Making Death Matter

This thesis is a contribution to feminist laboratory studies and a critical engagement with the natural sciences, or more precisely research on the biochemical workings and deadly relations of Alzheimer’s disease emanating from a year of field work in a Drosophila fly lab. The natural sciences have been a point of fascination within the field of gender studies for decades. Such sciences produce knowledge on what gets to count as nature and natural, healthy or sick, normal or not, and they have done it with great societal authority and impact throughout European modernity. However, feminist technoscience scholars argue that science and knowledge is socially produced, and political too. Concepts such as nature, animal, human, body, sex, and life itself are not simply given natural realities but phenomena processed through the naturecultures of the laboratory. Situated within such theoretical and methodological approaches, this thesis wonders how scientific facts about Alzheimer’s disease are made in the lab today. What kinds of realities, bodies and ethico-political concerns are enacted? Who gets to live and who gets to die in everyday laboratory practices? Theoretically, the thesis is grounded, particularly, within Karen Barad’s agential realism and posthumanist performativity, and as such it accounts for human and nonhuman entanglements through which AD is performed in the lab in relational ways. In other words, the thesis explores how AD is enacted in the bodies of transgenic fruit flies (Drosophila melanogaster), as these flies embody the disease, live and die with it. Last but not least, the thesis explores the materialities of death, dying, embodiment and biological waste in a biochemistry lab as constitutive parts of the produced knowledge about AD.

This book investigates death as part of contemporary everyday experience and practices. Through a cultural sociological lens, it studies death as it remains constantly at the edge of our consciousness, shaping the ways in which we move through social reality. As such, Death Matters is a significant contribution to death studies, going beyond traditional parameters of the field by addressing the cultural omnipresence of death. The contributions analyse several death-related meaning-making processes, arguing that meanings emerging from culturally shared narratives, social institutions, and material conditions, are just as important as ’death practices’ in understanding the role of death in society. Drawing on the related themes of places of absence and presence, disease and bodies, and persons and non-persons, the authors explore a variety of areas of social life, from haunting to celebrity deaths, to move the notion of death from the margins of social reality to ongoing everyday life. This far-reaching collection will be of use to scholars and students across death studies, sociology, anthropology, philosophy, culture, media and communication studies.

Orentlicher uses controversial life-and-death issues as case studies for evaluating three models for translating principle into practice. Physician-assisted suicide illustrates the application of "generally valid rules," a model that provides predictability and simplicity and, more importantly, avoids the personal biases that influence case-by-case judgments. The author then takes up the debate over forcing pregnant women to accept treatments to save their fetuses. He uses this issue to weigh the "avoidance of perverse incentives," an approach to translation that follows principles hesitantly for fear of generating unintended results. And third, Orentlicher considers the denial of life-sustaining treatment on grounds of medical futility in his evaluation of the "tragic choices" model, which hides difficult life-and-death choices in order to prevent paralyzing social conflict.

Philosophical debates over the fundamental principles that should guide life-and-death medical decisions usually occur at a considerable remove from the tough, real-world choices made in hospital rooms, courthouses, and legislatures. David Orentlicher seeks to change that, drawing on his extensive experience in both medicine and law to address the translation of moral principle into practice--a move that itself generates important moral concerns. Orentlicher uses controversial life-and-death issues as case studies for evaluating three models for translating principle into practice. Physician-assisted suicide illustrates the application of ''generally valid rules,'' a model that provides predictability and simplicity and, more importantly, avoids the personal biases that influence case-by-case judgments. The author then takes up the debate over forcing pregnant women to accept treatments to save their fetuses. He uses this issue to weigh the ''avoidance of perverse incentives,'' an approach to translation that follows principles hesitantly for fear of generating unintended results. And third, Orentlicher considers the denial of life-sustaining treatment on grounds of medical futility in his evaluation of the ''tragic choices'' model, which hides difficult life-and-death choices in order to prevent paralyzing social conflict. Matters of Life and Death is a rich and stimulating contribution to bioethics and law. It is the first book to examine closely the broad problems of translating principle into practice. And by analyzing specific controversies along the way, it develops original insights likely to provoke both moral philosophers and those working on thorny issues of life and death.

Do Funerals Matter? is a creative interweaving of historical, sociocultural, and research-based perspectives on death rituals, drawing from myriad sources to create a picture of what death rituals have been; and where, especially in the Western world, they are going. Death educators, researchers, counselors, clergy, funeral-service professionals, and others will appreciate the book’s theory- and research-based approach to the ways in which different cultural groups memorialize their dead. They will also find clear clinical and practical applications in the author’s exploration of the five ritual anchors of death-related ceremonial practice and help for professionals counseling the bereaved surrounding funerals. Based on nearly three decades of research and teaching on funeral rites, this volume promises to fill an important gap in the cross-cultural literature on bereavement, while answering an important question for our generation: Do funerals matter?

In this extraordinary book, Iona Heath draws on her experience as a general practitioner to select and comment on a collection of passages concerning death and dying, and to consider the essential nature of general practice. In Ways of Dying Heath illuminates the process for professionals and lay readers, and stimulates consideration of approaches to improved care at end of life. Her renowned work The Mystery of General Practice (which has been unavailable for some time), considers the complex character of this field, its core values and changing roles. The two extended essays cover important issues on the role of the healthcare professional in the care of the dying, the idea of life and death, and the essential nature of general practice. Matters of Life and Death offers inspiration for all doctors, especially those with an interest in medical humanities. It will also be of great interest to general readers interested in end of life matters, and the nature and art of medicine.

Death Matters is a unusual new book that encourages us to change how we think about dying. Throughout the book, author Sally Petch asks us to start talking about and planning our own death – so that we can reach a place of acceptance and lessen our fear of an event which is, ultimately inevitable. Taking a gentle, questioning format, Death Matters encourages us to pause and think about different aspects of dying. Sally poses several questions, encouraging us to note down our responses and consider our thoughts and feelings in response to specific topics. Death Matters also shares other people’s thoughts, anecdotes and experiences to help us feel more comfortable with discussing death openly.There are few books on this topic, fewer still that deal with death in this direct manner – all of which make Death Matters essential reading for everyone who wishes to embrace death positively.By overcoming our fear of death, we will release ourselves to live a fuller live. By changing our emphasis to accept death, we can journey towards dying with confidence and equilibrium.

Dr. Robert Baldwin would be the first to tell you that he used to be an average white Southern male; a family man with conservative ideals and a growing medical practice, he was living out his life without too much introspection. In 1997, however, Baldwin was diagnosed with the auto-immune disease, myasthenia gravis. In his compelling new memoir Life and Death Matters, Baldwin discusses his health scare and his subsequent search for truth in both the Christian church and society at large. Baldwin goes on to tackle one of the most precarious moral issues of our time—the death penalty—with statistical fact and thoughtful religious sympathy. While volunteering as a prison minister, Baldwin immerses himself in this issue, proving himself to be a most thoughtful individual with an eye for social injustice and an ear for those in most need of counsel.