Palliative Care Perspectives Practices And Impact On Quality Of Life

This book provides a new outlook on the practice of palliative care worldwide. All five continents are represented in this book by global leaders in this relatively new subspecialty. The chapters in the book re-emphasize the fact that in the 21st century, most patients in the world still lack this elementary tool to alleviate suffering physical, and even more so, emotional and spiritual which are so critical to people, especially when patients conditions become fatal. An issue that comes up again and again from almost all parts of the world, regardless of religion and traditional backgrounds, ethnicities, beliefs or faith, refers to the critical lack of basic and advanced training for physicians, nurses, volunteers and the public at large. Healthcare professionals are currently not equipped with the principles of communication with both the patient and his/her relatives. These kinds of drawbacks have to be corrected immediately. Moreover, training courses, symposia and conferences do not require large amounts of funds and can be carried out in local countries and/or regions which share a common language, culture and faith. Each country needs to create a nucleus of local champions who would then take it upon themselves to educate as many people in their own countries with the support, guidance and encouragement of international organizations that are dedicated to this mission. Almost all of the larger international institutions, e.g., the UN and WHO, preach for improvement of the current situation. Unfortunately, responses are extremely slow and not efficient. This book calls for the global health community to urgently respond and bring about a rapid change in a totally unjustified situation that still prevails in over three-quarters of the world.

A clinical case-based handbook has a role in general clinicians’ practice of caring for patients with serious or life-limiting illness. The explosion of the field of Hospice and Palliative Medicine impacts all physicians and healthcare providers. Fellowship trained s- cialists graduate in greater numbers annually. These and more seasoned specialists are now certified by the American Board of Medical Specialties as subspecialists. Research in this field is expanding in scope and quantity, and peer reviewed journals devoted to this work are multiplying. Moreover, peer reviewed journals in primary care and other subspecialties of medicine regularly include papers that focus on end-of-life care, quality of life issues, and symptom management. Overall then, access to clinical information necessary to care for patients with life-limiting illness is not only essential, but also increasingly available. This case-based clinical book aims to help with the actual practice of caring for patients with life-limiting illness. Numerous texts and journals exist to provide the data to inform care, yet there remains a need to find practical points and information about the practical application of the principles of palliative care. Thus, we hope that the cases, key points, and practical tips will help health care providers who are not experts already in palliative care in the care of patients with serious illness and challenging problems. Some chapters follow one patient through the course of an illness to highlight the applicability of palliative care throughout the disease process.

Individuals and families face challenges at the end of life that can vary significantly depending on social and cultural contexts, yet more than ever is now known about the needs that cut across the great diversity of experiences in the face of dying and death. A number of behavioural interventions and clinical approaches to addressing these needs have been developed and are available to help providers care for clients and assist them in achieving their goals. Perspectives on Palliative and End-of-Life Care: Disease, Social and Cultural Contexts explores how these interventions can be used to address a range of issues across social and cultural contexts for those in need of end of life care. With perspectives from experienced clinicians, providers, and caregivers from around the world, the book offers a strong foundation in contemporary evidence-based practice alongside seasoned practice insights from the field and explores interventions for people as diverse as HIV caregivers in Africa and individuals dying with dementia. In addition, readers will learn about the process of caring for individuals with chronic illnesses including severe mental illness; weigh the impact of policy regulations on the availability of and access to palliative care and interventions; and be able to compare the different issues experienced by family caregivers and formal caregivers. As the companion volume to Perspectives on Behavioural Interventions in Palliative and End-of-Life Care, this book will be of interest to a wide variety of individuals, such as academics, researchers and postgraduates in the fields of mental health, medicine, psychology and social work. It will also be essential reading for healthcare providers and trainees from psychosocial and palliative medicine, social work and nursing.

The challenges faced by individuals and families at the end of life are still incredibly diverse, and many behavioural interventions and clinical approaches have been developed to address this great diversity of experiences in the face of dying and death, helping providers to care for their clients. Perspectives on Behavioural Interventions in Palliative and End-of-Life Care is an accessible resource that collates and explores interventions that can be used to address a wide range of behavioural, psychological, social and spiritual issues that arise when people are facing advanced chronic or life-limiting illness. With perspectives from experienced clinicians, providers, and caregivers from around the world, this book offers a strong foundation in contemporary evidence-based practice alongside seasoned practice insights from the field. Its chapters explore: Interventions to enhance communication and decision making The management of physical and mental health symptoms Meaning-Centred Psychotherapy for cancer patients Dignity Therapy Interventions embracing cultural diversity and intersectionality. Together with Perspectives on Palliative and End-of-Life Care: Disease, Social and Cultural Context, the book provides a foundation for collaborative international and interprofessional work by providing state-of science information on behavioural interventions addressing mental health and wellness. It is of interest to academics, researchers and postgraduates in the fields of mental health, medicine, psychology and social work, and is essential reading for healthcare providers and trainees from psychosocial and palliative medicine, social work and nursing.

