Frontotemporal Disorders Information For Patients Families And Caregivers Revised February 2017

Few people have heard of frontotemporal disorders, which lead to dementias that affect personality, behavior, language, and movement. These disorders are little known outside the circles of researchers, clinicians, patients, and caregivers who study and live with them. Although frontotemporal disorders remain puzzling in many ways, researchers are finding new clues that will help them solve this medical mystery and better understand other common dementias. The symptoms of frontotemporal disorders gradually rob people of basic abilities?thinking, talking, walking, and socializing?that most of us take for granted. They often strike people in the prime of life, when they are working and raising families. Families suffer, too, as they struggle to cope with the person's daily needs as well as changes in relationships and responsibilities.

A low-cost print edition of a government publication available online. This booklet is designed to help people with frontotemporal disorders and their families learn more about these conditions and resources for coping. The publication provides detailed information about the three major types of frontotemporal disorders: progressive behavior/personality decline (such as Pick's disease), progressive language decline (including primary progressive aphasia), and progressive motor decline. Common symptoms, causes, and diagnosis are discussed. Information about the treatment and management of these disorders, with practical advice for both people with frontotemporal disorders and their caregivers, is provided. Sources of additional information are included.

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

This vitally important book attempts to move beyond the current death-denying culture. The use of euphemistic and defiant phrases when dealing with terminal disease such as “She lost her battle with cancer” was more appropriate when medical doctors could do little to prolong life. But treatments and technologies have significantly changed. Now life prolonging interventions have outpaced our willingness to use medical intervention to secure patient control over death and dying. We now face a new question: When is it morally appropriate for medical intervention to hasten the dying process? LiPuma and DeMarco answer by endorsing expanded options for dying patients. Unwanted aggressive treatment regimens and protocols which reject hastening death should be replaced by a patient’s moral right, in carefully defined circumstances, to hasten death by means of medical intervention. Expanded options range from patient directed continuous sedation without hydration to physician assisted suicide for those with progressive degenerative disorders such as Alzheimer’s. The authors’ overriding goal is to humanize the dying process by expanding patient centered autonomous control.

Medicine in a Day: Revision Notes for Medical Exams, Finals, UKMLA and Foundation Years covers all conditions in the UK Medical Licensing Assessment and more, within just one book! Prepared by a unique combination of authors – including early career stage doctors still close to what is required for exam success, expert educators and senior specialists – Medicine in a Day provides the trusted information you need most when time is short. Each chapter can be read in an hour, covering the medical and surgical specialties, Radiology, Anaesthetics and Critical Care, Emergency Medicine, Paediatrics, Obstetrics and Gynaecology, Psychiatry, Infectious Diseases, Clinical Epidemiology, commonly prescribed medications and more. The essential knowledge for each topic is presented simply and concisely, supported by bespoke illustrations. A large, carefully selected image collection reflects the views most commonly seen in exams, and includes X-rays, ECGs, CTs and clinical photographs, with dermatological conditions shown for diverse skin tones. Reach for Medicine in a Day when you need to study efficiently, prepare for medical exams, or refresh your memory at any stage of your career. The (printed) book also comes with access to the complete, downloadable eBook version, for easy quick reference, anytime, anywhere!

Although the public most often associates dementia with Alzheimer’s disease, the medical profession continues to advance distinctions of various types of “other” dementias. What If It’s Not Alzheimer’s? is the first and remains the only comprehensive guide dealing with frontotemporal degeneration (FTD), the most common form of dementia for people under 60 years of age. The contributors are either specialists in their fields or have exceptional hands-on experience with FTD sufferers. Beginning with a focus on the medical facts, the first part defines and explores FTD as an illness distinct from Alzheimer's disease. Also considered are clinical and medical care issues and practices, as well as such topics as finding a medical team, palliative approaches to managing care and rehabilitation interventions. The next section on managing care examines the daily care routine including exercise, socialization, adapting the home environment, and behavioral issues along with end-of-life concerns. In the following section on caregiver resources, the contributors identify professional and government assistance programs along with private and community resources and legal options. The final section focuses on the caregiver, in particular the need for respite, holistic health practices and the challenge of managing emotions. This new, completely revised edition continues to follow worldwide collaboration in research and provides the most current medical information available including understanding of the different classifications of FTD, and more clarity regarding the role of genetics. Additionally, essays written by people living with the disease provide moving, first-hand experiences. The wealth of information offered in these pages will help both healthcare professionals and caregivers of someone suffering from frontotemporal degeneration.

Social isolation and loneliness are serious yet underappreciated public health risks that affect a significant portion of the older adult population. Approximately one-quarter of community-dwelling Americans aged 65 and older are considered to be socially isolated, and a significant proportion of adults in the United States report feeling lonely. People who are 50 years of age or older are more likely to experience many of the risk factors that can cause or exacerbate social isolation or loneliness, such as living alone, the loss of family or friends, chronic illness, and sensory impairments. Over a life course, social isolation and loneliness may be episodic or chronic, depending upon an individual's circumstances and perceptions. A substantial body of evidence demonstrates that social isolation presents a major risk for premature mortality, comparable to other risk factors such as high blood pressure, smoking, or obesity. As older adults are particularly high-volume and high-frequency users of the health care system, there is an opportunity for health care professionals to identify, prevent, and mitigate the adverse health impacts of social isolation and loneliness in older adults. Social Isolation and Loneliness in Older Adults summarizes the evidence base and explores how social isolation and loneliness affect health and quality of life in adults aged 50 and older, particularly among low income, underserved, and vulnerable populations. This report makes recommendations specifically for clinical settings of health care to identify those who suffer the resultant negative health impacts of social isolation and loneliness and target interventions to improve their social conditions. Social Isolation and Loneliness in Older Adults considers clinical tools and methodologies, better education and training for the health care workforce, and dissemination and implementation that will be important for translating research into practice, especially as the evidence base for effective interventions continues to flourish.