The Complete Directory For People With Rare Disorders

This reference for lay readers and health care professionals presents information on disorders affecting fewer than 200,000 people in the U.S. at any one time. Each of the more than 1,100 entries describes the characteristics, causes, and symptoms of a particular disorder. The extensively cross-referenced volume also features profiles of 680 disease specific organizations as well as 629 umbrella organizations and 77 government agencies. Annotation copyrighted by Book News, Inc., Portland, OR

This informative resource provides a comprehensive overview of the support services and information resources available for people diagnosed with a chronic illness. Thousands of hours of research have gone into this 2005/06 edition, hundreds of new entries have been added and thousands of enhancements have been made to existing entries. This widely-hailed directory is structured around the 90 most prevalent chronic illnesses - from Asthma to Cancer to Wilson's Disease - and provides a comprehensive overview of the support services and information resources available for people diagnosed with a chronic illness. Each chronic illness has its own chapter and contains a brief description in layman's language, followed by important resources for National & Local Organizations, State Agencies, Newsletters, Books & Periodicals, Libraries & Research Centers, Support Groups & Hotlines, Web Sites and much more. Two indexes provide quick access to this wealth of information: Entry Index and Geographic Index. This directory is an important resource for health care professionals, the collections of hospital and health care libraries, as well as an invaluable tool for people with a chronic illness and their support network.

A complete resource for individuals with disabilities, families and support people, professionals, and organizations, providing immediate access to the latest products and services for people with disabilities. Entries are organized in 27 chapters, giving information on resources such as assistive devices, independent living centers, employment and educational programs, state and federal agencies, camps and travel groups, legal information sources, entertainment, and referral agencies. Entries give contact and price information and briefly describe products and services. Includes disability, name, and geographic indexes. This eighth edition contains some 9,000 entries.