How To Talk With Family Caregivers About Cancer

Cancer affects not only the patient, but all their loved ones as well. This book will guide professionals on issues critical to effectively and compassionately counseling caregivers and other family members, from dealing with their feelings of grief and despair and realistically fostering hope, to helping them provide emotional and practical support to the patient during the illness and treatment.

Every day, thousands of people are diagnosed with cancer or other life-threatening illnesses. Despite the best of intentions, it is not always easy to communicate well under these circumstances or find deep empathy for something one has never experienced. When is it best to speak, and when to be silent? How can someone provide real comfort, and how can relationships with loved ones facing serious illness be enhanced in this most difficult time? Written by a psychosocial oncologist and psychologist-theologian, The Art of Conversation in Cancer Care: Lessons for Caregivers offers practical suggestions for health professionals, families, and friends about talking to one who has cancer. This revised and updated second edition is organized around the themes of mortal time and healing conversation with cancer patients and their caregivers. Mortal time is not so much a specific period, but rather, the psychological experience encountering mortality that often accompanies the diagnosis of cancer. The first section of the book articulates the many ways people experience mortal time, including a range of adaptive and less adaptive methods. Next, the basic elements of healing conversation are delineated, with an emphasis on the hope that can spring from talking with a trusted companion. Empathy, listening carefully, and responding thoughtfully and compassionately are discussed. In the final section, the authors offer guidance for caregivers. This section includes material on the risks and costs of companionship as well as personal virtues that help a person navigate the demands of mortal time with their loved one. The authors discuss resilience and the consequences of absorbing suffering including empathy shift where the cancer caregiver becomes less empathic with minor illnesses in others. They conclude with the power of healing conversation in mortal time as a source of hope. Throughout, numerous patient vignettes illustrate the art of conversation in cancer medicine.

When Someone You Love Has Advanced Cancer is a booklet for friends and family members taking care of a person with advanced cancer. This booklet covers making new decisions about care, how to discuss issues and changes with the health care team, getting support and asking for help, life planning and advance directives, talking with family and friends, talking with children and teens about advanced cancer, communicating with your loved one who has cancer, and tips on caring for both your physical and emotional self. Related products: Caring for the Caregiver: Support for Cancer Caregivers – ePub format only – ISBN: 9780160947520 Children with Cancer: A Guide for Parents -- ePub format only -- ISBN: 9780160947537 Coping with Advanced Cancer: Support for People with Cancer -- ePub format only ISBN: 9780160947544 Eating Hints: Before, during and after Cancer Treatment -- ePub format only --ISBN: 9780160947551 Life After Cancer Treatment: Facing Forward -- ePub format only -- ISBN: 9780160947568 Pain Control: Support for People with Cancer -- ePub format only -- ISBN: 9780160947575 Radiation Therapy and You: Support for People with Cancer --ePub format only -- ISBN: 9780160947582 Surgery Choice for Women with DCIS and Breast Cancer -- ePub format only -- ISBN: 9780160947599 Taking Part in Cancer Research Studies --ePub format only -- ISBN: 9780160947605 Understanding Breast Changes: A Health Guide for Women --ePub format only -- ISBN: 9780160947612 Understanding Cervical Changes: A Health Guide for Women -- ePub format only -- ISBN: 9780160947629 When Cancer Returns: Support for People with Cancer -- ePub format only -- ISBN: 9780160947636 When Someone You Love Has Completed Cancer Treatment: Facing Forward --ePub format only -- ISBN: 9780160947650 When Someone You Love Is Being Treated for Cancer: Support for Caregivers --ePub format only -- ISBN: 9780160947667 When Your Brother or Sister Has Cancer: A Guide for Teens --ePub format only -- ISBN: 9780160947674 When Your Parent Has Cancer: A Guide for Teens -- ePub format only -- ISBN: 9780160947681

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/

Family caregivers are the unsung heroes of the life-saving drama that's triggered by a cancer diagnosis. Nearly three quarters of American households will find themselves caring for a cancer patient at one point in their lives. This book is the first to capture their thoughts, feelings, and insights on a large scale. It is based on 101 formal interviews with non-professional caregivers (some of whom are cancer survivors themselves), covering 122 patients in 19 states and Canada who ranged in age from 2 to 92 and faced 40 different cancer diagnoses. Practical lessons drawn from caregivers' experiences are intermingled with their own words to forge a compelling narrative intended to help both patients and their family caregivers to understand and cope with the full range of issues they should anticipate as they fight the battle of their lives.

"Caring for the Family Caregiver is an extensive practical tool kit for health care providers across the healthcare continuum. Regardless if it is a mother caring for a child with a developmental disability, a wife caring for a husband with a long term chronic illness, or a daughter sitting at the bedside of her father who is enrolled in hospice, family caregivers are the silent "other patient" in the health care drama. Healthcare providers who do not attend to the needs of the caregiver not only inflict interactional suffering, but dilute their treatment by not engaging the caregiver as a partner. In fact, they may unintentionally do harm as the caregiver flounders and thus patient treatment fails. As noted by one dying cancer patient in an educational YouTube video of his cancer journey, "there are two patients not one." If we are to eliminate the interactional suffering experienced by family caregivers, we must train both the caregiver and the health care team for the important interaction and roles that are required for the successful care of the patient. Caregivers lack information, skills, and emotional support for the tireless task they are volunteering for. They need to be taught how to advocate for themselves and their patients and how to best communicate with the health care team. Likewise, health care providers have the skills and knowledge to provide outstanding patient centered care; however, they are not taught the importance of the family caregiver, nor do they always understand that experience or how to help"--

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

This book is the product of the authors’ research and clinical practice in the field of psycho-oncology, stress, and coping for a period of over twenty years. It fills a gap that exists in the discussion of caregiver distress felt by both cancer researchers and psycho-oncologists in the vital area of predicting, acknowledging, and alleviating the distress of caregivers of cancer patients, and it focuses on the caregivers of cancer patients in various phases of the illness. The discussion of cancer-patient caregivers is divided into three aspects: theoretical (Part 1), research (Part 2), and practical (Part 3) issues. The analysis of these areas can be useful to clinicians, researchers, medical/psychological social workers, and nurses by familiarizing them with the spectrum of stresses experienced by cancer patients and their caregivers, and the coping methods that have proven most effective. Part One presents theoretical background on the structure and progression of the caregiver role and how caregivers cope with the illness as explored in recent literature. Part Two presents empirical research on caregiver psychological distress carried out by the authors during 1993-1999. Part Three examines two important issues. The first is intervention for reducing caregiver distress, and the second issue is the ethical question of caregiver involvement in the patient’s medical decisions. The book is timely, as it is felt that the issue at hand will have mounting importance and relevance to our society as it experiences growing longevity and concomitant challenges in cancer caregiving.