The Empowered Patient

The facts are alarming: Medical errors kill more people each year than AIDS, breast cancer, or car accidents. A doctor’s relationship with pharmaceutical companies may influence his choice of drugs for you. The wrong key word on an insurance claim can deny you coverage. Through real life stories, including her own, and shrewd advice, CNN’s Elizabeth Cohen shows you how to become your own advocate and navigate the minefield of today’s health-care system. But there’s good news. Discover how to • find a doctor who “gets” you and listens to you • ask the right questions for the best treatment • make the most out of a short office visit • cut out-of-pocket costs for prescription drugs • harness the power of the Internet for medical issues • fight back when claims are denied Combining the personal stories of patients across America with crucial advice on receiving the best possible health care, this guide will enable you to confront an often confusing and perilous system—and come out ahead.

Dr. Hallisy provides information concerning safety issues in the American health care industry and how to take proactive steps when seeking medical care.

Patients with unmet needs will continue to increase as no viable nor adequate treatment exists. Meanwhile, healthcare systems are struggling to cope with the rise of patients with chronic diseases, the ageing population and the increasing cost of drugs. What if there is a faster and less expensive way to provide better care for patients using the right digital solutions and transforming the growing volumes of health data into insights? The increase of digital health has grown exponentially in the last few years. Why is there a slow uptake of these new digital solutions in the healthcare and pharmaceutical industries? One of the key reasons is that patients are often left out of the innovation process. Their data are used without their knowledge, solutions designed for them are developed without their input and healthcare professionals refuse their expertise. This book explores what it means to empower patients in a digital world and how this empowerment will bridge the gap between science, technology and patients. All these components need to co-exist to bring value not only to the patients themselves but to improve the healthcare ecosystem. Patients have taken matters into their own hands. Some are equipped with the latest wearables and applications, engaged in improving their health using data, empowered to make informed decisions and ultimately are experts in their disease(s). They are the e-patients. The other side of the spectrum are patients with minimal digital literacy but equally willing to donate their data for the purpose of research. Finding the right balance when using digital health solutions becomes as critical as the need to develop a disease-specific solution. For the first time, the authors look at healthcare and technologies through the lens of patients and physicians via surveys and interviews in order to understand their perspective on digital health, analyse the benefits for them, explore how they can actively engage in the innovation process, and identify the threats and opportunities the large volumes of data create by digitizing healthcare. Are patients truly ready to know everything about their health? What is the value of their data? How can other stakeholders join the patient empowerment movement? This unique perspective will help us re-design the future of healthcare - an industry in desperate need for a change.

Inside today's data-driven personalized medicine, and the time, effort, and information required from patients to make it a reality Medicine has been personal long before the concept of “personalized medicine” became popular. Health professionals have always taken into consideration the individual characteristics of their patients when diagnosing, and treating them. Patients have cared for themselves and for each other, contributed to medical research, and advocated for new treatments. Given this history, why has the notion of personalized medicine gained so much traction at the beginning of the new millennium? Personalized Medicine investigates the recent movement for patients’ involvement in how they are treated, diagnosed, and medicated; a movement that accompanies the increasingly popular idea that people should be proactive, well-informed participants in their own healthcare. While it is often the case that participatory practices in medicine are celebrated as instances of patient empowerment or, alternatively, are dismissed as cases of patient exploitation, Barbara Prainsack challenges these views to illustrate how personalized medicine can give rise to a technology-focused individualism, yet also present new opportunities to strengthen solidarity. Facing the future, this book reveals how medicine informed by digital, quantified, and computable information is already changing the personalization movement, providing a contemporary twist on how medical symptoms or ailments are shared and discussed in society. Bringing together empirical work and critical scholarship from medicine, public health, data governance, bioethics, and digital sociology, Personalized Medicine analyzes the challenges of personalization driven by patient work and data. This compelling volume proposes an understanding that uses novel technological practices to foreground the needs and interests of patients, instead of being ruled by them.

