Sixtyfive Roses

Heather Summerhayes was six when her four-year-old sister Pam was diagnosed with Cystic Fibrosis and given only months to live. “Sixtyfive roses” was the way Pam pronounced the name of the disease that forever altered the lives of her siblings and parents, who in turn helped alter the community’s response to the disease by founding the Canadian Cystic Fibrosis Foundation. With the help of the CF Foundation, research and new treatments, the fight to save Pam’s lasted for years, until her death at the age of twenty-six.This beautifully written memoir offers a compassionate yet unflinching eyewitness account of the hope, pain, and courage of a family in crisis as it falls apart and outs itself together again and again, to emerge stronger and more loving. The heart of the story explores the relationship between the two sisters—one devastatingly ill, the other healthy but burdened with guilt—as they journey through childhood, adolescence, and young adulthood.

***BUSINESS BOOK AWARDS - FINALIST 2021*** An inspirational success story that shows how anyone can be a champion, overcome challenges and create a better world for yourself and others 65 Roses and a Trunki: Defying the Odds in Life and Business, is the extraordinary success story of entrepreneur Rob Law, designer and inventor of Trunki, the award-winning children's ride-on suitcase that’s sold millions of units worldwide. Born with cystic fibrosis, Rob watched his twin sister die from the same illness at sixteen. Told he could not expect to live into his twenties, he made a promise that he was going to defy the odds and live a long and successful life. Despite being humiliated in Dragons Den where his business was described as "worthless", Rob went on to create a new category of consumer product, build a global business brand, become an accomplished athlete, get an MBE from the Queen, bring joy to millions of children all over the world and become a father to three children after being told he would die childless. After beating overwhelming odds on the road to success in his personal and professional life, Rob wrote this memoir to help anyone facing difficult challenges in life and business. From brand-building and harnessing your creativity to managing a chronic health condition and facing your demons, you'll learn how to defy the odds, follow your passion, keep fighting when experts are telling you to quit and overcome every challenge you face. 65 Roses and a Trunki is a life-affirming book. Drawing on key insights from personal and business psychology, it tells an inspirational story that can be your story too.

Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."

The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.

Cystic fibrosis is a progressive disease with no cure. And for one dying little girl with this illness, there is only one hope--an ancient Christian relic with an astonishing power to heal. Amari Johnston is a feisty private investigator fresh out of college. Her boyfriend is a brilliant experimental physicist named Kevin Brenner. They're both on the payroll of wealthy philanthropist Ernesto Galliano. While staying at Ernesto's estate, Amari befriends an endearing four-year-old foster child named Kathleen. But Kathleen isn't like the other foster children staying at the estate. She has a severe case of cystic fibrosis, and Amari is desperate to find a cure. She researches the latest medical advances, but after learning that effective treatment is decades away, she nearly gives up hope. Meanwhile, inside the restoration laboratory of the Royal Ontario Museum, a conservator discovers a relic with miraculous healing powers, a scrap of cloth from the robe of Jesus Christ. Although this novel is volume 3 of the Amari Johnston series, it can easily be read as a standalone title.

Author Melissa Abramovitz discusses the causes of cystic fibrosis, the history of its discovery, and current and future treatment options. Though a diagnosis of cystic fibrosis remains devastating in today's world, Abramovitz explains that revelations about the disease's genetic foundations may lead to medical breakthroughs in the near future. First-person accounts and inspirational quotes from individuals with cystic fibrosis will educate and inspire readers.

We must never underestimate the power of our story. If youre finding yourself in a place where you cant seem to catch your breath, youll find hope and help on these pages. - Jill Savage, Founder of Hearts at Home, author of No More Perfect Moms Just Breathe is the inspirational account of the Waterworth family as they experience shocking diagnoses, learn a new normal as two of their children manage a life-threatening disease, and later, how Leanne and her son survive a horrific van accident during a family vacation in Montana. Through their faith in God and the support of a strong, loving, community, youll be moved to hear how they overcome extreme obstacles and continue to be thankful, choosing joy, even in the midst of the most difficult circumstances.

Describes the history and causes of cystic fibrosis, and discusses the special needs and complications that can arise.