Public health approaches to palliative care have been growing in policy importance and practice acceptance. This innovative volume explores the major concepts, practice examples, and practice guidelines for this new approach. The goal of ‘comprehensive care’ – seamless support for patients as they transition between home based care and inpatient services – relies on the principles of health promotion and community development both to ensure services are available and importantly appropriate for patients’ needs. In developing contexts, where hospitals and hospices may be inaccessible, a public health approach provides not only continuity of care but greater access to good end of life care. This book provides both a historical and conceptual overview whilst offering practical case examples from affluent and developing contexts, in a range of clinical settings. Finally, it draws together research-based guidelines for future practice. Essential reading for public health researchers and practitioners with an interest in end of life care and global health as well as those involved in developing palliative care provision, International Perspectives on Public Health and Palliative Care is the first volume to present an overview of theory and practice in this emerging field.

Taking account of the British government's "End of Life Care Strategy", contributors set out the key issues affecting practice across a range of health and social care contexts. The book covers topics ranging from dying and death to symptom management and spiritual care, backed up with practical examples. Each entry comprises: a snapshot definition of the topic, key points, a discussion of the main debates, links to practice through thought-provoking case histories, and suggestions for further reading.

Praise for the Third Edition: "In this comprehensive textbook on palliative care nursing, editors Marianne Matzo and Deborah Witt Sherman succeed in bringing together the heart of nursing and the true meaning of palliative care with the most current evidence based practice." --GeriPal This fourth edition of a comprehensive text/reference that has been valued by students, educators, and practicing nurses for many years, Palliative Care Nursing continues to reflect the fundamental hospice and palliative care nursing competencies---both basic and advanced--that are essential for effective and empathetic care of patients and families. This new edition reflects the tremendous growth of this vital discipline into the mainstream of health care and focuses on palliative care that is responsive to the demand for health care reform in America and globally. It provides the knowledge, scientific evidence, and skills needed by nurses to address the complex physical, emotional, social, sexual, and spiritual needs of patients and families within the context of a changing health care delivery system. With a focus on inter-professional collaboration, the book emphasizes the value of complementary, holistic models in promoting health and wholeness across the illness trajectory, even as death approaches. The book is edited by Project on Death in America Faculty Scholars, who have worked to develop, implement, and evaluate nursing initiatives in palliative care in the U.S. and internationally. With a focus on both quality of life and economic imperatives, interdisciplinary authors describe the management of specific diseases and related physical and psychological symptoms, and care of patients during the dying process. They cover assessment of key symptoms and pharmacological, non-pharmacological, and complementary interventions. Taking a life-span approach, the book includes age-appropriate nursing considerations. Key points at the beginning of each chapter and callouts containing evidenced-based information highlight best practices. The text also examines relevant legal, ethical, and cultural considerations and offers case studies with conclusions in each clinical chapter. New to the Fourth Edition: Thoroughly revised and expanded Three new chapters addressing palliative care amidst health care reform, rehabilitation in chronic or serious illness, and post-traumatic stress disorder A conceptual framework table in each chapter identifying the National Quality Forum Domains of Palliative Care and Basic and Advanced Palliative Care and Hospice Nursing Competencies Updated evidence-based callouts that review the highest-quality studies

"Over the centuries healers have been called upon to palliate, or "make better," myriad afflictions. Only in recent times has the notion arisen that our primary goal is to identify and cure diseases, thereby prolonging life and, presumably, preventing distressing symptoms and associated suffering. The medical advances made in recent decades are indeed so astonishing that one could almost forgive those who would hope that a cure-based medical system might eliminate scourges such as pain, chronic illness, and the debilitations of old age. However, we remain mortal. I recall a scene from Bernado Bertolucci's film Little Buddha in which a child sits with a wise, old monk looking out over a bustling city in Nepal. "What is impermanence?" asks the child. The monk answers, "See these people. All of us and all the people alive today. One hundred years from now we'll all be dead. That is impermanence." Intellectually, I understand the truth of this statement. However that more than 6 billion people will die in a period of 100 years is beyond my comprehension"--