Quality Of Life And Human Difference

The role of quality assessments in social policy, especially health policy, and ethical and social issues raised by prenatal testing for disability are discussed in this analysis. A theme of the literature has been the role played by controversial assumptions about the quality of life of people with disabilities. This book turns the perspectives of disability scholars to issues that have largely been the province of health methodology, policy and philosophy, while re-directing philosophical policy analysis to problems that have largely been the province of disability scholarship.

Concern about the quality of life and its measurement is probably greater now than ever before. The last five years have seen considerable changes in policy, particularly in health and social service markets bringing into question appropriate measures of input and output. The issues addressed in this volume range from the philosophical question of what the good life is, to detailed studies of what constitutes a good quality of life for particular client groups. Quality of Life will be valuable reading for researchers and practitioners in social policy, social work and economics.

In the United States, some populations suffer from far greater disparities in health than others. Those disparities are caused not only by fundamental differences in health status across segments of the population, but also because of inequities in factors that impact health status, so-called determinants of health. Only part of an individual's health status depends on his or her behavior and choice; community-wide problems like poverty, unemployment, poor education, inadequate housing, poor public transportation, interpersonal violence, and decaying neighborhoods also contribute to health inequities, as well as the historic and ongoing interplay of structures, policies, and norms that shape lives. When these factors are not optimal in a community, it does not mean they are intractable: such inequities can be mitigated by social policies that can shape health in powerful ways. Communities in Action: Pathways to Health Equity seeks to delineate the causes of and the solutions to health inequities in the United States. This report focuses on what communities can do to promote health equity, what actions are needed by the many and varied stakeholders that are part of communities or support them, as well as the root causes and structural barriers that need to be overcome.

This handbook provides a comprehensive historical account of the field of Quality of Life. It brings together theoretical insights and empirical findings and presents the main items of global quality of life and wellbeing research. Worldwide in its scope of topics, the handbook examines discussions of demographic and health development, the spread of democracy, global economic accounting, multi-item measurement of perceived satisfaction and expert-assessed quality of life and the well-being of children, women and poor people. It looks at well-being in specific regions, including North and Sub-Saharan Africa, Asia, South America and Eastern and Western Europe. In addition to contributions by leading and younger authors, the handbook includes contributions from International Organizations about their own work with respect to social reporting.

This collection offers a new understanding of the epistemology of measurement. The interdisciplinary volume explores how measurements are produced, for example, in astronomy and seismology, in studies of human sexuality and ecology, in brain imaging and intelligence testing. It considers photography as a measurement technology and Henry David Thoreau's poetic measures as closing the gap between mind and world. By focusing on measurements as the hard-won results of conceptual as well as technical operations, the authors of the book no longer presuppose that measurement is always and exclusively a means of representing some feature of a target object or entity. Measurement also provides knowledge about the degree to which things have been standardized or harmonized – it is an indicator of how closely human practices are attuned to each other and the world.

The Routledge Companion to Bioethics is a comprehensive reference guide to a wide range of contemporary concerns in bioethics. The volume orients the reader in a changing landscape shaped by globalization, health disparities, and rapidly advancing technologies. Bioethics has begun a turn toward a systematic concern with social justice, population health, and public policy. While also covering more traditional topics, this volume fully captures this recent shift and foreshadows the resulting developments in bioethics. It highlights emerging issues such as climate change, transgender, and medical tourism, and re-examines enduring topics, such as autonomy, end-of-life care, and resource allocation.

Traditionally, the public health viewpoint on disability was geared toward primary prevention of disabling conditions or events. More recently, with the movement for disability rights and the emergence of disability studies, the challenge to the field has been to promote positive health outcomes in this underserved community. Such a change in public health culture must start at the educational level, yet training programs have generally been slow in integrating this perspective—with its potential for enriching the field—into their curricula. Public Health Perspectives on Disability meets this challenge with an educational framework for rethinking disability in public health study and practice, and for attaining the competencies that should accompany this knowledge. This reference balances history and epidemiology, scientific advances, advocacy and policy issues, real-world insights, and progressive recommendations, suiting it especially to disability-focused courses, or to add disability-related content to existing public health programs. Each chapter applies awareness and understanding of disabled persons’ experience to one of the core curriculum areas, including: Health services administration, Environmental health science and occupational health, Health law and ethics, The school as physical setting, Maternal, child, and family health, Disasters and disability. In Public Health Perspectives on Disability, faculty, researchers, administrators, and students in graduate schools of public health throughout the U.S. will find a worthy classroom text and a robust source of welcome—and much needed—change.

Much of the history of Western ethical thought has revolved around debates about what constitutes a good life, and claims that a good life is achievable only by certain human beings. In Feminist Philosophies of Life, feminist, new materialist, posthumanist, and ecofeminist philosophers challenge this tendency, approaching the question of life from alternative perspectives. Signalling the importance of distinctively feminist reflections on matters of shared concern, Feminist Philosophies of Life not only exposes the propensity of discourses to normalize and exclude differently abled, racialized, feminized, and gender nonconforming people, it also asks questions about how life is constituted and understood without limiting itself to the human. A collection of articles that focuses on life as an organizing principle for ontology, ethics, and politics, chapters of this study respond to feminist thinkers such as Gloria Anzaldúa, Judith Butler, Adriana Cavarero, Simone de Beauvoir, Luce Irigaray, and Søren Kierkegaard. Divided into three parts, the book debates the question of life in and against the emerging school of new feminist materialism, provides feminist phenomenological and existentialist accounts of life, and focuses on lives marked by a particular precarity such as disability or incarceration, as well as life in the face of a changing climate. Calling for a broader account of lived experience, Feminist Philosophies of Life contains persuasive, original, and diverse analyses that address some of the most crucial feminist issues. Contributors include Christine Daigle (Brock University), Shannon Dea (University of Waterloo), Lindsay Eales (University of Alberta), Elizabeth Grosz (Duke University), Lisa Guenther (Vanderbilt University), Lynne Huffer (Emory University), Ada Jaarsma (Mount Royal University), Stephanie Jenkins (Oregon State University), Ladelle McWhorter (University of Richmond), Jane Barter Moulaison (University of Winnipeg), Astrida Neimanis (University of Sydney), Danielle Peers (University of Alberta), Stephen Seely (Rutgers University), Hasana Sharp (McGill University), Chloë Taylor (University of Alberta), Florentien Verhage (Washington and Lee University), Rachel Loewen Walker (Out Saskatoon), and Cynthia Willett (Emory University).