Dignity For Deeply Forgetful People

For caregivers of deeply forgetful people: a book that combines new ethics guidelines with an innovative program on how to communicate and connect with people with Alzheimer's. How do we approach a "deeply forgetful" loved one so as to notice and affirm their continuing self-identity? For three decades, Stephen G. Post has worked around the world encouraging caregivers to become more aware of—and find renewed hope in—surprising expressions of selfhood despite the challenges of cognitive decline. In this book, Post offers new perspectives on the worth and dignity of people with Alzheimer's and related disorders despite the negative influence of "hypercognitive" values that place an ethically unacceptable emphasis on human dignity as based on linear rationality and strength of memory. This bias, Post argues, is responsible for the abusive exclusion of this population from our shared humanity. With vignettes and narratives, he argues for a deeper dignity grounded in consciousness, emotional presence, creativity, interdependence, music, and a self that is not "gone" but "differently abled." Post covers key practical topics such as: • understanding the experience of dementia • noticing subtle expressions of continuing selfhood, including "paradoxical lucidity" • perspectives on ethical quandaries from diagnosis to terminal care and everything in between, as gleaned from the voices of caregivers • how to communicate optimally and use language effectively • the value of art, poetry, symbols, personalized music, and nature in revealing self-identity • the value of trained "dementia companion" dogs At a time when medical advances to cure these conditions are still out of reach and the most recent drugs have shown limited effectiveness, Post argues that focusing discussion and resources on the relational dignity of these individuals and the respite needs of their caregivers is vital. Grounding ethics on the equal worth of all conscious human beings, he provides a cautionary perspective on preemptive assisted suicide based on cases that he has witnessed. He affirms vulnerability and interdependence as the core of the human condition and celebrates caregivers as advocates seeking social and economic justice in an American system where they and their loved ones receive only leftover scraps. Racially inclusive and grounded in diversity, Dignity for Deeply Forgetful People also includes a workshop appendix focused on communication and connection, "A Caregiver Resilience Program," by Rev. Dr. Jade C. Angelica.

"A new ethics guideline for caregivers of "deeply forgetful people" and a program on how to communicate and connect based on 30 years of community dialogues through Alzheimer's organizations across the globe"--

A longer life. A happier life. A healthier life. Above all, a life that matters—so that when you leave this world, you’ll have changed it for the better. If science said you could have all this just by altering one behavior, would you? Dr. Stephen Post has been making headlines by funding studies at the nation’s top universities to prove once and for all the life-enhancing benefits of caring, kindness, and compassion. The exciting new research shows that when we give of ourselves, especially if we start young, everything from life-satisfaction to self-realization and physical health is significantly affected. Mortality is delayed. Depression is reduced. Well-being and good fortune are increased. In their life-changing new book, Why Good Things Happen to Good People, Dr. Post and journalist Jill Neimark weave the growing new science of love and giving with profoundly moving real-life stories to show exactly how giving unlocks the doors to health, happiness, and a longer life. The astounding new research includes a fifty-year study showing that people who are giving during their high school years have better physical and mental health throughout their lives. Other studies show that older people who give live longer than those who don’t. Helping others has been shown to bring health benefits to those with chronic illness, including HIV, multiple sclerosis, and heart problems. And studies show that people of all ages who help others on a regular basis, even in small ways, feel happiest. Why Good Things Happen to Good People offers ten ways to give of yourself, in four areas of life, all proven by science to improve your health and even add to your life expectancy. (And not one requires you to write a check.) The one-of-a-kind “Love and Longevity Scale” scores you on all ten ways, from volunteering to listening, loyalty to forgiveness, celebration to standing up for what you believe in. Using the lessons and guidelines in each chapter, you can create a personalized plan for a more generous life, finding the style of giving that suits you best. The astonishing connection between generosity and health is so convincing that it will inspire readers to change their lives in ways big and small. Get started today. A longer, healthier, happier life awaits you.

Society today, writes Stephen Post, is "hypercognitive": it places inordinate emphasis on people's powers of rational thinking and memory. Thus, Alzheimer disease and other dementias, which over an extended period incrementally rob patients of exactly those functions, raise many dilemmas. How are we to view—and value—persons deprived of what some consider the most important human capacities? In the second edition of The Moral Challenge of Alzheimer Disease, Post updates his highly praised account of the major ethical issues relating to dementia care. With chapters organized to follow the progression from mild to severe and then terminal stages of dementia, Post discusses topics including the experience of dementia, family caregiving, genetic testing for Alzheimer disease, quality of life, and assisted suicide and euthanasia. New to this edition are sections dealing with end-of-life issues (especially artificial nutrition and hydration), the emerging cognitive-enhancing drugs, distributive justice, spirituality, and hospice, as well as a critique of rationalistic definitions of personhood. The last chapter is a new summary of practical solutions useful to family members and professionals.

Jade Angelica shares the wisdom and hope she gleaned from caring for her mother and from many years working closely with Alzheimer's patients and caregivers. Challenging the predominant belief that people with Alzheimer's no longer have purpose, potential, or the capacity for meaningful relationship, Where Two Worlds Touch is both a spiritual memoir and a pastoral guide for those who love someone with Alzheimer's. Readers will find here the reassuring words of a friend who has been there and can give advice on preserving connection, finding hope, self-care, and staying open to the possibility of grace. "Every chaplain, theologian, caregiver, and healthcare professional can find profound truth captured on each page of Where Two Worlds Touch. This is a beautiful book and the deepest I have read on the topic." - Stephen G. Post , author of The Moral Challenge of Alzheimer Disease

In August 2021, Taliban fighters entered the presidential palace in Kabul, ending twenty years of international efforts to build a democratic state in Afghanistan. Did the Taliban’s success rest on coercion and violence alone, or did they win the battle for public support through ideology and better services? Or did most people in the country not believe in the idea of the state at all, trusting only local elders and traditional councils? What is the source of legitimacy during armed conflict? In Waiting for Dignity, Florian Weigand investigates legitimacy and its absence in Afghanistan. Drawing on hundreds of interviews, he examines the perspectives of ordinary people in Afghanistan as well as those of rival claimants to authority: insurgents, warlords, members of parliament, security forces, and community leaders. By exploring how different types of authority attempted to legitimize their rule, Waiting for Dignity challenges common assumptions about how to build legitimacy, such as by delivering services, holding elections, or adopting traditional institutions. Weigand shows that what matters in conflict zones is what he terms interactive dignity: Citizens judge authorities on the basis of their day-to-day experiences with them. People want to be treated with dignity. The extent to which people perceive interactions to be fair, inclusive, and respectful is vital to the construction of lasting order. Combining theoretical originality with in-depth and compelling empirical detail, this book offers timely new insights into recent developments in Afghanistan and the challenges facing conflict-torn areas more widely.

“A heartfelt tale of an exceptional girl.” —BCCB “Poignant…heartwarming.” —School Library Journal Fish in a Tree meets The Thing About Jellyfish in this heartfelt middle grade debut about long-buried secrets, the power of memory, and the bond between a girl and her grandmother. All Lulu Carter wants is to be seen. But her parents are lost in their own worlds, and Lulu has learned the hard way that having something as rare as HSAM—the ability to remember almost every single moment in her life—won’t make you popular in school. At least Lulu has Gram, who knows the truth about Lulu’s memory and loves her all the more for it. But Gram has started becoming absentminded, and the more lost she gets, the more she depends on Lulu…until Lulu realizes her memory holds the very key to fixing Gram’s forgetfulness. Once Lulu learns that trauma can cause amnesia, all she needs to do to cure Gram is hunt down that painful moment in Gram’s life. With her friends Olivia and Max, Lulu digs into Gram’s mysterious past. But they soon realize some secrets should stay buried, and Lulu wonders if she ever knew Gram at all. It’s up to Lulu to uncover the truth before the only person who truly sees her slips away.

"The authors argue for a strong connection between public health and social policies that have boosted access to education; quality health care; cleaner air, soil, and water; and a reduction in Alzheimer's disease and dementia. They question the assumption of many that developing a pharmaceutical cure is the best hope for addressing Alzheimer's"--