Raising A Rare Girl

“A remarkable book . . . I found myself thinking that all expectant and new parents should read it.” —Michelle Slater A New York Times Book Review Editors' Choice In Raising a Rare Girl, Lanier explores how to defy the tyranny of normal and embrace parenthood as a spiritual practice that breaks us open in the best of ways. Like many women of her generation, when Heather Lanier was expecting her first child she did everything by the book in the hope that she could create a SuperBaby, a supremely healthy human destined for a high-achieving future. But her daughter Fiona challenged all of Lanier’s preconceptions. Born with an ultra-rare syndrome known as Wolf-Hirschhorn, Fiona received a daunting prognosis: she would experience significant developmental delays and might not reach her second birthday. The diagnosis obliterated Lanier’s perfectionist tendencies, along with her most closely held beliefs about certainty, vulnerability, God, and love. With tiny bits of mozzarella cheese, a walker rolled to library story time, a talking iPad app, and a whole lot of pop and reggae, mother and daughter spend their days doing whatever it takes to give Fiona nourishment, movement, and language. Loving Fiona opens Lanier up to new understandings of what it means to be human, what it takes to be a mother, and above all, the aching joy and wonder that come from embracing the unique life of her rare girl.

On a hot July night on Cape Cod, at the age of 14, Brodeur became a confidante to her mother's affair with her husband's closest friend. Malabar came to rely on her daughter to help, but when the affair had calamitous consequences for everyone involved, Brodeau was driven into a precarious marriage of her own, and then into a deep depression. In her memoir she examines how the people close to us can break our hearts simply because they have access to them, and the lies we tell in order to justify the choices we make. -- adapted from jacket

This is the gripping true story of how one devastating moment tears a family apart and how love and strength come together to rebuild what was lost. “Compelling... tinged with the rawness only real life can provide.” —Entertainment Weekly I am just like you. I get bored in school. I goof off with my friends. I fight with my family. I have big dreams. I am just like everyone else. And then, in a split second, I’m not. It's just another October day until Erin’s parents are hit by a speeding tow truck. Mom dies instantly. Dad dies one month later, after doctors assure Erin he’s going to make it. Now Erin and her sister are left to raise their baby brother—and each other. Grief Girl will break your heart and then fill you with hope, time and time again.

2022 Readers' Favorite Gold Medal Winner in Non-Fiction - Memoir Genre Award-Winning Memoir “Courageously exploratory, making for a truly enlightening read." (Kirkus Reviews) Raising Jess is the powerful story of one family’s survival when faced with adversity. Written with compassion, honesty, and humor, it tells of a family changed forever by the birth of a child with a rare chromosome deletion and their courageous decision to choose hope. Facing the challenges of caring for her daughter, marriage struggles, and the question of having more children, Vickie Rubin gives a glimpse into the world of her family and transformation while Raising Jess. This beautiful, gripping memoir will delight and leave you wanting more. "This is an inspiring story of tragedy and triumph, brilliantly and powerfully told. I highly recommend it." - Ashley Adams, Author “This is a triumphant tale.” - Cathy Shields, Author" "A heartwarming, compassionate story. This story will bring tears to the eyes of readers as they are educated and enraptured by one family’s journey with a child with special needs.” (5-Star Review by Emily-Jane Hills Orford for Readers' Favorite) “Couldn’t put it down! Raising Jess is an amazing book! Vickie Rubin’s writing is masterful! Highly recommend.” - Mike Steklof, Ed. D. “Beautiful Insightful Narrative That Resonates Deeply. I feel enlightened, inspired, hopeful and transformed by Vickie's story.” - Janet G. “Beautifully written and a must-read for anyone that knows someone with disabilities or wants to know a family’s perspective.” - Jill G. “I couldn’t put it down. Get a copy of this book—so pure, raw, and beautiful.” - Ashleigh Bussinger “Vickie reveals her Soul to the reader. A Must-Read for All” - Lori N. Vickie Schlanger Rubin, M.S Ed., three-time award-winning author, contributes essays to Newsweek, Buffalo News Opinion, and blogs worldwide. Vickie is an experienced public speaker and passionate advocate for families of children with disabilities. Her blog, Vickie's Views (www.vickierubin.com), gives a heartwarming and humorous view of everyday life.

