Elegy For A Disease

During the first half of the twentieth century, epidemics of polio caused fear and panic, killing some who contracted the disease, leaving others with varying degrees of paralysis. The defeat of polio became a symbol of modern technology's ability to reduce human suffering. But while the story of polio may have seemed to end on April 12, 1956, when the Salk vaccine was declared a success, millions of people worldwide are polio survivors. In this dazzling memoir, Anne Finger interweaves her personal experience with polio with a social and cultural history of the disease. Anne contracted polio as a very young child, just a few months before the Salk vaccine became widely available. After six months of hospitalization, she returned to her family's home in upstate New York, using braces and crutches. In her memoir, she writes about the physical expansiveness of her childhood, about medical attempts to "fix" her body, about family violence, job discrimination, and a life rich with political activism, writing, and motherhood. She also writes an autobiography of the disease, describing how it came to widespread public attention during a 1916 epidemic in New York in which immigrants, especially Italian immigrants, were scapegoated as being the vectors of the disease. She relates the key roles that Franklin Roosevelt played in constructing polio as a disease that could be overcome with hard work, as well as his ties to the nascent March of Dimes, the prototype of the modern charity. Along the way, we meet the formidable Sister Kenny, the Australian nurse who claimed to have found a revolutionary treatment for polio and who was one of the most admired women in America at mid-century; a group of polio survivors who formed the League of the Physically Handicapped to agitate for an end to disability discrimination in Depression-era relief projects; and the founders of the early disability-rights movement, many of them polio survivors who, having been raised to overcome obstacles and triumph over their disabilities, confronted a world filled with barriers and impediments that no amount of hard work could overcome. Anne Finger writes with the candor and the skill of a novelist, and shows not only how polio shaped her life, but how it shaped American cultural experience as well.

"I was living in a fairy story--the kind with sinister overtones and not always a happy ending--in which a young man loves a beautiful maiden who returns his love but is always disappearing into some unknown and mysterious world, about which she will reveal nothing." So John Bayley describes his life with his wife, Iris Murdoch, one of the greatest contemporary writers in the English-speaking world, revered for her works of philosophy and beloved for her incandescent novels. In Elegy for Iris, Bayley attempts to uncover the real Iris, whose mysterious world took on darker shades as she descended into Alzheimer's disease. Elegy for Iris is a luminous memoir about the beauty of youth and aging, and a celebration of a brilliant life and an undying love.

Winner of the 2010 Bancroft Prize and finalist for the 2009 Los Angeles Times Book Prize in Biography: The definitive biography of a heroic chronicler of America's Depression and one of the twentieth century's greatest photographers. We all know Dorothea Lange's iconic photos—the Migrant Mother holding her child, the shoeless children of the Dust Bowl—but now renowned American historian Linda Gordon brings them to three-dimensional life in this groundbreaking exploration of Lange's transformation into a documentarist. Using Lange's life to anchor a moving social history of twentieth-century America, Gordon masterfully re-creates bohemian San Francisco, the Depression, and the Japanese-American internment camps. Accompanied by more than one hundred images—many of them previously unseen and some formerly suppressed—Gordon has written a sparkling, fast-moving story that testifies to her status as one of the most gifted historians of our time. Finalist for the Los Angeles Times Book Prize; a New York Times Notable Book; New Yorker's A Year's Reading; and San Francisco Chronicle Best Book.

Since the 1860s, long before scientists put a name to Alzheimer’s disease, Canadian authors have been writing about age-related dementia. Originally, most of these stories were elegies, designed to offer readers consolation. Over time they evolved into narratives of gothic horror in which the illness is presented not as a normal consequence of aging but as an apocalyptic transformation. Weaving together scientific, cultural, and aesthetic depictions of dementia and Alzheimer’s disease, Forgotten asserts that the only crisis associated with Canada’s aging population is one of misunderstanding. Revealing that turning illness into something monstrous can have dangerous consequences, Marlene Goldman seeks to identify the political and social influences that have led to the gothic disease model and its effects on society. Examining the works of authors such as Alice Munro, Michael Ignatieff, Jane Rule, and Caroline Adderson alongside news stories and medical and historical discussions of Alzheimer’s disease, Goldman provides an alternative, person-centred perspective to the experiences of aging and age-related dementia. Deconstructing the myths that have transformed cognitive decline into a corrosive fantasy, Forgotten establishes the pivotal role that fictional and non-fictional narratives play in cultural interpretations of disease.

This volume in The SAGE Reference Series on Disability explores the arts and humanities within the lives of people with disabilities. It is one of eight volumes in the cross-disciplinary and issues-based series, which incorporates links from varied fields making up Disability Studies as volumes examine topics central to the lives of individuals with disabilities and their families. With a balance of history, theory, research, and application, specialists set out the findings and implications of research and practice for others whose current or future work involves the care and/or study of those with disabilities, as well as for the disabled themselves. The presentational style (concise and engaging) emphasizes accessibility. Taken individually, each volume sets out the fundamentals of the topic it addresses, accompanied by compiled data and statistics, recommended further readings, a guide to organizations and associations, and other annotated resources, thus providing the ideal introductory platform and gateway for further study. Taken together, the series represents both a survey of major disability issues and a guide to new directions and trends and contemporary resources in the field as a whole.

This edited volume includes studies of discourses about bodily and psychiatric illness in modern China, bringing together scholarships that reconfigure the fields of history, literature, film, psychology, anthropology, and gender studies by tracing the pathological path of China through the nineteenth and twentieth centuries into the new millennium.

A tribute to author Iris Murdoch, now stricken with Alzheimer's disease, written by her husband of over forty years, in which he discusses their passionate love relationship and traces the progression of her affliction.

Poliomyelitis, better known as polio, thoroughly stumped the medical science community. Polio's impact remained highly visible and sometimes lingered, exacting a priceless physical toll on its young victims and their families as well as transforming their social worlds. This social history of infantile paralysis is plugged into the rich and dynamic developments of the United States during the first half of the twentieth century. Children became epidemic refugees because of anachronistic public health policies and practices. They entered the emerging, clinical world of the hospital, rupturing physical and emotional connections with their parents and siblings. As they underwent rehabilitation, they created ward cultures. They returned home to occasionally find hostile environments and always discover changed relationships due to their disabilities. The changing concept of the child, from an economic asset to an emotional commitment, medical advances, and improved sanitation policies led to significant improvements in child health and welfare. This study, relying on published autobiographies, memoirs, and oral histories, captures the impact of this disease on children's personal lives, encompassing public-health policies, hospitalization, philanthropic and organizational responses, physical therapy, family life, and schooling. It captures the anger, frustration, and terror not only among children but parents, neighbors, and medical professionals alike.