and reflection on practice. Learning Disability is core reading for students entering health and social care professions to work with people with learning disabilities. It is a compelling reference text for practitioners as it squarely addresses the challenges facing people with learning disability, their loved ones and the people supporting them. Contributors Dawn Adams, Kathryn Almack, Dorothy Atkinson, Nigel Beail, Christine Bigby, Alison Brammer, Jacqui Brewster, Hilary Brown, Jennifer Clegg, Lesley Cogher, Helen Combes, Clare Connors, Bronach Crawley, Eric Emerson, Margaret Flynn, Linda Gething, Dan Goodley, Peter Goward, Gordon Grant, Chris Hatton, Sheila Hollins, Jane Hubert, Kelley Johnson, Gwynnyth Llewellyn, Heather McAlister, Michelle McCarthy, Alex McClimens, Roy McConkey, David McConnell, Keith McKinstrie, Fiona Mackenzie, Ghazala Mir, Ada Montgomery, Lesley Montisci, Elizabeth Murphy, Chris Oliver, Richard Parrott, Paul Ramcharan, Malcolm Richardson, Bronwyn Roberts, Philippa Russell, Kirsten Stalker, Martin Stevens, John Taylor, Irene Tuffrey-Wijne, Sally Twist, Jan Walmsley, Kate Woodcock

This book examines access to specialist palliative care among different groups in society, and the ways of working with difference within such services.

As the emotional components of physical illnesses become more recognised, there is a renewed interest in the potential of art therapy to help patients come to terms with injury, pain and terminal and life-long conditions. A wide range of experienced art therapists describe their work and its benefits to a variety of groups including those with cancer, debilitating conditions such as myalgic encephalopathy (M.E.) and ulcerative colitis. Physical conditions in combination with other factors such as homelessness or learning disabilities, and children with life-long and chronic conditions are also covered. The book includes discussion of spiritual and philosophical issues when mortality is faced, life change and adjustment issues, practical considerations and which models of practice art therapists find most helpful with various groups. This will be essential reading for arts therapists and students, as well as for professionals with an interest in psychological issues and wellbeing for patients with physical illness or long term conditions, such as psychotherapists and counsellors, complementary therapists, doctors, nurses and other healthcare professionals.

This book offers unique and adaptable guidelines that can be used by practitioners to ease the process of breaking bad news to people with intellectual disabilities. It provides effective tips and support that will help social workers, counsellors and caring professionals relay all types of bad news as sensitively and successfully as possible.

Personalisation - the idea that public services should be tailored to the individual, with budgets devolved to the service user or frontline staff - is increasingly seen as the future of the welfare state. This book focuses on how personalisation evolved as a policy narrative and has mobilised such wide-ranging political support. It will be a valuable resource for undergraduate and postgraduate students in public policy and social policy and for researchers and practitioners working in related fields.

This book is designed to support people like Veronica, who become unwell and are diagnosed as having cancer. In this story, Veronica visits her GP, who refers her to a hospital consultant. She has a chest X-ray and then is admitted to hospital for an operation. After the operation, the consultant tells Veronica that she has cancer, but that "it's not all bad news", some cancers can be cured. She goes on to receive radiotherapy and then chemotherpay sessions. After the chemotherapy has finished, Veronica feels better. She is glad the treatment is finished. She hopes the cancer is cured. The story is divided into different sections highlighting the different experiences that cancer patients may have.