Participatory Research In Palliative Care Actions And Reflections

Participatory Research in Palliative Care discusses participatory research methods within the discipline of palliative care. Providing an overview of the action research methods, it uses exemplars from studies within palliative care, as well as discusses the prominent issues currently faced in this methodology from a global perspective.

Participatory research is a relatively new method of researching practice especially within palliative care. It differs from other methodologies in that there is an expectation of action within the research process. The values that underpin participatory research are collaboration, empowerment, and reflection. In the current climate of collaboration and working with people in healthcare, participatory research methods are gaining increasing interest when there is a desire to bring about change. Organisational change is becoming an important focus as we look at ways of not only reducing costs but at the same time improving quality of care. While palliative care puts the patient and family at the centre, Participatory Research in Palliative Care discusses a new research methodology that puts practitioners at the heart of the research process as collaborators who work together with researchers to resolve problems in practice. Divided into three sections, it provides theoretical groundings of action research, a greater focus on exemplars from studies within palliative care, and discusses prominent issues when using such a methodology. All three sections are illustrated by an action research study undertaken by the author within a palliative care setting. Participatory Research in Palliative Care is written by international, multi-disciplinary authors who explore a collaborative approach to embark on research. It will appeal to health and social care professionals, academics undertaking research within palliative care, and the management of organisations where people with end of life care needs are cared for, including long-term care homes.

'Participatory Research in Palliative Care' discusses participatory research methods within the discipline of palliative care. Providing an overview of the action research methods, it uses exemplars from studies within palliative care as well as discusses the prominent issues currently faced in this methodology from a global perspective.

Action research continues to see a growth in interest both internationally and across disciplines. This book demonstrates the diversity in settings and focus for action research and provides a guide to its core aspiration: to achieve principled change. Written by authors from a range of countries and range of disciplines (including education, health care, palliative care, social work and community development), this book answers these key questions: How can action research be used to achieve principled change? How has action research been applied in various disciplines and in different countries? What can be learnt about the conduct of action research from these diverse settings? By means of detailed case studies of successful projects and discussions that challenge and raise theoretical questions, this book explores some of the contemporary cutting edge applications and conceptualisations of action research. Action research paves the way for the empowerment of people involved in social action, and the examples of successful change processes that are the core of this book will prove inspirational and provide practical advice. Written by a range of leading international researchers in the field, this book will define the future for action research for years to come.

Delphi methods enable the systematic collection of expert judgments. They have proven to be particularly useful when a certain level of expertise and judgment is required to answer a research question. There are different variants of Delphi methods, such as the group Delphi or the real-time Delphi. The book presents current methodological developments and examples of application in the social and health sciences. The contents● Delphi methods: Concepts and variants - Epistemological discussion - Practical challenges - Delphi in the social and health sciences - Real-time Delphi - Delphi markets.● Application examples for Delphi methods - Qualification requirements, recommendations for action for further development and strategy development in the health care industry - Personnel retention and recruitment in occupational nursing - Group Delphi for obesity prevention- Safety and health competence at work - Delphi methods in health promotion The editorsProf. Dr. Marlen Niederberger is professor for research methods in health promotion and prevention at the PH Schwäbisch Gmünd.Prof. Dr. Ortwin Renn is Scientific Director at the Institute for Advanced Sustainability Studies, Potsdam (IASS). This book is a translation of the original German 1st edition Delphi-Verfahren in den Sozial- und Gesundheitswissenschaften by Marlen Niederberger and Ortwin Renn, published by Springer Fachmedien Wiesbaden GmbH, part of Springer Nature in 2019. The translation was done with the help of artificial intelligence (machine translation by the service DeepL.com). A subsequent human revision was done primarily in terms of content, so that the book will read stylistically differently from a conventional translation. Springer Nature works continuously to further the development of tools for the production of books and on the related technologies to support the authors.

Compassionate communities are communities that provide assistance for those in need of end of life care, separate from any official heath service provision that may already be available within the community. This idea was developed in 2005 in Allan Kellehear’s seminal volume- Compassionate Cities: Public Health and End of Life Care. In the ensuing ten years the theoretical aspects of the idea have been continually explored, primarily rehearsing academic concerns rather than practical ones. Compassionate Communities: Case Studies from Britain and Europe provides the first major volume describing and examining compassionate community experiments in end of life care from a highly practical perspective. Focusing on community development initiatives and practice challenges, the book offers practitioners and policy makers from the health and social care sectors practical discussions on the strengths and limitations of such initiatives. Furthermore, not limited to providing practice choices the book also offers an important and timely impetus for other practitioners and policy makers to begin thinking about developing their own possible compassionate communities. An essential read for academic, practitioner, and policy audiences in the fields of public health, community development, health social sciences, aged care, bereavement care, and hospice & palliative care, Compassionate Communities is one of only a handful of available books on end of life care that takes a strong health promotion and community development approach.

Current projections indicate that by 2050 the number of people aged over 80 years old will rise to 395 million and that by this date 25-30% of people over the age of 85 will show some degree of cognitive decline. Palliative care for older people: A public health perspective provides a comprehensive account of the current state of palliative care for older people worldwide and illustrates the range of concomitant issues that, as the global population ages, will ever more acutely shape the decisions of policy-makers and care-givers. The book begins by outlining the range of policies towards palliative care for older people that are found worldwide. It follows this by examining an array of socio-cultural issues and palliative care initiatives, from the care implications of health trajectories of older people to the spiritual requirements of palliative care patients, and from the need to encourage compassion towards end-of-life care within communities to the development of care pathways for older people. Palliative care for older people: A public health perspective is a valuable resource for professionals and academics in a range of healthcare and public health fields to understand the current state of policy work from around the world. The book also highlights the social-cultural considerations that influence the difficult decisions that those involved in palliative care face, not least patients themselves, and offers examples of good practice and recommendations to inspire, support, and direct healthcare policy and decision-making at organisational, regional, national and international levels.

Collaborative Insights provides new perspectives informed by interdisciplinary thinking on musical care throughout the life course. In this book, volume editors Katie Rose M. Sanfilippo and Neta Spiro define musical care as the role that music - music listening as well as music-making - plays in supporting any aspect of people's developmental or health needs, for example physical and mental health, cognitive and behavioural development, and interpersonal relationships. Musical care is relevant to several types of music, approach, and setting, and through the introduction of that new term musical care, the authors prioritise the element of care that is shared among these otherwise diverse contexts and musical activities, celebrating the nuanced interweaving of theory and practice. The multifaceted nature of musical care requires reconciling perspectives and expertise from different fields and disciplines. This book shows interdisciplinary collaboration in action by bringing together music practitioners and researchers to write each chapter collaboratively to discuss musical care from an interdisciplinary perspective and offer directions for future work. The life course structure, from infancy to end of life, highlights the connections and themes present in approach, context, and practices throughout our lives. Thus, the book represents both the start of a conversation and a call to action, inspiring new collaborations that provide new insights to musical care in its many facets.