Chasing The Intact Mind

"In her 2006 memoir Strange Son, Portia Iversen coined the phrase "intact mind" to describe the typical cognitive abilities she believed were buried within even the most seemingly impaired autistic individuals, like her son Dov - who, at nine years old, was completely nonverbal and spent much of his time "chewing on blocks and tapping stones." Although he didn't know the alphabet, colors, or numbers; although he "could hardly point or nod his head to show what he meant"; although doctors had diagnosed Dov as "retarded" and told Iversen she "shouldn't wreck [her] marriage and destroy [her] other children's lives for his sake, when doing so was utterly and completely useless" - although all these things were true about her son, Iversen still imagined him "falling down a deep well, believed to be dead. And then years later, a light shone down that dark shaft and I could see him there, somehow still alive" (emphasis in original)"--

"In her 2006 memoir Strange Son, Portia Iversen coined the phrase "intact mind" to describe the typical cognitive abilities she believed were buried within even the most seemingly impaired autistic individuals, like her son Dov - who, at nine years old, was completely nonverbal and spent much of his time "chewing on blocks and tapping stones." Although he didn't know the alphabet, colors, or numbers; although he "could hardly point or nod his head to show what he meant"; although doctors had diagnosed Dov as "retarded" and told Iversen she "shouldn't wreck [her] marriage and destroy [her] other children's lives for his sake, when doing so was utterly and completely useless" - although all these things were true about her son, Iversen still imagined him "falling down a deep well, believed to be dead. And then years later, a light shone down that dark shaft and I could see him there, somehow still alive" (emphasis in original)"--

"We Walk combines personal narrative, interviews, and research to examine social issues like inclusion, religion, therapeutics, and friendship through the lens of severe autism"--

In the fall of 2009, Amy Lutz and her husband, Andy, struggled with one of the worst decisions parents could possibly face: whether they could safely keep their autistic ten-year-old son, Jonah, at home any longer. Multiple medication trials, a long procession of behavior modification strategies, and even an almost year-long hospitalization had all failed to control his violent rages. Desperate to stop the attacks that endangered family members, caregivers, and even Jonah himself, Amy and Andy decided to try the controversial procedure of electroconvulsive therapy or ECT. Over the last three years, Jonah has received 136 treatments. His aggression has greatly diminished, and for the first time Jonah, now fourteen, is moving to a less restricted school. Each Day I Like It Better recounts the journeys of Jonah and seven other children and their families (interviewed by the author) in their quests for appropriate educational placements and therapeutic interventions. The author describes their varied, but mostly successful, experiences with ECT. A survey of research on pediatric ECT is incorporated into the narrative, and a foreword by child psychiatrist Dirk Dhossche and ECT researcher and practitioner Charles Kellner explains how ECT works, the side effects patients may experience, and its current use in the treatment of autism, catatonia, and violent behavior in children.

“Erica Garza has written a riveting, can’t-look-away memoir of a life lived hardcore…In an era when predatory male sexual behavior has finally become a topic of urgent national discourse…Getting Off makes for a wild, timely read” (Elle). A fixation on porn and orgasm, strings of failed relationships and serial hook-ups with strangers, inevitable blackouts to blunt the shame—these are not things we often hear women share publicly, and not with the candor, eloquence, and introspection Erica Garza brings to Getting Off. What sets this courageous and riveting account apart from your typical misery memoir is the absence of any precipitating trauma beyond the garden variety of hurt we’ve all had to endure in simply becoming a person—reckoning with family, learning to be social, integrating what it means to be sexual. Whatever tenor of violence or abuse Erica’s life took on through her behavior was of her own making, fueled by fear, guilt, self-loathing, self-pity, loneliness, and the hopelessness those feelings brought on as she runs from one side of the world to the other in an effort to break her habits—from East Los Angeles to Hawaii and Southeast Asia, through the brothels of Bangkok and the yoga studios of Bali to disappointing stabs at therapy and twelve-steps back home. In these remarkable pages, Garza draws an evocative, studied portrait of the anxiety that fuels her obsessions, as well as the exhilaration and hope she begins to feel when she suspects she might be free of them. Getting Off offers a brave and necessary voice to our evolving conversations about addiction and the impact that internet culture has had on us all—“a profoundly genuine, gripping story that any reader can appreciate” (Vice). “In reading Garza’s insight into her own experiences, we better understand ourselves” (The New York Times Book Review).

Impactful and integral to our economic recovery after the pandemic, The Autism Full Employment Act will rebuild and improve autism employment programs. Employment remains the issue today for many adults with autism. During the pandemic of 2020, authors Michael Bernick and Dr. Lou Vismara, along with other adults with autism, practitioners, and advocates, set out to develop an Autism Full Employment Act. At the time, the national economy was decimated, and it was clear that it would need to be rebuilt, starting in 2021 and beyond. The Act is an attempt not only to rebuild autism employment programs, but also to address the limitations and short­comings of the current system. The Autism Full Employment Act shows how there can be a place in the job world for the wide range of adults with autism, ADHD, and other learning and mental health differ­ences—many of whom are not employed today. Bernick and Dr. Vismara review the autism employment initiatives in recent years among major employers, state and local governments, autism-focused businesses, and autism transi­tion programs, and present strategies to build on these initiatives. They set out more fully the meanings of “autism talent advantage,” “autism friendly workplace,” and “employment for the more severely impacted.” Six broad strategy areas are explored. Interspersed with these six strategy areas are notes on related issues of “professionalizing the direct support workforce,” “transitions,” and “comorbidities.” Bernick and Dr. Vismara end by considering why no government action or pro­gram can replace the employment journey of each adult with autism, but how instead the Act can hasten these journeys.

Rev. ed. of: Biology of the autistic syndromes / Christopher Gillberg, Mary Coleman. 3rd ed. 2000.

Gregory Bateson was a philosopher, anthropologist, photographer, naturalist, and poet, as well as the husband and collaborator of Margaret Mead. This classic anthology of his major work includes a new Foreword by his daughter, Mary Katherine Bateson. 5 line drawings.