Becoming Disabled

Using an autoethnographic approach, as well as multiple first-person accounts from disabled writers, artists, and scholars, Jan Doolittle Wilson describes how becoming disabled is to forge a new consciousness and a radically new way of viewing the world. In Becoming Disabled, Wilson examines disability in ways that challenge dominant discourses and systems that shape and reproduce disability stigma and discrimination. It is to create alternative meanings that understand disability as a valuable human variation, that embrace human interdependency, and that recognize the necessity of social supports for individual flourishing and happiness. From her own disability view of the world, Wilson critiques the disabling impact of language, media, medical practices, educational systems, neoliberalism, mothering ideals, and other systemic barriers. And she offers a powerful vision of a society in which all forms of human diversity are included and celebrated and one in which we are better able to care for ourselves and each other.

Being Disabled, Becoming a Champion is an accessible presentation of current European research on the most recent evolutions in sports for people with disabilities, demonstrating knowledge developed from the field of sports practices of people with disabilities. It covers three interrelated themes. First, it covers the different facets of the history of sports organizations set up during the 1950s for athletes with motor or intellectual impairments. The second part focuses on the athletes themselves. Voices are given to the top-level athletes in adapted sports: people with intellectual impairment; the pioneers of wheelchair racing who invented a new discipline, off-road wheelchair racing; and a former Paralympic athlete who has become a researcher and a defender of specific sports practices. Finally, the third part interrogates the way support for disabled people can modify the existing definitions and conceptions of the body, of disability, of what is human, and of sports performance. This is an ideal text for students and researchers studying and working in the areas of Disability Studies, Sport Sciences and Paralympic Studies. This book was originally published as a special issue of Sport in Society.

Disabled young people will be proud to see themselves reflected in this hopeful, compelling, and insightful essay collection, adapted for young adults from the critically acclaimed adult book, Disability Visibility: First Person Stories from the Twenty-First Century that "sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences." --Chicago Tribune, "Best books published in summer 2020" (Vintage/Knopf Doubleday edition). The seventeen eye-opening essays in Disability Visibility, all written by disabled people, offer keen insight into the complex and rich disability experience, examining life's ableism and inequality, its challenges and losses, and celebrating its wisdom, passion, and joy. The accounts in this collection ask readers to think about disabled people not as individuals who need to be “fixed,” but as members of a community with its own history, culture, and movements. They offer diverse perspectives that speak to past, present, and future generations. It is essential reading for all.

A Publishers Weekly Best Book of the Year for Nonfiction "...an essential and engaging look at recent disability history."— Buzzfeed One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn’t built for all of us and of one woman’s activism—from the streets of Brooklyn and San Francisco to inside the halls of Washington—Being Heumann recounts Judy Heumann’s lifelong battle to achieve respect, acceptance, and inclusion in society. Paralyzed from polio at eighteen months, Judy’s struggle for equality began early in life. From fighting to attend grade school after being described as a “fire hazard” to later winning a lawsuit against the New York City school system for denying her a teacher’s license because of her paralysis, Judy’s actions set a precedent that fundamentally improved rights for disabled people. As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples’ rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act. Candid, intimate, and irreverent, Judy Heumann’s memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.

In September 1955 six-year-old Mark O’Brien moved his arms and legs for the last time. He came out of a coma to find himself enclosed from the neck down in an iron lung, the machine in which he would live for much of the rest of his life. For the first time in paperback, How I Became a Human Being is O’Brien’s account of his struggles to lead an independent life despite a lifelong disability. In 1955 he contracted polio and became permanently paralyzed from the neck down. O’Brien describes growing up without the use of his limbs, his adolescence struggling with physical rehabilitation and suffering the bureaucracy of hospitals and institutions, and his adult life as an independent student and writer. Despite his physical limitations, O’Brien crafts a narrative that is as rich and vivid as the life he led.

In 2016, a United Nations report found the UK government culpable for ‘grave and systematic violations’ of disabled people’s rights. Since then, driven by the Tory government’s obsessive drive to slash public spending whilst scapegoating the most disadvantaged in society, the situation for disabled people in Britain has continued to deteriorate. Punitive welfare regimes, the removal of essential support and services, and an ideological regime that seeks to deny disability has resulted in a situation described by the UN as a ‘human catastrophe’. In this searing account, Ellen Clifford – an activist who has been at the heart of resistance against the war on disabled people – reveals precisely how and why this state of affairs has come about. From spineless political opposition to self-interested disability charities, rightwing ideological myopia to the media demonization of benefits claimants, a shocking picture emerges of how the government of the fifth-richest country in the world has been able to marginalize disabled people with near-impunity. Even so, and despite austerity biting ever deeper, the fightback has begun, with a vibrant movement of disabled activists and their supporters determined to hold the government to account – the slogan ‘Nothing About Us Without Us’ has never been so apt. As this book so powerfully demonstrates, if Britain is to stand any chance of being a just and equitable society, their battle is one we should all be fighting.

“Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.