Belmont Revisited

Research with human subjects has long been controversial because of the conflicts that often arise between promoting scientific knowledge and protecting the rights and welfare of subjects. Twenty-five years ago the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research addressed these conflicts. The result was the Belmont Report: Ethical Principles and Guidance for Research Involving Human Subjects, a report that identified foundational principles for ethical research with human subjects: respect for persons, beneficence, and justice. Since the publication of Belmont, these three principles have greatly influenced discussions of research with human subjects. While they are often regarded as the single-most influential set of guidelines for biomedical research and practice in the United States (and other parts of the world), not everyone agrees that they provide adequate guidance. Belmont Revisited brings together a stellar group of scholars in bioethics to revisit the findings of that original report. Their responses constitute a broad overview of the development of the Belmont Report and the extent of its influence, especially on governmental commissions, as well as an assessment of its virtues and shortcomings. Belmont Revisited looks back to reexamine the creation and influence of the Belmont Report, and also looks forward to the future of research—with a strong call to rethink how institutions and investigators can conduct research more ethically.

The factions debating health care reform in the United States have gravitated toward one of two positions: that just health care is an individual responsibility or that it must be regarded as a national concern. Both arguments overlook a third possibility: that justice in health care is multilayered and requires the participation of multiple and diverse communities. Communities of Health Care Justice makes a powerful ethical argument for treating communities as critical moral actors that play key roles in defining and upholding just health policy. Drawing together the key community dimensions of health care, and demonstrating their neglect in most prominent theories of health care justice, Charlene Galarneau postulates the ethical norms of community justice. In the process, she proposes that while the subnational communities of health care justice are defined by shared place, including those bound by culture, religion, gender, and race that together they define justice. As she constructs her innovative theorization of health care justice, Galarneau also reveals its firm grounding in the work of real-world health policy and community advocates. Communities of Health Care Justice not only strives to imagine a new framework of just health care, but also to show how elements of this framework exist in current health policy, and to outline the systemic, conceptual, and structural changes required to put these justice norms into fuller practice.

Highlights the most important topics, issues, questions, and debates in the field of psychology. Provides material of interest for students from all corners of psychological studies, whether their interests be in the biological, cognitive, developmental, social, or clinical arenas.

Observing Bioethics examines the history of bioethics as a discipline related not only to modern biology, medicine, and biotechnology, but also to the core values and beliefs of American society and its courts, legislatures, and media. The book is written from the perspective of two social scientists--a sociologist of medicine(Renee C. Fox) and a historian of medicine (Judith P. Swazey)--who have participated in bioethics since the emergence of this multidisciplinary field more than 30 years ago. Fox and Swazey draw on first-hand observations and experiences in a variety of American bioethical settings; face-to-face interviews with first- and second-generation figures in the genesis and early unfolding of bioethics; a detailed examination of the theatrical media coverage of what was considered to be a banner event in the annals of bioethics (the creation and birth of the cloned sheep, Dolly); case studies of how bioethics has internationally developed; and a large corpus of primary documents and secondary source materials. While recognizing the intellectual, moral, and sociological importance of American bioethics, Fox and Swazey are critical of its characteristics. Foremost among these are what they identify as the problems of thinking socially, culturally, and internationally in American bioethics; the 'tenuous interdisciplinarity' of the field; and the troubling extent to which the 'culture wars' have penetrated bioethics. This book will appeal to a wide range of doctors, scientists, and academics who are involved in the history and sociology of bioethics.

Given basic commitments to philosophize from lived experience and a shared underlying meliorist impulse, American philosophical traditions seem well-suited to develop nascent philosophical engagement with disability studies. To date, however, there have been few efforts to facilitate research at the intersections of American philosophy and disability studies. This volume of essays seeks to offer some directions for propelling this inquiry. Scholars working in pragmatist and other American traditions consider intersections between American philosophy and work in disability studies. Consisting of three broader sections, one set of essays considers how American philosophies from contemporary Mexican philosophy to classical American pragmatism inform descriptions of disability and efforts at liberation. The next offer accounts of how American philosophies disclose alternative conceptions of epistemic and ethical issues surrounding disability. Finally, a section considers "living issues" of disability, including essays on parenting, immigration policy, and art education. Throughout, these works provide direction and orientation for further investigation at the intersection of American philosophies and disability studies.

Contains a collection of essays exploring human dignity and bioethics, a concept crucial to today's discourse in law and ethics in general and in bioethics in particular.

AcknowledgmentsIntroduction1. Framework for Understanding the Thinning of a Public Debate2. Setting the Stage: The Eugenicists and the Challenge from Theologians3. Gene Therapy, Advisory Commissions, and the Birth of the Bioethics Profession4. The President's Commission: The "Neutral" Triumph of Formal Rationality5. Regaining Lost Jurisdictional Ground and the Triumph of the Bioethics Profession6. "Reproduction" as the New Jurisdictional Metaphor: Autonomy and the Internal Threat to the Bioethics/Science Jurisdiction7. Conclusion: The Future of Public Bioethics and the HGE DebateAppendix: Methods and TablesNotesWorks CitedIndex Copyright © Libri GmbH. All rights reserved.

The story of an academic discipline is usually conveyed in grand movements and long spans, but it can also be told through the lives of individual scholars, through the development of specialties, through the creation and change of departments, and through the formation and transformation of organizations. Using twelve histories of micro-dimensions of communication studies, this volume shows how sometimes small decisions, single scholars, individual departments, and marginalized voices can have dramatic roles in the history and future of an academic discipline. As a compilation of micro-histories with macro-lessons this volume stands alone in communication studies. Read as a companion to A Century of Communication Studies, the National Communication Association’s centennial volume, it offers rich detail, missing links, and local narratives that fully flesh out the discipline. In either case, no education in communication studies is complete without an understanding of the themes, challenges, and triumphs embodied by the twelve micro-histories offered in this book. This book was originally published as two special issues of Review of Communication.