Dystonia

As many as 250,000 people in the United States have dystonia, making it the third most common movement disorder following essential tremor and Parkinson's disease. Authoritative and reader-friendly, Handbook of Dystonia, Second Edition provides a wide-ranging overview of the latest research and developments regarding the pathogenesis, evaluation, and management of the disease. The book offers detailed coverage of every available treatment option for dystonia and includes four categorized sections on medical management, botulinum toxin injections, phenol and neurolytic therapy, and surgical intervention. The book reviews the genetic factors of dystonia and supplies in-depth coverage of the neuroanatomy, neurophysiology, and neuropathology of the disease. It covers secondary causes of dystonia, including drug-induced and psychogenic presentations. It also examines non-motor symptoms relating to movement disorders and analyzes innovative approaches for treatment including deep brain stimulation. New to the Second Edition: Four new chapters dedicated to the discussion of individual botulinum toxins recently approved to treat dystonia: Botox, Myobloc, Disport, and Xeomin Dystonic symptoms associated with Parkinson’s disorders The use of Transcranial Magnetic Stimulation (TMS) as a treatment option for dystonia Spasticity and its pathogenesis, evaluation, and treatment with toxins, other injectables and surgical therapies Summarizing what is known about the disorder, the book dramatically improves the recognition and understanding of this debilitating disease.

Comprehensive reference for neurologists, neurosurgeons and physical therapists on the treatment of all dystonias in children and adults.

Diagnosis Dystonia takes you on a personal and educational journey full of valuable information for those newly diagnosed, as well as those who have been living with dystonia for years. Tom's perspective as a long time dystonia patient is invaluable, offering coping skills, healthy living strategies, and treatment options. He also provides practical information for emotionally adjusting to the diagnosis and subsequent lifestyle changes, and how to live in the world with something "different." Testimonials from other patients provide additional perspective. Having suffered for many years and not wanting the same for others, Tom compiled a ton of strategies for dealing with all that dystonia brings, such as pain, anger, fear, depression, anxiety, stress, grief, relationships, shame, as well as healthy lifestyle strategies, pain management, how to learn to accept and rebuild, dealing with the public and how to talk about dystonia, treatments, tips for dealing with the diagnosis and life changes down the road, what to expect at your doctor appointments, medications, the work environment, the disability process, tips and tricks for doing daily activities with more ease, and a ton of patient testimonials. Diagnosis Dystonia is a must read for patients, family, friends, caregivers, health care providers, researchers, and anyone who knows someone living with dystonia or other chronic health condition. Readers will benefit from the knowledge, wisdom, and experience Tom has gained through first learning to cope with dystonia and then improving upon the life he leads. This book will help others find their own path in pursuing life in which dystonia is not the focus, but a catalyst for finding better days. Tom now uses his experience and education as a certified professional life coach to help people with dystonia and other life challenges. From the Author: Why this book? There are not many books available on dystonia and most that are available were written by people who do not have dystonia. I felt there was a great need for a book from the perspective of patients, as our experiences are uniquely different than those who never walked a day in our shoes. This book provides readers with a wide window into life with dystonia through the eyes of those who live with this challenging condition. It is arguably the most comprehensive book currently available on dystonia, covering numerous issues we face on a daily basis and providing countless strategies for overcoming obstacles and living a productive life. My goal is to provide you with as much information possible to make your life with dystonia easier. This book need not be read from cover to cover. It is formatted so the reader can jump to chapters and topics of relevance and interest. Although this book centers on dystonia, much of the information can be applied to any health condition or other life challenge. It provides useful strategies and tools for any life circumstance. Sign up for a free newsletter at www.tomseamancoaching.com

This volume is the third in a series developed under the auspices of the World Federation of Neurology to meet the needs of neurologists who must practice medicine without many of the advantages that are often taken for granted in the industrialized world. It is targeted to neurologists practicing in low-resource environments and those who wish to practice cost-effective neurology, and addresses issues important for neurologists in developing countries that are not covered in standard textbooks. The series will update the reader in currently accepted diagnostic and management practice. Material is presented in a user-friendly, interactive manner, with abundant case material. Dystonia is the third most common movement disorder after Parkinson's disease and Tremor. It is a neurologic disorder characterized by involuntary, sustained, patterned and often repetitive muscle contractions of opposing muscles that force parts of the body into abnormal and sometimes painful postures. Dystonia can affect any part of the body and while not fatal, it is a chronic and debilitating disorder. Managing dystonic conditions can be difficult in developing countries where there are limited diagnostic and therapeutic resources. The use of botulinum toxin, considered the treatment of choice for many focal or segmental dystonias, is discussed in regard to its cost effectiveness in the setting of limited resources. Dystonia provides a practical review of the disorder that emphasizes cost-effective evaluation and treatment and advice on how to apply the current knowledge in clinical practice. This text will be a welcome edition to the international literature on the subject.

Dystonia: Etiology, Clinical Features, and Treatment is a comprehensive and up-to-date resource on all forms of generalized and focal dystonias. Its 19 chapters cover classification, genetics and genetic counseling, and electrophysiology, and provide detailed descriptions of the clinical features and treatment of these disorders. Therapeutic choices, which include botulinum toxin injections, intrathecal medications, oral pharmacotherapy, and surgery, are covered in detail. Chapters have been authored by internationally recognized experts in these disorders, and have been written with the practicing clinician in mind. This book is produced by WE MOVE (www.mdvu.org).

Written by the dystonia team at the University of Florida Movement Disorders Center, this book is designed as a practical and complete guide to the integrated management of the dystonia patient. It provides a current understanding of this common but often poorly appreciated condition and a framework for delivering comprehensive multi and intra-disciplinary care. Individual chapters review medical and surgical strategies, botulinum toxin therapy, and programming issues for deep brain stimulators. The remainder of the book is devoted to the important role of health professionals from various disciplines and what the physician needs to know to direct a successful long-term care team for dystonia patients. Features include: Emphasis on a multi-disciplinary team approach to long-term management Coverage of both adult and pediatric patients Pearls and practical points within each chapter to guide the practitioner Lists of resources and referral information for patients, families, and medical teams

A boy named Jack learns he is diagnosed with dystonia. Never Look Down was written by a mother and son team to help other families impacted by this neurological movement disorder.

One hundred years have passed since the first clinical descriptions of dystonia cases appeared in the literature. In the ensuing century, the study of this protean movement disorder has undergone a turbulent evolution, with dramatic shifts in the views regarding its causation and phenomenology. Considered for a period of time as a psychological or