From Cfs With Love

From the black pit of despair and chronic illness, to searching for solutions through trial and error then finally healing her health challenges. In this ground breaking book, Karyl M. Sanchez, an allied health professional, presents her personal research. In this workbook youll discover: Four main techniques that have had a huge impact on the release of Karyls chronic fatigue syndrome symptoms, fibromyalgia and chemical sensitivities. The implementation of these techniques as well as how to manage acute symptoms and the occasional setbacks. How to create your own personal health plan, complete with exercises. The therapies, products, techniques, hints and ideas that have progressed Karyls journey to good health. I found myself putting this book together with the hope of making a difference in helping people like me heal. I did it. You can too!

The onset can be fast and shocking or slow and insidious. It can happen to anyone at any age. A flu, a vaccination, or an infection can be the innocent beginnings to the potentially life-long and disabling illness called myalgic encephalomyelitis (ME), which is more commonly known as chronic fatigue syndrome (CFS) or ME/CFS in North America. In the mid 1980s, the U.S. Centers for Disease Control (CDC) was called in by concerned doctors who were witnessing an influx of patients with a mysterious illness. Eventually the CDC labeled the condition “chronic fatigue syndrome” which turned out to be very misleading. Decades later, in 2016, health agencies are finally beginning to agree with international experts that ME/CFS is a serious, chronic, multi-system illness. Through artwork, poetry, story-telling, and meticulous research, Lighting Up a Hidden World: CFS and ME takes readers into the fascinating, yet frightening, landscape of ME/CFS. Author Valerie Free shares her personal experiences and delivers illuminating first-hand perspectives from patients, caregivers, journalists, and medical professionals from within the global community in short easy-to-read segments. These stories reveal the disgrace, controversy, and tragedy of worldwide neglect by political and health care systems, leaving ME/CFS research underfunded and millions of people marginalized, sick, and socially unsupported. Lighting Up a Hidden World: CFS and ME advocates for those too ill to speak out, abounds with patient resources, and offers realistic hope for the future. People living with this illness, along with their family and friends, will find compassion and camaraderie in its pages. This book reaches beyond the ME/CFS community exposing the themes of human suffering, resilience, and the need for social change.

Love and Fatigue in America records an Englishman’s decade-long journey through his newly adopted country in the company of a mystifying illness and a charismatic dog. When he receives an unexpected invitation from an unfamiliar American university, he embraces it as a triumphant new beginning. Instead, on arrival, he is stricken with a persistent inability to stand up or think straight, and things quickly go wrong. Diagnosed with ME disease—chronic fatigue syndrome—he moves restlessly from state to state, woman to woman, and eccentric doctor to eccentric doctor, in a search for a love and a life suited to his new condition. The journey is simultaneously brave, absurd, and instructive. Finding himself prostrate on beds and couches from Los Alamos to Albany, he hears the intimate stories offered by those he encounters—their histories, hurts, and hopes—and from these fragments an unsentimental map emerges of the inner life of a nation. Disability has shifted his interest in America from measuring its opportunities to taking the measure of its humanity. Forced to consider for himself the meaning of a healthy life and how best to nurture it, he incidentally delivers a report on the health of a country. By turns insightful, comic, affecting, and profound, Roger King’s Love and Fatigue in America briskly compresses an illness, a nation, and an era through masterly blending of literary forms. In a work that defies categorization, and never loses its pace or poise, the debilitated narrator is, ironically, the most lively and fully awake figure in the book. “Remarkable. . . . [S]mart and funny. . . .[A]musing observations about everything American. . . . [T]his is not a traditional novel. . . . [T]his, as it turns out, is a brilliant perspective from which to view and write about life. . . . [G]reat reckonings unfurl in mere paragraphs.”—Jackson Newspapers.com “As the disease drives the narrator city to city, woman to woman, and doctor to doctor, it brings into relief many of America’s follies and excesses, most notably our health-care system, which King portrayed as antiquated, bureaucratic, and inhumane. After more than fifteen years, America brings the narrator ‘not aspiration realized, nor a largeness of life fitting to its open spaces, but the nascent ability to be satisfied with less.’”—The New Yorker

You’ve been repeatedly poked, prodded, tested and scanned, yet, despite how awful you feel, your doctor, like many of your friends, co-workers, and family members have begun dropping subtle (and some not-so-subtle) hints that they think it’s “all in your head.” Maybe you’re one of the lucky few CFS sufferers who’ve received an accurate diagnosis but nothing your health care provider does seems to help. Well, you’re not alone. According to recent estimates, of the approximately 800,000 Americans with CFS, more than 90% have been misdiagnosed, dismissed, or are not receiving proper treatment. Don’t despair, help has arrived. Written by a national expert who has successfully treated scores of CFS patients in her own practice, Chronic Fatigue Syndrome for Dummies gives you the knowledge and tools you need to beat CFS and get back to living a normal life. In plain English Doctor Susan Lisman fills you in on: What CFS is, how you get it, and how it effects your body Its major symptoms and warning signs Getting an accurate diagnosis Avoiding situations that might be making you sicker Teaming up with the right doctor and crafting a treatment plan The most effective drugs, therapies and alternative approaches Coping with CFS in your personal and professional lives Packed with checklists, self-tests, questionnaires, and other powerful tools, and featuring many inspiring real-life stories of patients who’ve licked CFS, Chronic Fatigue Syndrome for Dummies puts you on the road to recovery.

