Researching With Care

What are the implications of caring about the things we research? How does that affect how we research, who we research with and what we do with our results? Proposing what Joan C. Tronto has called a ‘paradigm shift’ in research thinking, this book invites researchers across disciplines and fields of study to do research that thinks and acts with care. The authors draw on their own and others’ experiences of researching, the troubles they encounter and the opportunities generated when research is approached as a caring practice. Care ethics provides a guide, from starting out, designing and conducting projects to thinking about research legacies. It offers a way in which research can help repair harms and promote justice.

First Published in 1992. Health care is currently under intense pressure both to be cost-effective and to deliver a service its users want. This text is an important contribution to the debate about the most appropriate research method for evaluating its effectiveness.

This is a timely book, given the increasing emphasis on user participation in both research and health and social service provision, that can be read in conjunction with a more general book on research..." David Hicks, Liverpool John Moores University, UK User participation in research is still in its relative infancy with many practical, ethical, moral, methodological and philosophical questions unanswered. This text gathers together an international set of authors to explore these issues and begin to forge some practical solutions to each of these concerns. The book includes contributions on the use and application of narrative approaches, intervention and evaluation research, methodological development and quality thresholds. It provides a practical framework for all groups wishing to undertake research based on the principles and values of user participation. The book is structured around ten original case studies which explore the use of participatory methods in practice with a variety of groups across diverse health, social care and community settings. These include older people, including those with dementia, people with learning disability, mental health service users and their carers, and children and young people. Unique and often groundbreaking studies from Australia, Sweden, the UK, and the USA are used to illustrate application of theory to research practice. In addition the text: Considers the issues, challenges and rewards of user participation research Draws on the actual experience of doing research and working with users Includes the voices and contributions of users in reporting research User Participation in Health and Social Care Research: Voices, Values and Evaluation is key reading for students, researchers, practitioners and users themselves wishing to undertake participative research involving service users.

Health research and health care practice are radically transforming as governments invest more in large scale, national and international health projects with increasing levels of interdisciplinarity as populations age and as nations grow wealthier. This volume examines the structures and dynamics of scientific collaboration in health research and health care. Bringing together detailed research from the US, Canada, Europe and Japan, Collaboration Across Health Research and Medical Care sheds light on the features, environments and relationships that characterise collaboration in health care and research, exploring changing patterns of collaboration and examining the causes and consequences of team work in the health domain. With attention to the increasingly porous boundaries between health care and research, the book not only investigates research settings, but also considers the manner in which knowledge produced in laboratories and clinics is translated into day-to-day medical and care practice and health initiatives. It offers a rich examination of the political, technical and organisational facets of collaboration and the implications of changes in collaboration for every day treatment and practice, Collaboration Across Health Research and Medical Care will be of interest to scholars of sociology and science and technology studies, as well as those working in the field of health policy and research.

Symptom control, management of psychosocial and spiritual concerns, decision-making consistent with values and goals, and care of the imminently dying that is appropriate and sensitive are among the critical issues in palliative care. This book explores progress made and future goals.

AAP Prose Award Finalist 2018/19 Management of Animal Care and Use Programs in Research, Education, and Testing, Second Edition is the extensively expanded revision of the popular Management of Laboratory Animal Care and Use Programs book published earlier this century. Following in the footsteps of the first edition, this revision serves as a first line management resource, providing for strong advocacy for advancing quality animal welfare and science worldwide, and continues as a valuable seminal reference for those engaged in all types of programs involving animal care and use. The new edition has more than doubled the number of chapters in the original volume to present a more comprehensive overview of the current breadth and depth of the field with applicability to an international audience. Readers are provided with the latest information and resource and reference material from authors who are noted experts in their field. The book: - Emphasizes the importance of developing a collaborative culture of care within an animal care and use program and provides information about how behavioral management through animal training can play an integral role in a veterinary health program - Provides a new section on Environment and Housing, containing chapters that focus on management considerations of housing and enrichment delineated by species - Expands coverage of regulatory oversight and compliance, assessment, and assurance issues and processes, including a greater discussion of globalization and harmonizing cultural and regulatory issues - Includes more in-depth treatment throughout the book of critical topics in program management, physical plant, animal health, and husbandry. Biomedical research using animals requires administrators and managers who are knowledgeable and highly skilled. They must adapt to the complexity of rapidly-changing technologies, balance research goals with a thorough understanding of regulatory requirements and guidelines, and know how to work with a multi-generational, multi-cultural workforce. This book is the ideal resource for these professionals. It also serves as an indispensable resource text for certification exams and credentialing boards for a multitude of professional societies Co-publishers on the second edition are: ACLAM (American College of Laboratory Animal Medicine); ECLAM (European College of Laboratory Animal Medicine); IACLAM (International Colleges of Laboratory Animal Medicine); JCLAM (Japanese College of Laboratory Animal Medicine); KCLAM (Korean College of Laboratory Animal Medicine); CALAS (Canadian Association of Laboratory Animal Medicine); LAMA (Laboratory Animal Management Association); and IAT (Institute of Animal Technology).

This scholarly yet accessible textbook is the most comprehensive single text in the field of dementia care. Drawn from research evidence, international expertise and good practice guidelines, the book has been crafted alongside people with dementia and their families. Case studies and quotes enrich every chapter, illustrating the realities of living with dementia and bringing theory to life. Fully updated with 10 brand new chapters, this landmark textbook has enormous breadth and gives an authoritative overview of dementia care. The 2nd edition now includes chapters on the following topics: • Dementia friendly communities • Representations of dementia in the media • Younger people with dementia • The arts and dementia • Enhancing relationships between families and those with dementia • Whole person assessment • Dementia friendly physical design • Transitions in care This compelling new edition is a must purchase for those working or volunteering in health and social care, undergraduate and postgraduate students across a range of disciplines in health and social work, and anyone interested in the field of dementia care including people with dementia and their families. “While we have made significant advances in the care for people with dementia and their families, there is much work yet to be done. This book provides a fantastic framework in which to set our understanding of dementia and to take things forward.” Alistair Burns, Professor of Old Age Psychiatry, Faculty of Medical and Human Sciences, University of Manchester, UK “Bravo to the authors of Excellence in Dementia Care! They have created a must read guidebook for those providing care to persons experiencing cognitive changes and their families. This collaborative effort focuses on successful provider strategies encompassing topics across the dementia journey and is filled with spot on, relevant, and timely information. Best of all, this work is loaded with real case studies to help translate knowledge to practice, making it a true resource for all practitioners.” Suzanne Bottum-Jones, MA, Wisconsin Alzheimer's Institute, School of Medicine & Public Health, University of Wisconsin-Madison, USA