The facts are alarming: Medical errors kill more people each year than AIDS, breast cancer, or car accidents. A doctor’s relationship with pharmaceutical companies may influence his choice of drugs for you. The wrong key word on an insurance claim can deny you coverage. Through real life stories, including her own, and shrewd advice, CNN’s Elizabeth Cohen shows you how to become your own advocate and navigate the minefield of today’s health-care system. But there’s good news. Discover how to • find a doctor who “gets” you and listens to you • ask the right questions for the best treatment • make the most out of a short office visit • cut out-of-pocket costs for prescription drugs • harness the power of the Internet for medical issues • fight back when claims are denied Combining the personal stories of patients across America with crucial advice on receiving the best possible health care, this guide will enable you to confront an often confusing and perilous system—and come out ahead.

The WHO Guidelines on Hand Hygiene in Health Care provide health-care workers (HCWs), hospital administrators and health authorities with a thorough review of evidence on hand hygiene in health care and specific recommendations to improve practices and reduce transmission of pathogenic microorganisms to patients and HCWs. The present Guidelines are intended to be implemented in any situation in which health care is delivered either to a patient or to a specific group in a population. Therefore, this concept applies to all settings where health care is permanently or occasionally performed, such as home care by birth attendants. Definitions of health-care settings are proposed in Appendix 1. These Guidelines and the associated WHO Multimodal Hand Hygiene Improvement Strategy and an Implementation Toolkit (http://www.who.int/gpsc/en/) are designed to offer health-care facilities in Member States a conceptual framework and practical tools for the application of recommendations in practice at the bedside. While ensuring consistency with the Guidelines recommendations, individual adaptation according to local regulations, settings, needs, and resources is desirable. This extensive review includes in one document sufficient technical information to support training materials and help plan implementation strategies. The document comprises six parts.

The health care setting of the 21st century is complex and scary. Finding your voice so you can partner with the health care team in a positive way is how you become an empowered patient advocate for yourself or someone you love. Once you are empowered, you can be proactive in making sure your needs… or the needs of your loved one… are adequately served by the health care system. With the purchase of this book, you have taken a major step in finding your voice. READY…SET…ADVOCATE! offers dozens of worksheets that provide step-by-step strategies to help the reader become empowered and successfully navigate through a variety of health care scenarios. A sampling of topics include: Questions to Ask Before a Diagnostic Procedure End of Life Conversations Taking Medication Safely Navigating Through the Emergency Room When You’re Diagnosed With Cancer The Challenges of Being A Caregiver

Aims and Scope Patients are more empowered to shape their own health care today than ever before. Health information technologies are creating new opportunities for patients and families to participate actively in their care, manage their medical problems and improve communication with their healthcare providers. Moreover, health information technologies are enabling healthcare providers to partner with their patients in a bold effort to optimize quality of care, improve health outcomes and transform the healthcare system on the macro-level. In this book, leading figures discuss the existing needs, challenges and opportunities for improving patient engagement and empowerment through health information technology, mapping out what has been accomplished and what work remains to truly transform the care we deliver and engage patients in their care. Policymakers, healthcare providers and administrators, consultants and industry managers, researchers and students and, not least, patients and their family members should all find value in this book. "In the exciting period that lies just ahead, more will be needed than simply connecting patients to clinicians, and clinicians to each other. The health care systems that will be most effective in meeting patients' needs will be those that can actually design their 'human wares' around that purpose. This book provides deep insight into how information technology can and will support that redesign." Thomas H. Lee, MD, MSc, Chief Medical Officer, Press Ganey Associates; Professor of Medicine, Harvard Medical School and Professor of Health Policy and Management, Harvard School of Public Health The Editors: Drs. Maria Adela Grando, Ronen Rozenblum and David W. Bates are widely recognized professors, researchers and experts in the domain of health information technology, patient engagement and empowerment. Their research, lectures and contributions in these domains have been recognized nationally and internationally. Dr. Grando is affiliated with Arizona State University and the Mayo Clinic, and Drs. Rozenblum and Bates are affiliated with Brigham and Women's Hospital and Harvard University.