Mothering under normal circumstances takes all you have to give. But what happens when your child is disabled, and sacrificing all you've got and more is the only hope for a decent future? Full of rage and resilience, duty and love, Ashley Bristowe delivers a mother's voice like no other we've heard. When their second child, Alexander, is diagnosed with a rare genetic disorder, doctors tell Ashley Bristowe and her husband that the boy won't walk, or even talk--that he is profoundly disabled. Stunned and reeling, Ashley researches a disorder so new it's just been named--Kleefstra Syndrome--and she finds little hope and a maze of obstacles. Then she comes across the US-based "Institutes," which have been working to improve the lives of brain-injured children for decades. Recruiting volunteers, organizing therapy, juggling a million tests and appointments, even fundraising as the family falls deep into debt, Ashley devotes years of 24/7 effort to running an impossibly rigorous diet and therapy programme for their son with the hope of saving his life, and her own. The ending is happy: he will never be a "normal" boy, but Alexander talks, he walks, he swims, he plays the piano (badly) and he goes to school. This victory isn't clean and it's far from pretty; the personal toll on Ashley is devastating. "It takes a village," people say, but too much of their village is uncomfortable with her son's difference, the therapy regimen's demands and the family's bottomless need. The health and provincial services bureaucracy set them a maddening set of hoops to jump through, showing how disabled children and their families languish because of criminally low expectations about what can be done to help. My Own Blood is an uplifting story, but it never shies away from the devastating impact of a baby that science couldn't predict and medicine couldn't help. It's the story of a woman who lost everything she'd once been--a professional, an optimist, a joker, a capable adult--in sacrifice to her son. An honest account of a woman's life turned upside down.

“May God grant me the serenity to accept the color pink, the courage to not let my house become a shrine to pink and princesses, and the wisdom to know that pink is just a color, not a decision to never attend college in the hopes of marrying wealthy.” - from The Feminist’s Guide to Raising a Little Princess Smart, funny, and thought-provoking, this book shows feminist parents how to navigate their daughters' princess-obsessed years by taking a non-judgmental and positive approach. Devorah Blachor, an ardent feminist, never expected to be the parent of a little girl who was totally obsessed with the color pink, princesses, and all things girly. When her three-year-old daughter fell down the Disney Princess rabbit hole, she wasn't sure how to reconcile the difference between her parental expectations and the reality of her daughter’s passion. In this book inspired by her viral New York Times Motherlode piece “Turn Your Princess-Obsessed Toddler Into a Feminist in Eight Easy Steps,” Blachor offers insight, advice, and plenty of humor and personal anecdotes for other mothers who cringe each morning when their daughter refuses to wear anything that isn’t pink. Her story of how she surrendered control and opened up—to her Princess Toddler, to pink, and to life—is a universal tale of modern parenting. She addresses important issues such as how to raise a daughter in a society that pressures girls and women to bury their own needs, conform to a beauty standard and sacrifice their own passions.

A "coming-of-age memoir by a young woman who spent thirteen years as Jackie Kennedy's personal assistant and occasional nanny--and the lessons about life and love she learned from the glamorous [former] first lady"--Amazon.com.

'A wise SatNav for what is often a bewildering, or even scary, zone of parenting. The book offers real-world, road-tested, child-first and family-friendly advice; while also highlighting the twin truths that autism is not a tragedy, and that adaptation and acceptance are not resignation' David Mitchell, bestselling author and co-translator of The Reason I Jump 'A must-read for anyone with an autistic child in their life' Laura James, author of Odd Girl Out Written by Jessie Hewitson, an award-winning journalist at The Times, Autism is the book she wishes she had read when her son was first given the diagnosis of autism spectrum disorder. It combines her own experiences with tips from autistic adults, other parents - including author David Mitchell - as well as advice from autism professionals and academics such as Professor Simon Baron-Cohen. Autism looks at the condition as a difference rather than a disorder and includes guidance on: · What to do if you think your child is autistic · How to understand and support your child at school and at home · Mental health and autism · The differences between autistic girls and boys 'It is incredibly useful and informative, full of new research and interviews that put right an awful lot of misinformation. I cannot recommend this highly enough' The Sun 'Exceptionally useful and informative' Uta Frith, Emeritus Professor of Cognitive Development, UCL