Enabling People With Dementia

This new updated edition challenges the perceptions, beliefs and attitudes of professionals working in dementia care settings by drawing on the theory of person-centred care. It demonstrates the importance of this theory for interacting with and caring for people with dementia. It also provides an overview of the theory in relation to two other well-known theories on dementia, and stresses the need to consider the world from the perspective of people with dementia. Moreover, the book examines the importance of dementia care environments, positive interactions, meaningful activities and the concept of personhood, which are all essential to improving the health and wellbeing of people living with dementia. In closing, it underscores the need to remember that the focus of care should be on maximizing the person’s abilities, enabling them, and promoting person-centred care. Given its content and style, the book offers a resource that can be read and understood by health and social care professionals alike, as well as anyone else caring for someone with dementia, including family members and carers.

This book presents the latest research that shows how design thinking, making, and acting contribute to the co-designing and development of products, spaces, and services with people living with dementia. We know that there is currently no cure for the 130+ kinds of dementia that millions of people live with all over the world, but the designed interventions such as the products, spaces, and services described in this book can address stigma, isolation, loss of confidence, and raise awareness and greater understanding of dementia. This book showcases a range of innovative and creative design interventions that have been developed to break the cycle of well-established opinions, strategies, mindsets, and ways of doing that tend to remain unchallenged in the health and social care of people living with dementia. The book will be of interest to scholars working in product design, service design, experience design, architecture, design research, information design, user-centred design, and design for health.

Dementia is both a personal and a societal challenge. The goal of Dementia Care: A Practical Approach is to focus on how practitioners can meet this challenge with hope and compassion, thereby enabling those with dementia to live well. The book takes a ‘strengths approach’ with an emphasis on exploring sustainable strategies. Its content is underpinned by relevant policies and strategies and explicitly links to research evidence while always valuing the voices of those living with dementia. Covering various dementia strategies, the book provides a clear vision of dementia care delivery and is mapped to the Curriculum for UK Dementia Education. For health care students, the content is also mapped to the requirements of the Health and Care Professions Council and the Nursing and Midwifery Council. The book includes experiences of people living with dementia, practical examples, self-assessment questions, and key point summaries. It is a valuable resource to practitioners, informal caregivers, families, individuals with dementia or those wanting to know more about the subject.

Life at Home for People with a Dementia provides an evidence-based and readable account of improving life at home for people with a dementia and their families. There are estimated to be 47 million people with a dementia worldwide, the majority of whom will live, or want to live, in their own home. Yet there is a major shortcoming in available knowledge on what life is like for people with a dementia living at home. Most research focuses on care in hospitals or care homes, and takes a medical perspective. This book bridges this gap in knowledge by providing a comprehensive and critical overview of the best available evidence on enabling people with a dementia to live well at home from the viewpoint of those living with the condition, and in the context of global policy drivers on ageing and health, as well as technological advances. The book includes chapters on citizenships – that is, the diversity of people living with a dementia – enabling life at home, rethinking self-management, the ethics and care of people with a dementia at home, technological care and citizenship, and sharing responsibilities. It concludes with a care manifesto in which we set out a vision for improving life at home for people with a dementia that covers the areas of professional practice, education and care research. By covering a wide range of interrelated topics to advance understanding and practice as to how people with a dementia from diverse backgrounds can be supported to live well at home, this book provides a synthesised, critical and readable understanding of the complexities and risks involved.

Questo è il principale messaggio del libro che viene presentato attraverso la descrizione di alcuni progetti basati sull'Enabling approach per le persone con demenza: Wellcoming Project, for newly admitted residents in Nursing Homes; ABC Group Project, for caregivers; Museum Project, for persons with dementia.

Old age is currently the greatest risk factor for developing dementia. Since older people make up a larger portion of the population than ever before, the resulting increase in the incidence of dementia presents a major challenge for society. Dementia is complex and multifaceted and impacts not only the person with the diagnosis but also those caring for them and society as a whole. Human-Computer Interaction (HCI) design and development are pivotal in enabling people with dementia to live well and be supported in the communities around them. HCI is increasingly addressing the need for inclusivity and accessibility in the design and development of new technologies, interfaces, systems, services, and tools. Using interdisciplinary approaches HCI engages with the complexities and ‘messiness’ of real-world design spaces to provide novel perspectives and new ways of addressing the challenge of dementia and multi-stakeholder needs. HCI and Design in the Context of Dementia brings together the work of international experts, designers and researchers working across disciplines. It provides methodologies, methods and frameworks, approaches to participatory engagement and case studies showing how technology can impact the lives of people living with dementia and those around them. It includes examples of how to conduct dementia research and design in-context in the field of HCI, ethically and effectively and how these issues transcend the design space of dementia to inform HCI design and technology development more broadly. The book is valuable for and aimed at designers, researchers, scholars and caregivers that work with vulnerable groups like people with dementia, and those directly impacted.

The ebook edition of this title is Open Access and is freely available to read online. This book systematically explores and assesses the quality of the evidence base for effective and supportive design of living environments for people living with Dementia.