People with Chronic Fatigue Syndrome (CFS)/ME experience extreme tiredness and a range of other symptoms, including pain, headaches, impaired concentration and memory, anxiety, sleep problems, and palpitations. The condition can affect all areas of a sufferer's life and, in turn, the lives of those who are close to them. This book provides the families and friends of people with CFS/ME with an accessible introduction to the condition, and explains what can be done to support those who have it. It offers useful advice on how to help a loved one cope with the illness, and suggests ways to help them with everyday issues such as personal hygeine, nutrition, finances, and relationships. Recognising that coping with the impact of CFS/ME can be just as difficult for the relatives and friends of those with the condition, it addresses the emotional, social, and practical aspects of having a loved one with CFS/ME, explains how to understand the changes in their relationship with the sufferer, how to manage stress, and where to go for further help and support. The book also includes detailed case studies and practical advice from a wide range of people with mild, moderate, and severe CFS/ME, and their loved ones. This book offers much-needed information and support to the friends, families, and carers of people with CFS/ME. It will also be a useful resource for health professionals who wish to deepen their understanding of CFS/ME, including home helps, care staff, counsellors, therapists, doctors, and nurses.

Develop a better understanding of what CFS/CFIDS sufferers are going through! In the 1980s, a strange emerging epidemic baffled doctors in Incline Village, Nevada. Dismissed by the media as “The Yuppie Flu,” Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) turned out to be neither a faddish disease of the wealthy nor a passing trend, but rather a growing worldwide epidemic of devastating proportions. In the voices of a South African journalist, a former marathon runner, a teenage girl, a public health activist living on the edge of race and gender, a cancer patient neglected by doctors because of disdain for her chronic illness, and a theologian relearning the art of spiritual empathy, the people who share their stories in Stricken: Voices from the Hidden Epidemic of Chronic Fatigue Syndrome defy cultural stereotypes and explore the complex social and political dynamics of this hidden epidemic. Through their distinct points of view, we feel the grief and hope of those stricken with CFIDS and learn of the complex nature of this misunderstood disorder. These are compelling stories about a quiet and baffling epidemic. The first American anthology to contain stories from a diverse range of people with CFIDS, Stricken offers an intimate look at the political and social issues surrounding CFIDS, as told by those who are living through this ordeal. Stricken addresses several issues, such as: why some doctors still do not believe CFIDS is real how the disease is mocked in the media myths about this illness the personal fight for medical or public recognition the skepticism and hope that is felt by the ever-growing number of CFIDS sufferers Stricken confronts fascinating CFIDS issues such as the Kevorkian suicides, accusations of Munchausen Syndrome By Proxy, Gulf War Syndrome, the role of storytelling in a memory-impaired patient movement, and the feasibility of mass activism in a disabled population. With contributions from Pulitzer-prize nominated writer Susan Griffin, renowned health writer and radio host Gary Null, well-known feminist activist Joan Nestle, and award-winning poet and essayist Floyd Skloot, Stricken is an eloquent testament to the heroism, defiance, and diversity of the CFIDS community.

A guide to coping with fibromyalgia, myofascial pain, and chronic fatigue syndrome • Reveals how to deal with each disorder and how treatments can interact or aggravate if more than one disorder is present • Offers techniques to dispel the side effects created by these illnesses Fibromyalgia, chronic myofascial pain, and chronic fatigue syndrome are often seen as interchangeable conditions, a belief held even by many health care providers. Nothing could be further from the truth--however, they do often coexist. Knowing if more than one of these disorders is present is extremely important because the treatment for one of them can often exacerbate the problems caused by the others. Written by a registered nurse and a psychologist who has been treating these conditions since 1994, this book presents an integrative medical approach to these three disorders with a strong emphasis on utilizing and strengthening the mind-body connection to restore well-being. The authors provide a thorough guide to numerous treatment options--from diet, exercise, and herbs to mindfulness meditation, chi kung, and nonsteroidal anti-inflammatory drugs (NSAIDs). They also offer techniques to dispel the “brain fog” that these disorders often create and show how to overcome the resultant obstacles to effectively communicating with your doctor. The additional information included on the psychological issues that accompany these chronic pain disorders allows this integrative treatment guide to open the door not only to physical recovery but also emotional and mental well-being.

Drawing on cutting-edge science, this empowering book teaches solution-focused approaches to overcoming Chronic Fatigue Syndrome and Myalgic Encephalomyelitis through world-renowned Emotional Freedom Techniques.