Emergency Research Ethics

The essays selected for this volume focus on issues that arise when attempting to design, review and undertake research involving human participants who are experiencing a private or public emergency. The main themes discussed by the essays are: the distinctive and significant ethical questions as to how research participants can be treated during emergency settings; the ethical challenges raised by emergencies for researchers undertaking research and its effects on the nature of research pursued; and procedural obstacles raised by emergencies which can affect the quality of good research ethics review. The volume is unique in that it is the first collection to exclusively deal with all of the central ethical aspects of conducting human subject research in the context of emergency.

The essays selected for this volume focus on issues that arise when attempting to design, review and undertake research involving human participants who are experiencing a private or public emergency. The volume is unique in that it is the first collection to exclusively deal with all of the central ethical aspects of conducting human subject research in the context of emergency.

Emergency Ethics brings together leading scholars in the fields of public health ethics and bioethics to discuss disaster or emergency ethics and ethical aspects of preparedness and response with specific application to public health policy and practice. The book fills a gap in the existing public health ethics literature by providing a comprehensive ethical conception of emergency preparedness as a distinctive form of civic practice brought about by the interrelationships and coordination of many groups, disciplines, and interests and drawing on numerous bodies of knowledge and expertise. It addresses particular aspects of preparedness and response plans, particular decisions that planners and communities have to make, decisions that require balancing many diverse and sometimes conflicting values and identifying and applying a framework of basic ethical principles for preparedness planning, emergency response, and post-disaster recovery. It also explores the relationship between emergency preparedness to other facets of public health practice. The book begins with a broad and synthetic overview of emergency ethics that addresses the central components and ethically significant issues arising in public health preparedness planning, disaster response, and recovery. Following that overview are five chapters that in a philosophically innovative and detailed way delve deeply into important and problematic issues in emergency planning and response, including the allocation of scarce resources, conducting ethical research in the context of public health emergencies, the obligations of public health professionals, communication and engagement with the public, and special moral obligations surrounding vulnerable populations.

Emergencies are extreme events which threaten to cause massive disruption to society and negatively affect the physical and psychological well-being of its members. They raise important practical and theoretical questions about how we should treat each other in times of ’crisis’. The articles selected for this volume focus on the nature and significance of emergencies; ethical issues in emergency public policy and law; war, terrorism and supreme emergencies; and public health and humanitarian emergencies. Together they demonstrate the normative implications of emergencies and provide multi-disciplinary perspectives on the ethics of emergency response.

Situations involving conflict and forced migration have become increasingly commonplace in today's world. The need to understand the causes, consequences, and characteristics of these situations is creating a burgeoning field of research. But given the nature of complex emergency settings, traditional research guidelines may be inappropriate. The research and policy community has recognized this problem and has begun to address issues surrounding the ethics of doing research in emergency settings and among conflict-affected and displaced populations. The Roundtable on the Demography of Forced Migration, under the aegis of the Committee on Population of the National Research Council, held a workshop to examine some of these issues. This report to the roundtable summarizes the workshop presentations and discussion.

1. General Introduction -- 2. Unique Aspects of Ethics in Emergency Medicine -- 3. Legal Setting of Emergency Medicine -- 4. What is Ethics? -- 5. An Approach to Ethical Problems in Emergency Medicine -- 6. Autonomy and Informed Consent -- 7. Education and Research -- 8. Privacy and Confidentiality -- 9. Life-Sustaining Treatment - Emergency Department -- 10. Life-Sustaining Treatment - Prehospital -- 11. Professional Relations -- 12. Allocation of Health Care Resources -- 13. Quality of Care -- 14. Threatening Situations -- 15. Ethical Statements - Overview -- Appendix. Prehospital Advance Directives.

The Oxford Textbook of Clinical Research Ethics is the first comprehensive and systematic reference on clinical research ethics. Under the editorship of experts from the U.S. National Institutes of Health of the United States, the book's 73 chapters offer a wide-ranging and systematic examination of all aspects of research with human beings. Considering the historical triumphs of research as well as its tragedies, the textbook provides a framework for analyzing the ethical aspects of research studies with human beings. Through both conceptual analysis and systematic reviews of empirical data, the contributors examine issues ranging from scientific validity, fair subject selection, risk benefit ratio, independent review, and informed consent to focused consideration of international research ethics, conflicts of interests, and other aspects of responsible conduct of research. The editors of The Oxford Textbook of Clinical Research Ethics offer a work that critically assesses and advances scholarship in the field of human subjects research. Comprehensive in scope and depth, this book will be a crucial resource for researchers in the medical sciences, as well as teachers and students.