Health Data Governance For The Digital Age Implementing The Oecd Recommendation On Health Data Governance

Health data are essential to modern health care delivery, health system management and research and innovation, and must be well governed to foster their use while protecting privacy and data security. The 2016 OECD Recommendation on Health Data Governance provides a roadmap towards more harmonised approaches to health data governance across countries.

Health data are essential to modern health care delivery, health system management and research and innovation, and must be well governed to foster their use while protecting privacy and data security. The 2016 OECD Recommendation on Health Data Governance provides a roadmap towards more harmonised approaches to health data governance across countries. It recommends implementing national health data governance frameworks and sets out the key principles to follow when doing so, while promoting trans-border co-operation in data governance and interoperability. This report provides an overview of the implementation of the Recommendation from 2016-2021 and finds that while there are examples of good progress, overall many Adherents are still working towards implementation in areas including data sharing, accessibility, quality, interoperability and security and privacy protections. Efforts to support the implementation and dissemination of the Recommendation will continue for the next reporting cycle (2022-27) with a focus on cybersecurity, harmonising health data governance to allow for multi-country projects and improving global health data interoperability.

This report identifies eight key data governance mechanisms to maximise benefits to patients and to societies from the collection, linkage and analysis of health data, and to minimise risks to both patient privacy and the security of health data.

The ubiquitous collection, use, and sharing of data that power today’s economies challenge existing governance frameworks and policy approaches. Drawing on the extensive research and analysis conducted at the OECD on data governance, on countries’ policies and practices, and the OECD legal instruments in this area, the Going Digital Guide to Data Governance Policy Making supports policy makers in navigating three fundamental policy tensions that characterise efforts to develop, revise, and implement policies for data governance across policy domains in the digital age.

This book presents a set of models, methods, and techniques that allow the successful implementation of data governance (DG) in an organization and reports real experiences of data governance in different public and private sectors. To this end, this book is composed of two parts. Part I on “Data Governance Fundamentals” begins with an introduction to the concept of data governance that stresses that DG is not primarily focused on databases, clouds, or other technologies, but that the DG framework must be understood by business users, systems personnel, and the systems themselves alike. Next, chapter 2 addresses crucial topics for DG, such as the evolution of data management in organizations, data strategy and policies, and defensive and offensive approaches to data strategy. Chapter 3 then details the central role that human resources play in DG, analysing the key responsibilities of the different DG-related roles and boards, while chapter 4 discusses the most common barriers to DG in practice. Chapter 5 summarizes the paradigm shifts in DG from control to value creation. Subsequently chapter 6 explores the needs, characteristics and key functionalities of DG tools, before this part ends with a chapter on maturity models for data governance. Part II on “Data Governance Applied” consists of five chapters which review the situation of DG in different sectors and industries. Details about DG in the banking sector, public administration, insurance companies, healthcare and telecommunications each are presented in one chapter. The book is aimed at academics, researchers and practitioners (especially CIOs, Data Governors, or Data Stewards) involved in DG. It can also serve as a reference for courses on data governance in information systems.

This report explores how data and digital technology can help achieve policy objectives and drive positive transformation in the health sector while managing new risks such as privacy, equity and implementation costs. It examines the following topics: improving service delivery models; empowering people to take an active role in their health and their care; improving public health; managing biomedical technologies; enabling better collaboration across borders; and improving health system governance and stewardship.

Health at a Glance provides a comprehensive set of indicators on population health and health system performance across OECD members and key emerging economies. These cover health status, risk factors for health, access to and quality of healthcare, and health system resources. Analysis draws from the latest comparable official national statistics and other sources.