Miracle Boy Grows Up

Describes how the author, an NPR commentator and professional writer who was born with spinal muscular atrophy, was expected to die in childhood but who with the support of a growing disability rights movement became one of the first students in a wheelchair to attend Harvard.

Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage? Mattlin’s life happened to parallel the growth of the disability rights movement, so that in many ways he did not feel that he was disadvantaged at all, merely different. Miracle Boy Grows Up is a witty, unsentimental memoir that you won’t forget, told with engrossing intelligence and a unique perspective on living with a disability in the United States.

A frank, humorous exploration of interabled dating, love, and marriage Ben Mattlin’s wife, ML, recalls falling in love with his confidence and sheer determination. On one of their earliest dates, he persuaded her to ride on his lap in his wheelchair on their way home from an Elvis Costello concert. Thirty years later, they still travel like this from time to time, undaunted by the curious stares following them down the street. But In Sickness and in Health is more than an “inspiring” story of how a man born with spinal muscular atrophy—a congenital and incurable neuromuscular condition—survived childhood, graduated from Harvard, married an able-bodied woman, built a family with two daughters and a cat and a turtle, established a successful career in journalism, and lived happily ever after. As Mattlin considers the many times his relationship has been met with surprise or speculation by outsiders—those who consider his wife a “saint” or him just plain “lucky” for finding love—he issues a challenge to readers: why should the idea of an “interabled” couple be regarded as either tragic or noble? Through conversations with more than a dozen other couples of varying abilities, ethnic backgrounds, and orientations, Mattlin sets out to understand whether these pairings are as unusual as onlookers seem to think. Reflecting on his own experience he wonders: How do people balance the stresses of personal-care help with the thrill of romance? Is it possible that the very things that appear to be insurmountable obstacles to a successful relationship—the financial burdens, the physical differences, the added element of an especially uncertain future—could be the building blocks of an enviable level of intimacy and communication that other couples could only dream of? We meet Shane Burcaw, a twenty-three-year-old writer, who offers a glimpse of his first forays into dating with a disability. There’s Rachelle Friedman, the “paralyzed bride,” as the media refers to her, and her husband, discussing the joys and challenges of a new marriage and a growing family. And Christina Crosby and her partner, Janet Jakobsen, reflect on how Crosby’s disabling accident called for them to renegotiate their roles and expectations in their long-term relationship. What emerges is a candid glimpse into the challenges and joys of interabled love—from the first blush of sexual awakening to commitment and marriage and through to widowhood.

"It was in the year of 1945 on a cold morning, the third day, in the month of March. A little boy was born as the wind blew against the hogan with bitter colds and the stars were disappearing into the heaven." So begins the story of Broneco, a Navajo boy who tells of his search for a miracle. Through that telling we learn a new perspective on language and life. In Miracle Hill, Blackhorse Mitchell presents the unforgettable account of a boyÕs struggle to learnÑwhich would be for him a miracleÑin the face of handicaps most people would call insurmountable. Under the guidance of a teacher determined to help him pursue that miracle, he records his life from birth to the dawn of manhood: herding family sheep, living at a boarding school, encountering whites for the first time, journeying home, and finally enrolling in the Institute of American Indian Arts in Santa Fe, where his talent was encouraged. Miracle Hill is written in a distinctively personal style, without strict adherence to orthodox grammar that would have robbed Mitchell of his true voice. Filled with unforgettable characters and brimming with insights into Navajo ways and family relationships, it is a book that crosses cultural barriers and speaks to the miracle-seeker in us all.

From a three-time Newbery Honor author, a novel that was awarded the 2001 Coretta Scott King award and the Los Angeles Times Book Prize For Lafayette and his brothers, the challenges of growing up in New York City are compounded by the facts that they've lost their parents and it's up to eldest brother Ty'ree to support the boys, and middle brother Charlie has just returned home from a correctional facility. Lafayette loves his brothers and would do anything if they could face the world as a team. But even though Ty'ree cares, he's just so busy with work and responsibility. And Charlie's changed so much that his former affection for his little brother has turned to open hostility. Now, as Lafayette approaches 13, he needs the guidance and answers only his brothers can give him. The events of one dramatic weekend force the boys to make the choice to be there for each other--to really see each other--or to give in to the pain and problems of every day.

Children everywhere know that our world needs fixing, but it is the rare author who can put herself in children's shoes, and capture their complicated feelings in words. Susie Morgenstern has a gift for taking serious subjects and making sure they're clever, touching, and never too heavy. In this striking new picture book, she tackles the penetrating question Who is taking care of our world? When a little boy is asked What do you want to do when you grow up? he dreams of improving the world in wonderful ways-but realizes in the end that even the biggest dreams need to start small. Evocative art, hauntingly reminiscent of Maurice Sendak's classic In the Night Kitchen, illuminates the simple but inspiring story.

The inspiration for the Lifetime movie and a guide for parents confronting their autistic children's journeys to adulthood. Parents of autistic children often wonder: What will happen to our kids when they grow up? Can they work? Have relationships and their own families? Here is the poignant story of one woman watching her autistic boys reach adulthood. A single mother barely making ends meet, Corrine Morgan-Thomas could hardly afford doctors for her twins, Stephen and Phillip. After their diagnosis of autism, no one else thought these boys would ever amount to anything. But Corrine managed single-handedly to keep the boys out of institutions-and in "regular" school. And their inspiring story became Lifetime television's Miracle Run. The real miracle, though, was what happened where the movie left off-when Stephen and Phillip graduated to face adult autism. From their diagnosis to the present day, when the boys have grown into young men leading happy lives, Corrine's eye-opening story is full of candor, humor, and most of all, hope.