Assessing Genetic Risks

Assessing Genetic Risks
Author: Institute of Medicine,Committee on Assessing Genetic Risks
Publsiher: National Academies Press
Total Pages: 353
Release: 1994-01-01
Genre: Medical
ISBN: 9780309047982

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Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.

The Genetic Testing of Children

The Genetic Testing of Children
Author: Angus Clarke,Clinical Genetics Society (Birmingham, England)
Publsiher: Unknown
Total Pages: 32
Release: 1994
Genre: Genetic disorders in children
ISBN: OCLC:49978114

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The Genetic Testing of Children

The Genetic Testing of Children
Author: Angus Clarke
Publsiher: Garland Science
Total Pages: 390
Release: 2020-07-26
Genre: Medical
ISBN: 9781000144673

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This book, written by a leading geneticist, examines the ethical and social issues raised by the genetic testing of children. The opinions of geneticists, ethicists and affected families are all included to give a balanced view of this controversial field. Issues covered include confidentiality, potential abuses of genetic information (eg the use of test results by insurance companies) and the value of predictive genetic testing. The aim of the book is to improve awareness of the complexity of the issues raised and provide suggestions as to how the discussions must develop - it therefore raises new questions as well as answering those that already exist.

Understanding Gene Testing

Understanding Gene Testing
Author: Anonim
Publsiher: Unknown
Total Pages: 42
Release: 1995
Genre: Cancer
ISBN: PURD:32754066028030

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An Evidence Framework for Genetic Testing

An Evidence Framework for Genetic Testing
Author: National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Health Care Services,Board on the Health of Select Populations,Committee on the Evidence Base for Genetic Testing
Publsiher: National Academies Press
Total Pages: 149
Release: 2017-04-21
Genre: Medical
ISBN: 9780309453295

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Advances in genetics and genomics are transforming medical practice, resulting in a dramatic growth of genetic testing in the health care system. The rapid development of new technologies, however, has also brought challenges, including the need for rigorous evaluation of the validity and utility of genetic tests, questions regarding the best ways to incorporate them into medical practice, and how to weigh their cost against potential short- and long-term benefits. As the availability of genetic tests increases so do concerns about the achievement of meaningful improvements in clinical outcomes, costs of testing, and the potential for accentuating medical care inequality. Given the rapid pace in the development of genetic tests and new testing technologies, An Evidence Framework for Genetic Testing seeks to advance the development of an adequate evidence base for genetic tests to improve patient care and treatment. Additionally, this report recommends a framework for decision-making regarding the use of genetic tests in clinical care.

Genetic Testing of Children

Genetic Testing of Children
Author: A. Clarke
Publsiher: Taylor & Francis
Total Pages: 352
Release: 1997-06-15
Genre: Medical
ISBN: 1859961819

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This book, written by a leading geneticist, examines the ethical and social issues raised by the genetic testing of children. The opinions of geneticists, ethicists and affected families are all included to give a balanced view of this controversial field. Issues covered include confidentiality, potential abuses of genetic information (eg the use of test results by insurance companies) and the value of predictive genetic testing. The aim of the book is to improve awareness of the complexity of the issues raised and provide suggestions as to how the discussions must develop - it therefore raises new questions as well as answering those that already exist.

Anticipate and Communicate

Anticipate and Communicate
Author: Presidential Commission for the Study of Bioethical Issues,The Presidential Commission for the Stud
Publsiher: CreateSpace
Total Pages: 156
Release: 2015-03-11
Genre: Medical
ISBN: 1508807647

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Anticipate and Communicate is the Bioethics Commission's sixth major report. In this report the Bioethics Commission offers specific recommendations for the management of incidental and secondary findings in clinical, research and direct-to-consumer settings. Emerging medical technologies, changing cost structures, and evolving medical practice make the likelihood of discovering incidental and secondary findings across contexts a growing certainty. Such findings can be lifesaving, but also can lead to uncertainty and distress if they are unexpected or identify conditions for which no effective treatment is available.

Pediatric Ethics Theory and Practice

Pediatric Ethics  Theory and Practice
Author: Nico Nortjé,Johan C. Bester
Publsiher: Springer Nature
Total Pages: 476
Release: 2021-12-01
Genre: Philosophy
ISBN: 9783030861827

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This book assists health care providers to understand the specific interplay of the roles and relationships currently forming the debates in pediatric clinical ethics. It builds on the fact that, unlike adult medical ethics, pediatric ethics begins within an acutely and powerfully experienced dynamic of patient-family-state-physician relationship. The book provides a unique perspective as it interacts with established approaches as well as recent developments in pediatric ethics theory, and then explores these developments further through cases. The book first focuses on setting the stage by introducing a theoretical framework and elaborating how pediatric ethics differ from non-pediatric ethics. It approaches different theoretical frameworks in a critical manner drawing on their strengths and weaknesses. It helps the reader in developing an ability to engage in ethical reasoning and moral deliberation in order to focus on the wellbeing of the child as the main participant in the ethical deliberation, as well as to be able to identify the child’s moral claims. The second section of the book focuses on the practical application of these theoretical frameworks and discusses specific areas pertaining to decision-making. These are: the critically ill child, new and enduring ethical controversies, and social justice at large, the latter of which includes looking at the child’s place in society, access to healthcare, social determinants of health, and vaccinations. With the dynamic changes and challenges pediatric care faces across the globe, as well as the changing face of new technologies, no professional working in the field of pediatrics can afford not to take due note of this resource.