Chronic Youth

The teenager has often appeared in culture as an anxious figure, the repository for American dreams and worst nightmares, at once on the brink of success and imminent failure. Spotlighting the “troubled teen” as a site of pop cultural, medical, and governmental intervention, Chronic Youth traces the teenager as a figure through which broad threats to the normative order have been negotiated and contained. Examining television, popular novels, science journalism, new media, and public policy, Julie Passanante Elman shows how the teenager became a cultural touchstone for shifting notions of able-bodiedness, heteronormativity, and neoliberalism in the late twentieth century. By the late 1970s, media industries as well as policymakers began developing new problem-driven ‘edutainment’ prominently featuring narratives of disability—from the immunocompromised The Boy in the Plastic Bubble to ABC’s After School Specials and teen sick-lit. Although this conjoining of disability and adolescence began as a storytelling convention, disability became much more than a metaphor as the process of medicalizing adolescence intensified by the 1990s, with parenting books containing neuro-scientific warnings about the incomplete and volatile “teen brain.” Undertaking a cultural history of youth that combines disability, queer, feminist, and comparative media studies, Elman offers a provocative new account of how American cultural producers, policymakers, and medical professionals have mobilized discourses of disability to cast adolescence as a treatable “condition.” By tracing the teen’s uneven passage from postwar rebel to 21st century patient, Chronic Youth shows how teenagers became a lynchpin for a culture of perpetual rehabilitation and neoliberal governmentality.

This book focuses on young people (12-25 years old) growing up with a chronic somatic condition and/or physical disability, facing different challenges during their transition to adulthood and to adult healthcare services. Becoming an adult often proves extra challenging for them, because the adaptive tasks related to living with a chronic condition can clash with developmental milestones. Finding a good balance and integrating these tasks in daily life is also referred to as self-management. This book addresses self-management and empowerment of young people with chronic conditions as well as the Positive Youth Development concept. It elaborates on theories and approaches and offers a complete overview of self-management interventions for young people with chronic conditions, emphasizing on the tasks of medical, emotion and role management. It also elaborates on the roles and tasks of professionals, as well as the patient-provider relationship; the shifting roles between young people and their parents and the role of peer support. This book is unique in its broad view on self-management, i.e. it goes beyond medical management and focuses on young people achieving their maximum potential and a good quality of life. Furthermore, the book employs a positive youth development approach, focusing on empowerment and growth rather than problems or issues. It offers an overview of the state-of-the-art and evidence concerning self-management support for young people with various chronic conditions. As such it is of benefit for all healthcare professionals working in care for young people, but also for researchers interested in this topic.

The book is a compendium of articles from Hospital and Community Psychiatry on the young adult chronic patient.

Adolescence is typically fraught with problems, even under optimal conditions. And when chronic illness is added to the picture, medical and related social issues can complicate, and even disrupt, the course of development. The first text geared toward the integrated care setting, Behavioral Approaches to Chronic Disease in Adolescence offers clinicians an evidence-based guide to helping their young clients manage their chronic conditions and treating the psychosocial effects—from school problems and stigma to noncompliance and depression—that frequently follow diagnosis. Expert contributors present up-to-date information on epidemiology, symptoms, comorbid psychosocial problems, and treatment options for a variety of common illnesses, arranged to foster effective interventions for adolescents and efficient collaboration with other care providers in the team. Coverage is comprehensive, authoritative, and accessible, ensuring best practice while respecting each client’s individuality: Empirically-based treatment guidelines for illnesses commonly found in youth, including Type 1 and 2 diabetes, asthma, cancer, obesity, and chronic pain. Overview of the physiology of adolescence, particularly as it may be affected by medical conditions, and of adolescent brain development. Latest findings on the role of families in teens’ adjustment to illness and treatment. Cultural considerations affecting ethnically diverse clients and their families. Detailed discussions of ethical issues relevant to treating chronically ill young people, and of controversies involving pharmacotherapy with this population. Chapters contain useful handouts for clinicians and clients. Taking Care of the Practitioner” chapter with helpful strategies for avoiding burnout. Its emphasis on specific practical information makes Behavioral Approaches to Chronic Disease in Adolescence a “go-to” reference for health psychologists, child and adolescent mental health practitioners, pediatricians and family practitioners, and clinical social workers.

Advances in Chronic Brain Damage Research and Treatment: 2011 Edition is a ScholarlyBrief™ that delivers timely, authoritative, comprehensive, and specialized information about Chronic Brain Damage in a concise format. The editors have built Advances in Chronic Brain Damage Research and Treatment: 2011 Edition on the vast information databases of ScholarlyNews.™ You can expect the information about Chronic Brain Damage in this eBook to be deeper than what you can access anywhere else, as well as consistently reliable, authoritative, informed, and relevant. The content of Advances in Chronic Brain Damage Research and Treatment: 2011 Edition has been produced by the world’s leading scientists, engineers, analysts, research institutions, and companies. All of the content is from peer-reviewed sources, and all of it is written, assembled, and edited by the editors at ScholarlyEditions™ and available exclusively from us. You now have a source you can cite with authority, confidence, and credibility. More information is available at http://www.ScholarlyEditions.com/.

Provide comprehensive primary care for the growing number of children with chronic conditions. Featuring contributions from more than 50 expert nurse practitioners and their interprofessional colleagues, Primary Care of Children with Chronic Conditions offers expert guidance on the management of children with special needs and their families. Comprehensive coverage presents the most current knowledge and insights available on these specific conditions, including information on the COVID-19 pandemic. This valuable resource helps providers improve pediatric care for chronic conditions and addresses the need for transitional care to adulthood and the issues and gaps in healthcare that may hinder the quality of care for this unique population.The only book authored by Nurse Practitioners and their colleagues focusing on managing the primary health care needs of children with chronic conditions.More than 50 expert contributors provide the most current information available on specific conditions.Comprehensive summary boxes at the end of chronic conditions chapters provide at-a-glance access to key information.Full-color format enhances readability and highlights key information for quick access.Up-to-date references ensure access to the most current, evidence-based coverage with the latest research findings and management protocols.

Children and young people suffering from long-term conditions require continuing support and nursing care throughout their lives. Nursing Care of Children and Young People with Chronic Illness explores chronic disease management in the context of recent developments, including the National Service Framework for Children. It addresses the aetiology of chronic illness and the impact on the child’s family. It also explores holistic approaches to caring for their social, physical and psychological needs, and highlights the importance of the nurse’s role in promoting children and their parents as ‘expert patients’. Nursing Care of Children and Young People with Chronic Illness is a comprehensive, up-to-date resource for nursing students and practitioners on the context, theory and practice of assessing health needs, and the delivery of holistic care and services within a variety of care settings, to enable them to meet the changing needs of children and young people with chronic illnesses and diseases, and their families. The first nursing-specific text related to the care of children & young people with chronic illness Incorporates case studies & scenarios throughout to enable readers to gain an understanding of the application of concepts & theories in practice Covers care aspects of the child and young person in different settings including tertiary, secondary, primary health care and the home Written in the context of the NSF for Children

Handbook of Psychosocial Interventions for Chronic Pain provides a cutting-edge and comprehensive review of interventions for chronic pain grounded in biopsychosocial frameworks. Each chapter gives readers the opportunity to solidify their knowledge of major approaches to chronic pain in an accessible format. Reflecting national efforts to reduce prescriptions for pain medications and increase access to interdisciplinary treatment approaches, the book also considers a wide range of person-level variables such as age, cultural factors, and comorbid mental health conditions. In this book, mental health and allied health professionals will find the tools they need to understand the real-world delivery of chronic pain treatments in a wide variety of settings.