Illness Bodies And Contexts Interdisciplinary Perspectives

This volume is a result of four days in July 2005, where historians, health economists, medical doctors and nurses, anthropologists, writers, sociologists and many more travelled to Oxford, England for the fourth annual 'Making Sense of Health, Illness and Disease' conference organised by Inter-Disciplinary.Net.

The study of health care brings one into contact with many disciplines and perspectives, including those of the provider and the patient. There are also multiple academic lenses through which one can view health, illness and disease. This book brings together scholars from around the world who are interested in developing new conversations intended to situate health in broader social and cultural contexts. This book is the outcome of the second global conference on "Making Sense of: Health, Illness and Disease," held at St Hilda's College, Oxford, in July 2003. The selected papers pursue a range of topics and incorporate perspectives from the humanities, social sciences and clinical sciences. This volume will be of interest to researchers and health care practitioners who wish to gain insight into other ways of understanding health, illness and disease.

Over the past fifty years, design and branding have become omnipotent in the market and have made their way to other domains as well. Given their potential to divide humans into categories and label their worth and value, design and branding can wield immense but currently unharnessed powers of social change. Groups designed as devalued can be undesigned, redesigned and rebranded to seamlessly and equivalently participate in community, work and civic life. This innovative book argues that disability as a concept and category is created, reified, and segregated through current design and branding that begs for creative change. Transcending models of disability that locate it either as an embodied medical condition or as a socially constructed entity, this book challenges the very existence and usefulness of the category itself. Proposing and illustrating creative and responsible design, DePoy and Gilson include thinking and action strategies that are useful and potent for "undesigning", redesigning, and rebranding to meet the full range of human needs and to enhance full participation in local through global communities. Divided into two parts, the first section presents a critical examination of disability as a designed and branded phenomenon, exploring what exactly is being designed and branded and how. The second part investigates the redesign of disability and provides principles for redesign and rebranding illustrated with examples from high-tech to place-based sustainable strategies. The book provides a unique and contemporary framework for thinking about disability as well as providing relevant design and branding guidance to designers and engineers interested in embodiment issues.

Even as life expectancies increase, increasing numbers of people are living with chronic illness and pain than ever before. Long-term self-management of chronic conditions involves negotiating the intersections of personal life choices, community and workplace structures, and family roles. Medical Humanism, Chronic Illness, and the Body in Pain: An Ecology of Wholeness proposes an ecological model of wholeness, which envisions wholeness in the dialogic engagement of the philosophical orientations of the biomedical and traditional medical systems. Vinita Agarwal proposes an integrative premise of being whole through revising the fundamental definitions of humanism, rethinking the self/body/environment, and thereby recognizing alternative ways of organizing knowledge and human experience as this model pushes the intersections of patient-centered care and sustainable health ethics. It is in the spaces of such intersections, Agarwal argues, that we accomplish healing as an integrative relationship of the individual with the multiple cultural logics underlying chronic conditions and the competing medical worldviews of our contemporary landscape. Scholars of communication, health, and medical humanities, along with practitioners working with patients who have chronic conditions, will find this book particularly useful.

The studies of the human being in health and illness and how he can be cared for is concerned with more than the biological aspects and thus calls for a broader perspective. Social sciences and medical humanities give insight into the context and conditions of being ill, caring for the ill, and understanding disease in a respective socio-cultural frame. This book brings together scholars from various countries who are interested in deepening the interdisciplinary discourse on the subject. This book is the outcome of the 4th global conference on "Making Sense of: Health, Illness and Disease," held at Mansfield College, Oxford, in July 2005. This volume will be of interest to students in the medical humanities, researchers as well as health care provider who wish to gain insight into the various perspectives through which we can understand health, illness and disease. It has been brought to our attention that in a chapter in this volume "Media Treatment of Organ Donation: A Case Study in Switzerland" By Peter J. Schulz direct reference and citation of the works of other scholars is often inconsistent and in some cases totally lacking. While we do not believe that it was the intention of the author of the article to misappropriate other persons' material, we do admit that the chapter does not meet standards currently expected of an academic publication. We regret any misappropriation of another author's language, thoughts, ideas, or expressions in our publications and will remain vigilant to prevent this recurring in the future. We give notice that the chapter has been retracted and will not appear in any future editions of the book. Brill, February 2016

What makes a disease real? Why is it that patients with chronic fatigue syndrome or fibromyalgia are doubted when they say they are in pain, and cannot access the same benefits of patient-hood that others can? What defines the limits of our belief and, ultimately, compassion, when it comes to disease? These are the questions approached in this book, which draws upon patients’ experiences and situates them among a diverse set of literatures, from the history and philosophy of medicine to the sociology of health and disease. The question of a patient’s identity and their understanding of disease is often assumed to emerge from their relationship with healthcare, but the case is made here that other, inter-personal factors are more salient. What a patient with a contested illness comes up against is not simply a medical categorisation – it is a prevailing notion of disease across society, and one they struggle to assimilate themselves into. Contested Illness in Context will appeal to students and researchers interested in fields such as the history and philosophy of medicine, the sociology of health and illness, medical anthropology, or disease and illness generally. It may also interest patients and doctors who struggle with difficult medical cases.

This book is a contribution to humanistic studies of illness. Medical humanities are by nature cross-disciplinary, and in recent years studies in this field have been recognized as a platform for dialogue between the “two cultures” of the natural sciences and the humanities. Illness in Context is a result of an encounter of several disciplines, including medicine, history and literature. The main stress is on the literary perspectives of the interdisciplinary collaboration. The reading practices highlighting the clinical, phenomenological and archeological approaches to illness take as their point of departure the living text, that is, the literary experience mediated and created by the text. Literature is seen not solely as a medium for the representation of experiences of illness, but also as a historical praxis involved in the forging of our common understanding of illness. In contrast to traditional literary analysis – primarily oriented toward the interpretation of the literary work’s meaning – the project will emphasize description and understanding of how literature itself performs as a means of interpretation of reality. The target group for this book comprises professionals in the various disciplines, and students of health and culture. The ambition is to contribute to teaching in humanistic illness research, and function as a topical resource book that formulates controversial problems in the crucial meeting of medicine and the humanities.

This book is a critical disability studies examination of the lived experience of chronic pain, engaging with and making a significant contribution to crip theory and the concept of ‘crip time’. Exploring experiences of pain and fatigue for people who live with chronic pain and based on narratives told through in-depth detailed interviews interwoven with theory at the cutting edge of critical disability studies, it demonstrates that our knowledge and understanding of chronic pain is incomplete without a critical disability studies approach. Through conceptualizing the concept of ‘crip time’ via participants’ narratives of living with chronic pain, chronic fatigue, and variable disabilities, this book demonstrates how thinking about chronic pain and fatigue with ‘crip time’ exposes normative, ableist, assumptions underlying both how pain and the ideas of cure and recovery are understood. It will be of interest to all academics and students working in the fields of disability studies, critical disability studies, crip theory, medical sociology, sexuality, and studies of embodiment, corporeality, and temporality more generally.