The Dying Child

This unique book considers the specific medical, psycho-social, and practical issues involved in caring for children dying from chronic diseases. Ann Goldman, herself a consultant paediatrician in palliative care at the Hospital for Sick Children, Great Ormond Street, recognizes the special needs of terminally ill children and their families. She confronts the problems and issues surrounding the care of these children in order to help paediatricians and other professionals provide the very best possible care for such patients. A range of contributors experienced in palliative care for children provide comprehensive coverage of the subject, including: consideration of the magnitude of the problem and the provision of services, pain control symptom management, family support and communication with children, spiritual issues, bereavement, stress. This practical, interdisciplinary approach to the specific needs of children with terminal diseases will be invaluable for every professional who wishes to enhance standards of care for dying children and their families.

Give Sorrow Words gives an overview of children’s attitudes toward death and considers the moral and ethical issues raised by treatments for life-threatening illnesses in children. In this new edition, available for the first time in the United States, Dorothy Judd draws on her increasing experiences with dying children and their parents to refine and clarify her work as presented in the earlier edition. This book helps readers to make sense out of the irreconcilable tension of embracing death as a part of life and accepting the death of a child. Through her work with Robert, a young boy dying of acute myeloblastic leukemia, Judd helps readers to see anew the need to reconcile the two tensions and to make the necessary decisions for medical care.

Drawings from a Dying Child concerns a young girl, Rachel, terminally ill with leukaemia. The book describes a series of drawings she made and shows how they reveal her inner experience, how she became fully aware that she was dying and even came to accept death. The result is a moving and informative story that will be invaluable to caregivers and families with a dying child. It provides new understanding of the experience of a dying child and suggests practical strategies for coping.

Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.

“A gripping and beautiful book about the power of love in the face of unimaginable loss.” --Cheryl Strayed For readers of The Bright Hour and When Breath Becomes Air, a moving, transcendent memoir of loss and a stunning exploration of marriage in the wake of unimaginable grief. As the book opens: two-year-old Greta Greene is sitting with her grandmother on a park bench on the Upper West Side of Manhattan. A brick crumbles from a windowsill overhead, striking her unconscious, and she is immediately rushed to the hospital. But although it begins with this event and with the anguish Jayson and his wife, Stacy, confront in the wake of their daughter's trauma and the hours leading up to her death, Once More We Saw Stars quickly becomes a narrative that is as much about hope and healing as it is about grief and loss. Jayson recognizes, even in the midst of his ordeal, that there will be a life for him beyond it--that if only he can continue moving forward, from one moment to the next, he will survive what seems unsurvivable. With raw honesty, deep emotion, and exquisite tenderness, he captures both the fragility of life and absoluteness of death, and most important of all, the unconquerable power of love. This is an unforgettable memoir of courage and transformation--and a book that will change the way you look at the world.

What do you do without your best friend? Jamie isn't afraid of anything. Always ready to get into trouble, then right back out of it, he's a fun and exasperating best friend. But when something terrible happens to Jamie, his best friend has to face the tragedy alone. Without Jamie, there are so many impossible questions to answer -- how can your best friend be gone forever? How can some things, like playing games in the sun or the taste of the blackberries that Jamie loved, go on without him?

Revised edition of the best-selling memoir that has been read by over a million people worldwide with translations in 29 languages. After too many years of unfulfilling work, Bronnie Ware began searching for a job with heart. Despite having no formal qualifications or previous experience in the field, she found herself working in palliative care. During the time she spent tending to those who were dying, Bronnie's life was transformed. Later, she wrote an Internet blog post, outlining the most common regrets that the people she had cared for had expressed. The post gained so much momentum that it was viewed by more than three million readers worldwide in its first year. At the request of many, Bronnie subsequently wrote a book, The Top Five Regrets of the Dying, to share her story. Bronnie has had a colourful and diverse life. By applying the lessons of those nearing their death to her own life, she developed an understanding that it is possible for everyone, if we make the right choices, to die with peace of mind. In this revised edition of the best-selling memoir that has been read by over a million people worldwide, with translations in 29 languages, Bronnie expresses how significant these regrets are and how we can positively address these issues while we still have the time. The Top Five Regrets of the Dying gives hope for a better world. It is a courageous, life-changing book that will leave you feeling more compassionate and inspired to live the life you are truly here to live.