Languages Of Care In Narrative Medicine

This book explains how narrative medicine can improve evidence based medicine (EBM), making it more effective and efficient, giving patients better quality of life and offering more satisfaction to all health care providers. It discusses not only the disease experienced by the person who is ill, but also focuses on the context and the culture, and investigates how narrative medicine can make other disciplines around the globe more applicable, less manipulative, and more “scientific”. Only by integrating the narrative aspects, can EBM become more effective and efficient, with fewer uncured patients, more satisfied patients with a better quality of life, and satisfaction for all health care providers. Every chapter is divided into two main sections: the first presents the latest research in the field, with comments and interviews with experts, while the second section provides a list of practical exercises and tasks. The book is intended for anyone with an interest in caring for and curing patients: all care providers of care, physicians, general practitioners, specialists nurses, psychotherapists, counselors, social workers, providers of aid, healthcare managers, scientific societies, academics and researchers.

This book examines all aspects of narrative medicine and its value in ensuring that, in an age of evidence-based medicine defined by clinical trials, numbers, and probabilities, clinical science is firmly embedded in the medical humanities in order to foster the understanding of clinical cases and the delivery of excellent patient care. The medical humanities address what happens to us when we are affected by a disease and narrative medicine is an interdisciplinary approach that emphasizes the importance of patient narratives in bridging various divides, including those between health care professionals and patients. The book covers the genesis of the medical humanities and of narrative medicine and explores all aspects of their role in improving healthcare. It describes how narrative medicine is therapeutic for the patient, enhances the patient–doctor relationship, and allows the identification, via patients' stories, of the feelings and experiences that are characteristic for each disease. Furthermore, it explains how to use narrative medicine as a real scientific tool. Narrative Medicine will be of value for all caregivers: physicians, nurses, healthcare managers, psychotherapists, counselors, and social workers. “Maria Giulia Marini takes a unique and innovative approach to narrative medicine. She sees it as offering a bridge – indeed a variety of different bridges – between clinical care and ‘humanitas’. With a sensitive use of mythology, literature and metaphor on the one hand, and scientific studies on the other, she shows how the guiding concept of narrative might bring together the fragmented parts of the medical enterprise”. John Launer, Honorary Consultant, Tavistock Clinic, London UK

The Principles and Practice of Narrative Medicine articulates the ideas, methods, and practices of narrative medicine. Written by the originators of the field, this book provides the authoritative starting place for any clinicians or scholars committed to learning of and eventually teaching or practicing narrative medicine.

This progressive resource brings the innovative power of narrative medicine to the forefront of community public health care. Chapters describe community involvement across a continuum of control, from health consultants describing problems and suggesting solutions to health committees designing programs and evaluating results. Narrative strategies to this end, including authentic dialogue and community mapping, are examined in the context of public health and fleshed out with examples of different levels of participation by community members. From the respectful collaboration modeled here, the principles of community public health care can potentially expand beyond the immediate community into other social domains on a greater scale. Included in the coverage: · Narratives, local knowledge, and world entry. · Community and narratives. · What is dialogue? · Storylines, causes, and locus of interventions. · Community mapping tells a story. · The politics of storytelling. Narrative Medicine and Community-Based Health Care and Planning gives health psychologists, sociologists, social workers, and public health administrators realistic practical insights for tapping into the unique resources communities and clients have to offer. This is the next step in the evolution of public health, toward large-scale improvements in care delivery, access to and relevance of services, and patient and community outcomes.

Publisher description

Edited by two leading general practitioners and with contributions from over 20 authors, this book covers a wide range of topics to do with narrative in medicine. It includes a wealth of real examples of patients narratives and addresses theoretical and practical issues including the use of narrative as a therapeutic tool, teaching narrative to students, philosophical issues, narrative in legal and ethical decisions, narrative in nursing, and the narrative medical record.

There is often a communication disconnect between medical caregivers, including doctors, nurses, therapists, and other assistive medical personnel, and the patient. While medical staff usually understand a patient’s symptoms, causes, and treatments, communicating this understanding to a patient using industry terminologies can lead to confusion and misunderstanding, and similarly, patients may lack the vocabulary to effectively communicate their experiences back to their caregivers. A new approach to communication must be bridged between these groups by individuals who have experience on both sides of the conversation. Previous studies of doctors who end up in the role of the patient reveal how these individuals have a dual perspective on illness, combining their medical knowledge with their own personal medical experiences. Narratives, including autobiographical accounts and fictional stories, can help bridge the gap between experiential and academic knowledge of illness by expanding one’s limited perspective and accessing others’ points of view. Autobiographical and fictional narratives can both play a role in developing a more comprehensive understanding of illness beyond simply treating the disease. It is necessary to further examine the ethical and methodological underpinnings of narrative-based interventions in the education of healthcare professionals, practitioners, and patients. Global Perspectives on Probing Narratives in Healthcare offers a multidisciplinary examination of theoretical and methodological uses of narratives in healthcare by bringing together medical aspects of healthcare and the study of arts and humanities. This illustrates specific applications of narratives in healthcare settings, including improvement of clinical skills, performance of the caring role, and self-efficacy for building a true partnership in the patient’s health journey through varied approaches, up-to-date tools, and resources that can be transferred and adapted to specific educational and healthcare contexts. This diverse collection of expert knowledge and experience is led by editors with over 20 years of teaching experience: Dr. Teresa Casal of the University of Lisbon, Portugal and Dr. Maria de Jesus Cabral of the University of Minho, Portugal. Expertise featured in this book includes contributions from some of the most prestigious academic institutions, including Columbia University in the United States, King’s College in the United Kingdom, University of Padua in Italy, and more. It is an essential resource for healthcare and social science researchers, academics, advanced healthcare students, health training and education departments, healthcare practitioners and patients’ associations, and policymakers in healthcare who are looking to broaden their scope of understanding of the patient experience.

The Covid pandemic has led us into an upheaval that has made us question the certainties underlying what it means to be a human being in our age; the ability to control medical and social facts through evidence. For the first-time western and developed countries have had to confront what many populations from the developing world (Africa. Latin America, etc) face on a daily basis with HIV and Ebola, etc. The Interconnectedness of Globalization has been the real disseminating catalyst of COVID 19, and many scientists wonder if this virus is the result of the Anthropocene age, with its indisputable lack of respect for the natural ecosystems. The virus has demonstrated that our frailty is only skin deep, and it has not only brought death, despair, but it has broken our interdependency as human beings, by imposing self- isolation as well as creating new ways of connections so that safety cannot imply loneliness. In this book, the coping strategies that originate from the multiple languages of care such as narrative, literature, science, philosophy, art, digital science are shown not only as reflective tools to promote health but also wellbeing amongst carers, patients, students, and citizens of our planet Earth. These strategies should be supported by the decision makers since they are low-cost investments necessary to make the health care system work. They however require a change of cultural paradigm. This book is a useful toolkit for patients, citizens and care services physicians who want to learn more on how to live better with this new world.