Abnormality And Normality The Mothering Of Thalidomide Children

This case study of a highly unusual form of maternity is a valuable addition to the literature on handicapped or deviant children. It is an account of how mothers who took part in a government-sponsored habilitation program in Montreal perceived the process of bearing and rearing (or deciding not to rear) a child with congenital thalidomide-induced deformities. Professor Roskies traces how the biological, psychological, and social factors interacted—and changed over time—as she sought to conceptualize and describe a new way of understanding the elements involved in the mothering of a handicapped child. She raises a number of disturbing questions about our customary ways of viewing this form of mother–child relationship.

Women most fully experience the consequences of human reproductive technologies. Men who convene to evaluate such technologies discuss "them": the women who must accept, avoid, or even resist these technologies; the women who consume technologies they did not devise; the women who are the objects of policies made by men. So often the input of women is neither sought nor listened to. The privileged insights and perspectives that women bring to the consideration of technologies in human reproduction are the subject of these volumes, which constitute the revised and edited record of a Workshop on "Ethical Issues in Human Reproduction Technology: Analysis by Women" (EIRTAW), held in June, 1979, at Hampshire College in Amherst, Massachusetts. Some 80 members of the workshop, 90 percent of them women (from 24 states), represented diverse occupations and personal histories, different races and classes, varied political commitments. They included doctors, nurses, and scientists, lay midwives, consumer advocates, historians, and sociologists, lawyers, policy analysts, and ethicists. Each session, however, made plain that ethics is an everyday concern for women in general, as well as an academic profession for some.

Discusses prevention and intervention when dealing with children and adolescents with psychiatric illnesses. Examines the impact of alcohol and drug use on these illnesses. 10 chapters and commentary cover conceptual issues in prevention, alcohol and drug related problems, prevention of learning disorders, risk factors in conduct disorders, public policy: risk factor or remedy?, psychiatric disorders in parents as a risk factor for children, post traumatic stress disorders, and prevention issues in youth suicide.

First published in 1986, this book reviews research on the role parents play in fostering the early development of children with mental handicaps. Professionals and parents must work together to give such children the chance of living as ordinary lives as possible and here, the author develops a broadly-based conceptual framework for the involvement of parents as teachers of their young handicapped children. McConachie identifies characteristics of parents which seem of particular relevance to the design and success of intervention programmes. Although written in the 1980s, this book discusses topics that are still important today.

“A shocking saga of pharmaceutical malpractice . . . Wonder Drug is both a first-rate medical thriller and the searing account of a forgotten American tragedy.”—Patrick Radden Keefe, author of Empire of Pain A “fascinating and compassionate” (People) account of the most notorious drug of the twentieth century and the never-before-told story of its American survivors. In 1959, a Cincinnati pharmaceutical firm, the William S. Merrell Company, quietly began distributing samples of an exciting new wonder drug already popular around the world. Touted as a sedative without risks, thalidomide was handed out freely, under the guise of clinical trials, by doctors who believed approval by the Food and Drug Administration was imminent. But in 1960, when the application for thalidomide landed on the desk of FDA medical reviewer Frances Kelsey, she quickly grew suspicious. When she learned that the drug was causing severe birth abnormalities abroad, she and a team of dedicated doctors, parents, and journalists fought tirelessly to block its authorization in the United States and stop its sale around the world. Jennifer Vanderbes set out to write about this FDA success story only to discover a sinister truth that had been buried for decades: For more than five years, several American pharmaceutical firms had distributed unmarked thalidomide samples in shoddy clinical trials, reaching tens of thousands of unwitting patients, including hundreds of pregnant women. As Vanderbes examined government and corporate archives, probed court records, and interviewed hundreds of key players, she unearthed an even more stunning find: Scores of Americans had likely been harmed by the drug. Deceived by the pharmaceutical firms, betrayed by doctors, and ignored by the government, most of these Americans had spent their lives unaware that thalidomide had caused their birth defects. Now, for the first time, this shocking episode in American history is brought to light. Wonder Drug gives voice to the unrecognized victims of this epic scandal and exposes the deceptive practices of Big Pharma that continue to endanger lives today.