On Care

Beloved storyteller Ivan Coyote returns with their most intimate and moving book yet. Writer and performer Ivan Coyote has spent decades on the road, telling stories around the world. For years, Ivan has kept a file of the most special communications received from readers and audience members—letters, Facebook messages, emails, soggy handwritten notes tucked under the windshield wiper of their truck after a gig. Then came Spring, 2020, and, like artists everywhere, Coyote was grounded by the pandemic, all their planned events cancelled. The energy of a live audience, a performer’s lifeblood, was suddenly gone. But with this loss came an opportunity for a different kind of connection. Those letters that had long piled up could finally begin to be answered. Care Of combines the most powerful of these letters with Ivan’s responses, creating a body of correspondence of startling intimacy, breathtaking beauty, and heartbreaking honesty and openness. Taken together, they become an affirming and joyous reflection on many of the themes central to Coyote’s celebrated work—compassion and empathy, family fragility, non-binary and Trans identity, and the unending beauty of simply being alive, a giant love letter to the idea of human connection, and the power of truly listening to each other.

Witnesses: Donna Shalala (former Sec. of Health and Human Services), and Bob Dole (former U.S. Senator from Kansas), Co-Chairs, President¿s Commission on Care for America¿s Returning Wounded Warriors; and Joseph Violante, National Legislative Director, Disabled American Veterans. Statements by: Rep. Bob Filner of CA, Steve Buyer of IN, Harry Mitchell of AZ, Jerry Moran of KS, Ginny Brown-Waite of FL and Jeff Miller of FL. Material Submitted for the Record: (1) Post-Hearing Questions and Responses for the Record; (2) Reports (July 2007): ¿Serve, Support, Simplify: Report of the President¿s Commission on Care for America¿s Returning Wounded Warriors,¿; and Subcommittee Report and Survey Findings. Illustrations.

To care can feel good, or it can feel bad. It can do good, it can oppress. But what is care? A moral obligation? A burden? A joy? Is it only human? In Matters of Care, María Puig de la Bellacasa presents a powerful challenge to conventional notions of care, exploring its significance as an ethical and political obligation for thinking in the more than human worlds of technoscience and naturecultures. Matters of Care contests the view that care is something only humans do, and argues for extending to non-humans the consideration of agencies and communities that make the living web of care by considering how care circulates in the natural world. The first of the book’s two parts, “Knowledge Politics,” defines the motivations for expanding the ethico-political meanings of care, focusing on discussions in science and technology that engage with sociotechnical assemblages and objects as lively, politically charged “things.” The second part, “Speculative Ethics in Antiecological Times,” considers everyday ecologies of sustaining and perpetuating life for their potential to transform our entrenched relations to natural worlds as “resources.” From the ethics and politics of care to experiential research on care to feminist science and technology studies, Matters of Care is a singular contribution to an emerging interdisciplinary debate that expands agency beyond the human to ask how our understandings of care must shift if we broaden the world.

How can we plan, organize, distribute, and offer care in ways that treat both those who need it and those who provide it with dignity and respect? Using the example of residential services, Troubling Care: Critical Perspectives on Research and Practices investigates the fractures in our care systems and challenges how caring work is understood in social policy, in academic theory, and among health care providers. In this era defined by government cutbacks and a narrowing sense of collective responsibility, long-term residential care for the elderly and disabled is being undervalued and undermined. A result of a seven-year interdisciplinary research project-in-progress, this book draws together the work of fourteen leading health researchers, including sociologists, medical practitioners, social workers, policy researchers, cultural theorists, and historians. Using a feminist political economy lens, these scholars explore and challenge the theories, work organization, practices, and state-society relations that have come to shape long-term care. Troubling Care offers critical perspectives on the often disquieting arena of care provision and proposes alternatives for thinking about and meeting the needs of some of our most vulnerable citizens in ways that go beyond residential care. This book seeks to bridge not only the gaps between disciplines, but also those between theory and practice. Features: takes an interdisciplinary approach, making this work appropriate for courses in a variety of disciplines including sociology, medicine, social work, health policy, cultural studies, and political economy includes the work of fourteen leading health researchers, including sociologists, medical practitioners, social workers, policy researchers, cultural theorists, and historians bridges the gap between theory and practice by incorporating both theoretical research and specific case examples

This book is open access under a CC BY 4.0 license. This book examines the concept of care and care practices in healthcare from the interdisciplinary perspectives of continental philosophy, care ethics, the social sciences, and anthropology. Areas addressed include dementia care, midwifery, diabetes care, psychiatry, and reproductive medicine. Special attention is paid to ambivalences and tensions within both the concept of care and care practices. Contributions in the first section of the book explore phenomenological and hermeneutic approaches to care and reveal historical precursors to care ethics. Empirical case studies and reflections on care in institutionalised and standardised settings form the second section of the book. The concluding chapter, jointly written by many of the contributors, points at recurring challenges of understanding and practicing care that open up the field for further research and discussion. This collection will be of great value to scholars and practitioners of medicine, ethics, philosophy, social science and history.

In what way is »care« a matter of »tinkering«? Rather than presenting care as a (preferably »warm«) relation between human beings, the various contributions to the volume give the material world (usually cast as »cold«) a prominent place in their analysis. Thus, this book does not continue to oppose care and technology, but contributes to rethinking both in such a way that they can be analysed together. Technology is not cast as a functional tool, easy to control - it is shifting, changing, surprising and adaptable. In care practices all »things« are (and have to be) tinkered with persistently. Knowledge is fluid, too. Rather than a set of general rules, the knowledges (in the plural) relevant to care practices are as adaptable and in need of adaptation as the technologies, the bodies, the people, and the daily lives involved.

This book opens a global discussion of palliative care for children and young people. It invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics.