Disclosure In Health And Illness

Disclosure is a frequently used but rarely interrogated concept in health and social welfare. Abuse, disability, sexuality and health status can be ‘disclosed’ to peers and professionals, and on some occasions, disclosure is a requirement and not a choice. This innovative collection examines the new social and political implications of disclosure practices in health and illness. We make our identities and our connections with others by sharing life stories, experiences and innermost desires and are often asked to disclose facts about our lives, bodies and minds, at times with unintended consequences. Yet how and what, why and when people ‘disclose’ – and perceive, question and expose – and in what ways, has rarely received critical analytic attention. The contributors take up these problems by foregrounding the many shades of disclosure: from the secret, through the telling of diagnosis, to the more prosaic sharing of narratives from everyday life. The processes and implications of disclosing are addressed in areas such as: illness trajectories and end-of-life decisions; ethical research practices; medical procedures; and interpersonal relationships. Exploring the idea of disclosure as a moral imperative and a social act, this book offers a diverse range of empirical case studies, social theories and methodological insights to show how dominant and normative understandings of social relationships and their obligations shape our understanding of acts of disclosure, enquiry and exposure. It will be of interest to students and academics with an interest in narrative studies, medical anthropology, bioethics, health psychology, health studies and the sociology of health and illness.

Disclosure is a frequently used but rarely interrogated concept in health and social welfare. Abuse, disability, sexuality and health status can be ‘disclosed’ to peers and professionals, and on some occasions, disclosure is a requirement and not a choice. This innovative collection examines the new social and political implications of disclosure practices in health and illness. We make our identities and our connections with others by sharing life stories, experiences and innermost desires and are often asked to disclose facts about our lives, bodies and minds, at times with unintended consequences. Yet how and what, why and when people ‘disclose’ – and perceive, question and expose – and in what ways, has rarely received critical analytic attention. The contributors take up these problems by foregrounding the many shades of disclosure: from the secret, through the telling of diagnosis, to the more prosaic sharing of narratives from everyday life. The processes and implications of disclosing are addressed in areas such as: illness trajectories and end-of-life decisions; ethical research practices; medical procedures; and interpersonal relationships. Exploring the idea of disclosure as a moral imperative and a social act, this book offers a diverse range of empirical case studies, social theories and methodological insights to show how dominant and normative understandings of social relationships and their obligations shape our understanding of acts of disclosure, enquiry and exposure. It will be of interest to students and academics with an interest in narrative studies, medical anthropology, bioethics, health psychology, health studies and the sociology of health and illness.

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/

In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

Each year, more than 33 million Americans receive health care for mental or substance-use conditions, or both. Together, mental and substance-use illnesses are the leading cause of death and disability for women, the highest for men ages 15-44, and the second highest for all men. Effective treatments exist, but services are frequently fragmented and, as with general health care, there are barriers that prevent many from receiving these treatments as designed or at all. The consequences of this are seriousâ€"for these individuals and their families; their employers and the workforce; for the nation's economy; as well as the education, welfare, and justice systems. Improving the Quality of Health Care for Mental and Substance-Use Conditions examines the distinctive characteristics of health care for mental and substance-use conditions, including payment, benefit coverage, and regulatory issues, as well as health care organization and delivery issues. This new volume in the Quality Chasm series puts forth an agenda for improving the quality of this care based on this analysis. Patients and their families, primary health care providers, specialty mental health and substance-use treatment providers, health care organizations, health plans, purchasers of group health care, and all involved in health care for mental and substanceâ€"use conditions will benefit from this guide to achieving better care.

"The premise of the Jewish attitude toward illness is that living is sacred, that good health enables us to live a fully religious life, and that disease is an evil. Any effective therapy is permitted, even if it conflicts with Jewish law. To bring about healing is a responsibility not only of the person who is ill and of the professional caregivers, but also of the loved ones, and of the larger circle of family, friends, and community." "Illness and Health in the Jewish Tradition is an anthology of traditional and modern Jewish writings that highlights these basic principles."--BOOK JACKET.Title Summary field provided by Blackwell North America, Inc. All Rights Reserved

A "one size fits all" approach to health care doesn't work well, especially for America's extremely diverse population. This book provides a lively and accessible discussion of how and why a more flexible and culturally sensitive system of health care can—and must be—achieved. Notable anthropologist George Foster defined the first edition as "a very readable introductory text dealing with the sociocultural aspects of health," adding: "[T]he authors do a commendable job... . I have profited from reading The Cultural Context of Health, Illness, and Medicine". With engaging examples, minimal jargon, and updated scholarship, the second edition of The Cultural Context of Health, Illness, and Medicine offers a comprehensive guide to the practice of culturally sensitive health care. Readers will see America's biomedically dominated health care system in a new light as the book reveals the changes wrought by increasing cultural diversity, technological innovation, and developments in care delivery. Written by a sociologist and an anthropologist with direct, hands-on experience in the health services, the volume tracks culture's influence on and relationship to health, illness, and health-care delivery via an examination of social structure, medical systems, and the need for—and challenges to—culturally sensitive care. Cultural differences are situated against social-class differences and related health inequities, as well as different needs and challenges throughout the life course. In prescribing caring that is more holistic, culturally sensitive, and cost-effective, the work promotes awareness of pressing issues for health care professionals—and the people they serve.

Collaborations of physicians and researchers with industry can provide valuable benefits to society, particularly in the translation of basic scientific discoveries to new therapies and products. Recent reports and news stories have, however, documented disturbing examples of relationships and practices that put at risk the integrity of medical research, the objectivity of professional education, the quality of patient care, the soundness of clinical practice guidelines, and the public's trust in medicine. Conflict of Interest in Medical Research, Education, and Practice provides a comprehensive look at conflict of interest in medicine. It offers principles to inform the design of policies to identify, limit, and manage conflicts of interest without damaging constructive collaboration with industry. It calls for both short-term actions and long-term commitments by institutions and individuals, including leaders of academic medical centers, professional societies, patient advocacy groups, government agencies, and drug, device, and pharmaceutical companies. Failure of the medical community to take convincing action on conflicts of interest invites additional legislative or regulatory measures that may be overly broad or unduly burdensome. Conflict of Interest in Medical Research, Education, and Practice makes several recommendations for strengthening conflict of interest policies and curbing relationships that create risks with little benefit. The book will serve as an invaluable resource for individuals and organizations committed to high ethical standards in all realms of medicine.