World Wide Research

Experts examine ways in which the use of increasingly powerful and versatile digital information and communication technologies are transforming research activities across all disciplines. Advances in information and communication technology are transforming the way scholarly research is conducted across all disciplines. The use of increasingly powerful and versatile computer-based and networked systems promises to change research activity as profoundly as the mobile phone, the Internet, and email have changed everyday life. This book offers a comprehensive and accessible view of the use of these new approaches—called “e-Research”—and their ethical, legal, and institutional implications. The contributors, leading scholars from a range of disciplines, focus on how e-Research is reshaping not only how research is done but also, and more important, its outcomes. By anchoring their discussion in specific examples and case studies, they identify and analyze a promising set of practical developments and results associated with e-Research innovations. The contributors, who include Geoffrey Bowker, Christine Borgman, Paul Edwards, Tim Berners-Lee, and Hal Abelson, explain why and how e-Research activity can reconfigure access to networks of information, expertise, and experience, changing what researchers observe, with whom they collaborate, how they share information, what methods they use to report their findings, and what knowledge is required to do this. They discuss both the means of e-Research (new research-centered computational networks) and its purpose (to improve the quality of world-wide research).

Advances in medical, biomedical and health services research have reduced the level of uncertainty in clinical practice. Clinical practice guidelines (CPGs) complement this progress by establishing standards of care backed by strong scientific evidence. CPGs are statements that include recommendations intended to optimize patient care. These statements are informed by a systematic review of evidence and an assessment of the benefits and costs of alternative care options. Clinical Practice Guidelines We Can Trust examines the current state of clinical practice guidelines and how they can be improved to enhance healthcare quality and patient outcomes. Clinical practice guidelines now are ubiquitous in our healthcare system. The Guidelines International Network (GIN) database currently lists more than 3,700 guidelines from 39 countries. Developing guidelines presents a number of challenges including lack of transparent methodological practices, difficulty reconciling conflicting guidelines, and conflicts of interest. Clinical Practice Guidelines We Can Trust explores questions surrounding the quality of CPG development processes and the establishment of standards. It proposes eight standards for developing trustworthy clinical practice guidelines emphasizing transparency; management of conflict of interest ; systematic review-guideline development intersection; establishing evidence foundations for and rating strength of guideline recommendations; articulation of recommendations; external review; and updating. Clinical Practice Guidelines We Can Trust shows how clinical practice guidelines can enhance clinician and patient decision-making by translating complex scientific research findings into recommendations for clinical practice that are relevant to the individual patient encounter, instead of implementing a one size fits all approach to patient care. This book contains information directly related to the work of the Agency for Healthcare Research and Quality (AHRQ), as well as various Congressional staff and policymakers. It is a vital resource for medical specialty societies, disease advocacy groups, health professionals, private and international organizations that develop or use clinical practice guidelines, consumers, clinicians, and payers.

This book is a collection of fictionalised case studies of everyday ethical dilemmas and challenges, encountered in the process of conducting global health research in places where the effects of global, political and economic inequality are particularly evident. It is a training tool to fill the gap between research ethics guidelines, and their implementation 'on the ground'. The case studies, therefore, focus on 'relational' ethics: ethical actions and ideas that emerge through relations with others, rather than in regulations. This work was published by Saint Philip Street Press pursuant to a Creative Commons license permitting commercial use. All rights not granted by the work's license are retained by the author or authors.

Forty years after Clark Kerr coined the term multiversity, the American research university has continued to evolve into a complex force for social and economic good. This volume provides a unique opportunity to explore the current state of the research university system. Charles M. Vest, one of the leading advocates for autonomy for American higher education, offers a multifaceted view of the university at the beginning of a new century. With a complex mission and funding structure, the university finds its international openness challenged by new security concerns and its ability to contribute to worldwide opportunity through sharing and collaboration dramatically expanded by the Internet. In particular, Vest addresses the need to nurture broad access to our universities and stay true to the fundamental mission of creating opportunity.

This book is unique in the sense that it presents a broad and dynamic research narrative, which is filled with phenomena, issues and challenges facing researchers in various disciplines, cultural contexts, linguistic and ethical discourses. The content of the book is addressing three overarching research issues: What are the diverse challenges, opportunities, and limitations different cohorts of individuals face? Why and how do these cohorts respond to these challenges, opportunities, and limitations? How, where, when, and why do researchers interact with these challenges and what have they learned from their investigations? One of the strengths of this edited book is, each of the contributors has explored these three issues from a somewhat unique perspective, but collectively they provide a rich discourse and milieu around the purpose of research and how and why it is conducted and interpreted within a contemporary multimodal context. Across all the chapters the contributions have focused on the process of researching and as a consequence there are two recurring discourses identified.The first discourse relates to conducting the research and involves topics, such as methodology, ethics, research populations, assessment, data, and linguistic complexity. The second discourse is around the researchers, because they are the lens through which their research is conceived, guided, articulated, and interpreted. For too long now, too many books about research, particularly social science related research, have been locked into a narrow discourse around the benefits of either qualitative or quantitative research methods. While this topic is explored in this text, it is not dominated by this one, rather artificial dichotomy. What is exciting about the book is its diversity and the range of dichotomies that are explored and the range of contexts and issues that are reviewed. There is a strong narrative quality throughout the chapters where the voice of the researchers and their purpose is amplified. The book is of special interest to research-orientated students as well as to those who want to learn more about conducting research in a challenging discourse of diverse paradigms.

It’s been ten years since open data first broke onto the global stage. Over the past decade, thousands of programmes and projects around the world have worked to open data and use it to address a myriad of social and economic challenges. Meanwhile, issues related to data rights and privacy have moved to the centre of public and political discourse. As the open data movement enters a new phase in its evolution, shifting to target real-world problems and embed open data thinking into other existing or emerging communities of practice, big questions still remain. How will open data initiatives respond to new concerns about privacy, inclusion, and artificial intelligence? And what can we learn from the last decade in order to deliver impact where it is most needed? The State of Open Data brings together over 60 authors from around the world to address these questions and to take stock of the real progress made to date across sectors and around the world, uncovering the issues that will shape the future of open data in the years to come.

The Oxford Textbook of Clinical Research Ethics is the first comprehensive and systematic reference on clinical research ethics. Under the editorship of experts from the U.S. National Institutes of Health of the United States, the book's 73 chapters offer a wide-ranging and systematic examination of all aspects of research with human beings. Considering the historical triumphs of research as well as its tragedies, the textbook provides a framework for analyzing the ethical aspects of research studies with human beings. Through both conceptual analysis and systematic reviews of empirical data, the contributors examine issues ranging from scientific validity, fair subject selection, risk benefit ratio, independent review, and informed consent to focused consideration of international research ethics, conflicts of interests, and other aspects of responsible conduct of research. The editors of The Oxford Textbook of Clinical Research Ethics offer a work that critically assesses and advances scholarship in the field of human subjects research. Comprehensive in scope and depth, this book will be a crucial resource for researchers in the medical sciences, as well as teachers and students.