The Family Caregiver

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

A NATIONAL BESTSELLER SHORTLISTED FOR THE BALSILLIE PRIZE FOR PUBLIC POLICY It took the coronavirus pandemic to open our eyes to the deplorable state of so many of the nation's long-term care homes: the inhumane conditions, overworked and underpaid staff, and lack of oversight. In this timely new book, esteemed health reporter André Picard reveals the full extent of the crisis in eldercare, and offers an urgently needed prescription to fix a broken system. When COVID-19 spread through seniors' residences across Canada, the impact was horrific. Along with widespread illness and a devastating death toll, the situation exposed a decades-old crisis: the shocking systemic neglect towards our elders. Called in to provide emergency care in some of the hardest-hit facilities in Ontario and Quebec, the military issued damning reports of what they encountered. And yet, the failings that were exposed--unappetizing meals, infrequent baths, overmedication, physical abuse and inadequate personal care--have persisted for years in these institutions. In Neglected No More, André Picard takes a hard look at how we came to embrace mass institutionalization, and lays out what can and must be done to improve the state of care for our elders, a highly vulnerable population with complex needs and little ability to advocate for themselves. Picard shows that the entire eldercare system--fragmented, underfunded and unsupported--is long overdue for a fundamental rethink. We need to find ways to ensure seniors can age gracefully in the community for longer, with supportive home care and respite for family caregivers, and ensure that long-term care homes are not warehouses of isolation and neglect. Our elders deserve nothing less.

Caring for a loved one at home. What’s really involved? And what does it mean for your family and future? Tens of millions of Americans have had these questions and more as they prepare for this unsettling yet necessary task. The Family Caregiver’s Guide fills in the gaps, connecting the dots between research and real life. Drawing on the author’s extensive caregiving experience, this book provides strategies to care for your loved one, inside and out, as well as for yourself—including how to use your natural skills in your new role, and which skills you may need to add. You’ll discover how to set up your home for caregiving, including a safety checklist, equipment suggestions, and words you should know. And for those days that are more than a handful, you’ll find positive affirmations, a section on facing and accepting illness, and smart steps at the end of each chapter, in case you need guidance in a hurry. Caregiving has both rewards and challenges. But through it all, you’ll discover what’s most important—that caregiving is love in action.

Providing eldercare while working and managing a busy home life is a recipe for burnout and is the worst situation in which to make thoughtful, informed decisions that have significant impact on the quality of life of an aging parent. The Complete Guide for Family Caregivers, written by one of Canada's foremost experts on eldercare, provides the advice people need to make smart decisions, both with and for their loved ones, including housing, finances, legal and estate planning, medical needs, and independence and mobility. This book provides not only practical advice but also discusses the various situations that may confront you and provides real, actionable information and sources to help you along the way in your eldercare journey.

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/

"Caring for the Family Caregiver is an extensive practical tool kit for health care providers across the healthcare continuum. Regardless if it is a mother caring for a child with a developmental disability, a wife caring for a husband with a long term chronic illness, or a daughter sitting at the bedside of her father who is enrolled in hospice, family caregivers are the silent "other patient" in the health care drama. Healthcare providers who do not attend to the needs of the caregiver not only inflict interactional suffering, but dilute their treatment by not engaging the caregiver as a partner. In fact, they may unintentionally do harm as the caregiver flounders and thus patient treatment fails. As noted by one dying cancer patient in an educational YouTube video of his cancer journey, "there are two patients not one." If we are to eliminate the interactional suffering experienced by family caregivers, we must train both the caregiver and the health care team for the important interaction and roles that are required for the successful care of the patient. Caregivers lack information, skills, and emotional support for the tireless task they are volunteering for. They need to be taught how to advocate for themselves and their patients and how to best communicate with the health care team. Likewise, health care providers have the skills and knowledge to provide outstanding patient centered care; however, they are not taught the importance of the family caregiver, nor do they always understand that experience or how to help"--

Caring for an older family member with physical or cognitive impairments is a difficult, strenuous process. Caregivers often struggle to balance their own needs with those of the care recipient. Their relationships with family, friends, coworkers, and even the care recipient can suffer as well. As a result, family members often seek professional help to guide them through the caregiving process. This book presents Caregiver Family Therapy (CFT), a systems approach to treating families that care for an aging adult. CFT consists of three core stages: Identifying the problem Structuring caregiver roles Ensuring caregiver self-care Transition stages bridge one core stage to the next, helping caregivers structure care for the older adult, examine the impact of caregiving role structures, and consider broader effects of caregiving. As new challenges arise, the stages are repeated and the CFT process begins anew. Full of rich clinical examples, this book will help therapists and other service providers meet the complex, diverse needs of caregiving families.

With the trend of deinstitutionalization, family members are finding themselves increasingly in the position of primary caregivers to mentally ill adults - a role for which they are often untrained and unprepared. This volume explores the experiences of these caregivers. The author: discusses the characteristics and conceptual models related to mental illness; surveys the experience of mental illness in the context of the family life cycle and developmental stages of the illness; appraises the burdens on the family including social stigma, refusal of treatment, stress and the relationship between the mentally ill and caregivers within the family; and reviews family responses including coping strategies and professional and